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New member here - Love the site already - Need some advice
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biglar831 Offline

Members

Posts: 14
Joined: Aug 2012

Machine: Phillips Respironics REMstar Auto A-Flex
Mask Type: Full face mask
Mask Make & Model: Respironics Amara
Humidifier: System one
CPAP Pressure: 8.0-15.0
CPAP Software: SleepyHead

Other Comments: This place is the best

Sex: Male
Location: Cleveland, Ohio

Post: #21
RE: New member here - Love the site already - Need some advice
Again guys, thank you so much for all of the information. I have scheduled another sleep study for this evening. I have also reached out to my provider and left a voice mail to inquire about changing my equipment. I also have obtained a number for a new respiratory therapist so if I can't get what I want/need from my current doctor, I am going to try that route.

Thank you all again for your input and knowledge. I'll never forget how alone and scared I felt the night of my original sleep study. It's so nice talking to other people about their experiences. Now I am excited and I can't wait to learn everything I can and kick this things *butt*
08-27-2012 10:17 AM
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lonnieb Offline

Preferred Members-2

Posts: 113
Joined: Jul 2012

Machine: ResMed S9
Mask Type: Nasal mask
Mask Make & Model: Phillips ComfortGel Blue
Humidifier: ResMed H5i
CPAP Pressure: 7 - 13
CPAP Software: ResScan SleepyHead

Other Comments: I intend to live forever. So far, so good:Steven Wright

Sex: Male
Location: Tennessee

Post: #22
RE: New member here - Love the site already - Need some advice
The will to win, the desire to succeed, the urge to reach your full potential... these are the keys that will unlock the door to personal excellence.

Sleep-well
08-27-2012 12:27 PM
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trish6hundred Offline

Advisory Members

Posts: 6,450
Joined: May 2012

Machine: Resmed S9 AutoSet for Her
Mask Type: Full face mask
Mask Make & Model: Fisher & Paykel Simplus
Humidifier: H5i Heated Humidifier
CPAP Pressure: 10 - 7-20 Cm H2O
CPAP Software: Not using software

Other Comments: I started CPAP in 2008. Totally blind since birth.

Sex: Female
Location: Missouri, USA

Post: #23
RE: New member here - Love the site already - Need some advice
Hi biglar831, GREAT to hear your RESOLVE to continue onward, that's what it takes.

trish6hundred
08-27-2012 04:08 PM
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archangle Offline
Wiki Editor
Advisory Members

Posts: 3,159
Joined: Feb 2012

Machine: ResMed S9 AutoSet
Mask Type: Nasal pillows
Mask Make & Model: ResMed Swift FX
Humidifier: ResMed S9 H5i
CPAP Pressure: 16-20
CPAP Software: ResScan SleepyHead EncoreBasic

Other Comments: Happy PAPper

Sex: Undisclosed
Location: USA

Post: #24
RE: New member here - Love the site already - Need some advice
(08-26-2012 06:32 PM)biglar831 Wrote:  The name if my machine is a Phillips Respironics REMstar System One 150P is the model number sleepyhead pulled off of it.

You got screwed. I hope you can exchange it.

Treating apnea with a non-data capable CPAP is like treating a diabetic with insulin, but only checking blood sugar levels once a year or so in the lab.

Get the free SleepyHead software here.
Useful links.
Click here for information on the main alternative to CPAP.
If it's midnight and a DME tells you it's dark outside, go and check it yourself.
08-27-2012 04:30 PM
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SuperSleeper Offline

Administrators

Posts: 9,973
Joined: Feb 2012

Machine: PR System One REMstar Auto (DS560)
Mask Type: Nasal pillows
Mask Make & Model: ResMed Mirage Swift II
Humidifier: none
CPAP Pressure: 12.5 - 18.5 cmH20 (auto range)
CPAP Software: SleepyHead

Other Comments: Have diabetes Type II

Sex: Male
Location: Illinois, USA

Post: #25
RE: New member here - Love the site already - Need some advice
(08-27-2012 04:30 PM)archangle Wrote:  Treating apnea with a non-data capable CPAP is like treating a diabetic with insulin, but only checking blood sugar levels once a year or so in the lab.


EXCELLENT STATEMENT. Well-done

SuperSleeper
Apnea Board Administrator
www.ApneaBoard.com


INFORMATION ON APNEA BOARD FORUMS OR ON APNEABOARD.COM SHOULD NOT BE CONSIDERED AS MEDICAL ADVICE. ALWAYS SEEK THE ADVICE OF A PHYSICIAN BEFORE SEEKING TREATMENT FOR MEDICAL CONDITIONS, INCLUDING SLEEP APNEA. INFORMATION POSTED ON THE APNEA BOARD WEB SITE AND FORUMS ARE PERSONAL OPINION ONLY AND NOT NECESSARILY A STATEMENT OF FACT.

08-27-2012 06:27