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old dude Offline

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Posts: 46
Joined: Jul 2013

Machine: PR System One BiPap Auto Bi-Flex 760P
Mask Type: Full face mask
Mask Make & Model: RM Quattro Mirage, Quattro Air, Quattro FX
Humidifier: PR System One HT DS6TFLG
CPAP Pressure: 15/11
CPAP Software: SleepyHead EncoreBasic

Other Comments:

Sex: Male
Location: N. Ga. & FL. Panhandle

Post: #1
New member here
Hi folks,

I just signed up and wanted to say hello. I was officially DX'd in April with an AHI of 131, discovered after an episode of Atrial Flutter that required a cardioversion. I had probably had OSA for 30+ years but thought I was cheating it by side sleeping. At my June sleep doc visit my AHI was down to 1.7, but mask troubles are keeping me from sleeping more than 4-4-1/2 hours a night and sometimes less.

I look forward to being here and learning. As big a problem as I'm having with my masks I remain deeply committed to making this work.

P.S.- Hope it's OK to post this on the other forum as well.
07-27-2013 05:52 PM
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Tez62 Offline

Monitors

Posts: 837
Joined: Feb 2013

Machine: Resmed S9 Autoset
Mask Type: Full face mask
Mask Make & Model: Resmed Mirage Quattro
Humidifier: Resmed
CPAP Pressure: 5-15
CPAP Software: SleepyHead

Other Comments:

Sex: Male
Location: Melbourne, Australia

Post: #2
RE: New member here
Welcome old dude, 131 is high, well done on getting it so low, what issues are you having with the mask? FFM take quite a bit of getting used to but there are some tips and tricks to them.
07-27-2013 05:56 PM
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trish6hundred Offline

Advisory Members

Posts: 6,430
Joined: May 2012

Machine: Resmed S9 AutoSet for Her
Mask Type: Full face mask
Mask Make & Model: Fisher & Paykel Simplus
Humidifier: H5i Heated Humidifier
CPAP Pressure: 10 - 7-20 Cm H2O
CPAP Software: Not using software

Other Comments: I started CPAP in 2008. Totally blind since birth.

Sex: Female
Location: Missouri, USA

Post: #3
RE: New member here
Hi there old dude,
WELCOME! to the forum.!
Glad you are so committed to make your CPAP therapy work.
The mask is the hardest part of this whole thing, so commitment is certainly needed.
Hang in there for more responses to your post and best of luck.

trish6hundred
07-27-2013 06:06 PM
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old dude Offline

Preferred Members

Posts: 46
Joined: Jul 2013

Machine: PR System One BiPap Auto Bi-Flex 760P
Mask Type: Full face mask
Mask Make & Model: RM Quattro Mirage, Quattro Air, Quattro FX
Humidifier: PR System One HT DS6TFLG
CPAP Pressure: 15/11
CPAP Software: SleepyHead EncoreBasic

Other Comments:

Sex: Male
Location: N. Ga. & FL. Panhandle

Post: #4
RE: New member here
(07-27-2013 05:56 PM)Tez62 Wrote:  Welcome old dude, 131 is high, well done on getting it so low, what issues are you having with the mask? FFM take quite a bit of getting used to but there are some tips and tricks to them.


To over simplify the problem, when I get the mask(s) tight enough to actually seal and not make those obscene noises, I wake up looking like I've been in a bar fight. The bruises and bumps stay there for days or more, and are made worse by having to use the mask the following night. My DME therapist has told me I had it too tight, but loosening only makes it impossible to seal. I've tried the Gecko, Remzzes, band aids-everything I can think of.

In the defense of all concerned, I might be a tough customer. 5-10, 275 with a big bucket sized head and a fat face with a light, short beard.

I'm determined to whip the problem but it's very daunting at times!

(07-27-2013 06:06 PM)trish6hundred Wrote:  Hi there old dude,
WELCOME! to the forum.!
Glad you are so committed to make your CPAP therapy work.
The mask is the hardest part of this whole thing, so commitment is certainly needed.
Hang in there for more responses to your post and best of luck.

Yes, you're certainly right! As a near lifelong acute and chronic anxiety patient I thought a feeling of choking/claustrophobia would be the problem, but it turns out not at all-it's the darn mask!
(This post was last modified: 07-27-2013 06:13 PM by old dude.)
07-27-2013 06:10 PM
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Tez62 Offline

Monitors

Posts: 837
Joined: Feb 2013

Machine: Resmed S9 Autoset
Mask Type: Full face mask
Mask Make & Model: Resmed Mirage Quattro
Humidifier: Resmed
CPAP Pressure: 5-15
CPAP Software: SleepyHead

Other Comments:

Sex: Male
Location: Melbourne, Australia

Post: #5
RE: New member here
Unfortunately as you know not one size mask fits all, one tip I suggest to everyone is have the hose coming from above your head either over your bed head or you can buy a hose lift or as a lot of us do make our own. This then pulss the mask up rather than pulling down on it, you may be able to loosen it a bit. I understand where you are coming from with the marks, it took me about 12 months to get used to the FFM and occassionally still get leaks which wake me up but at least I get more sleep than I used to, I used to only sleep 1-2 hours a night before being diagnosed and now it is quality sleep.
I'm sure others will be on to give you more suggests.
07-27-2013 06:21 PM
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Paptillian Offline

Preferred Members-2

Posts: 474
Joined: Jun 2013

Machine: S9 AutoSet
Mask Type: Nasal pillows
Mask Make & Model: Swift FX
Humidifier: H5i
CPAP Pressure: 4 - 10, EPR x2
CPAP Software: ResScan SleepyHead

Other Comments:

Sex: Male
Location: Pennsylvania, USA

Post: #6
RE: New member here
Are nasal pillows or masks an option for you? If you're not a mouth breather you might benefit from a lighter, smaller mask.
07-27-2013 06:23 PM
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PaulaO2 Offline
Wiki Editor
Moderators

Posts: 8,062
Joined: Feb 2012

Machine: S9 Autoset
Mask Type: Full face mask
Mask Make & Model: F&P Simplus
Humidifier: H5i
CPAP Pressure: 14-20
CPAP Software: SleepyHead

Other Comments: Ehlers-Danlos Syndrome, Hypermobility Type; chronic sarcasm

Sex: Undisclosed
Location: western NC, USA

Post: #7
RE: New member here
Have you tried a chin strap?

Other FFM?

And yes, if you have it so tight it is bruising, it is too tight. 17/13 is not overly high a pressure that a FFM would have problems with it, other than their usual leaky existence. They are designed to float on the face, forming its own seal.

PaulaO2
Apnea Board Moderator
www.ApneaBoard.com


Breathe deeply and count to zen.

INFORMATION ON APNEA BOARD FORUMS OR ON APNEABOARD.COM SHOULD NOT BE CONSIDERED AS MEDICAL ADVICE. ALWAYS SEEK THE ADVICE OF A PHYSICIAN BEFORE SEEKING TREATMENT FOR MEDICAL CONDITIONS, INCLUDING SLEEP APNEA. INFORMATION POSTED ON THE APNEA BOARD WEB SITE AND FORUMS ARE PERSONAL OPINION ONLY AND NOT NECESSARILY A STATEMENT OF FACT.
07-27-2013 06:45 PM
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old dude Offline

Preferred Members

Posts: 46
Joined: Jul 2013

Machine: PR System One BiPap Auto Bi-Flex 760P
Mask Type: Full face mask
Mask Make & Model: RM Quattro Mirage, Quattro Air, Quattro FX
Humidifier: PR System One HT DS6TFLG
CPAP Pressure: 15/11
CPAP Software: SleepyHead EncoreBasic

Other Comments:

Sex: Male
Location: N. Ga. & FL. Panhandle

Post: #8
RE: New member here
I surely do appreciate all the responses so far.

I have indeed tried a nasal mask; it was a F-P Eson and easily the most comfortable mask I've tried. I do suffer from a good bit of nasal congestion so I found that I would slip into mouth breathing, but the biggest problem was that after about an hour and a half I awoke to find that the inside of my nasal passages seemed to be on fire-no kidding, really burning. This even with my humidifier all the way up.

So I guess the search continues.

By the way, are nasal masks designed so that you don't feel the pressurization inside them like you do with a FF mask? I had to check to make sure my machine was on a couple of times.
07-27-2013 07:47 PM
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PaulaO2 Offline
Wiki Editor
Moderators

Posts: 8,062
Joined: Feb 2012

Machine: S9 Autoset
Mask Type: Full face mask
Mask Make & Model: F&P Simplus
Humidifier: H5i
CPAP Pressure: 14-20
CPAP Software: SleepyHead

Other Comments: Ehlers-Danlos Syndrome, Hypermobility Type; chronic sarcasm

Sex: Undisclosed
Location: western NC, USA

Post: #9
RE: New member here
Quote:I have indeed tried a nasal mask; it was a F-P Eson and easily the most comfortable mask I've tried. I do suffer from a good bit of nasal congestion so I found that I would slip into mouth breathing, but the biggest problem was that after about an hour and a half I awoke to find that the inside of my nasal passages seemed to be on fire-no kidding, really burning. This even with my humidifier all the way up.

There's several things that could have caused the burning.
- too little humidity. Some people just can't handle the dryness. Others don't seem to notice a difference.
- too much humidity. It seems counter intuitive but it happens.
- moisture from the mask dripped down inside your nostrils. It can burn like mad. But you would have felt water on your face and had condensation inside the mask. I do this with my nasal pillows.

To stop mouth breathing, you can try a chin strap. And there's training yourself to not open your mouth at night. Someone will chime in with info on that.

Quote:So I guess the search continues.

Not all masks of the same type are the same. Another nasal mask may work better for you. Same with full face ones. Many of us went through a lot of masks before we found one (or two) that worked. Some of us switch between masks depending on season and health.

Quote:By the way, are nasal masks designed so that you don't feel the pressurization inside them like you do with a FF mask? I had to check to make sure my machine was on a couple of times.

That was your body getting used to the sensation of the air. It's a good sign! It's not limited to the type of mask but the user. When I first started, I used to could not speak while using the machine as the air just roared out my mask. Slowly I got better at blocking it until I sounded like someone with a cold. Now I don't think there's that much of a difference in sound.

PaulaO2
Apnea Board Moderator
www.ApneaBoard.com


Breathe deeply and count to zen.

INFORMATION ON APNEA BOARD FORUMS OR ON APNEABOARD.COM SHOULD NOT BE CONSIDERED AS MEDICAL ADVICE. ALWAYS SEEK THE ADVICE OF A PHYSICIAN BEFORE SEEKING TREATMENT FOR MEDICAL CONDITIONS, INCLUDING SLEEP APNEA. INFORMATION POSTED ON THE APNEA BOARD WEB SITE AND FORUMS ARE PERSONAL OPINION ONLY AND NOT NECESSARILY A STATEMENT OF FACT.
07-27-2013 09:29 PM
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jgjones1972 Offline

Preferred Members-2

Posts: 516
Joined: Nov 2012

Machine: ResMed S9 AutoSet
Mask Type: Full face mask
Mask Make & Model: ResMed Quattro FX
Humidifier: ResMed H5i
CPAP Pressure: 18 - 20
CPAP Software: ResScan SleepyHead

Other Comments: CMS50I PulseOx

Sex: Male
Location: Ohio - USA

Post: #10
RE: New member here
Two things immediately come to mind:

Are you washing the silicone cushion daily with something that won't leave any oily residue so the cushion is "squeaky clean" (i.e. tacky).

And

Have you considered shaving the beard? I know people say that FFMs will work with beards; but, my experience has been that they just don't play well together.

Sleep-well
07-27-2013 10:05 PM
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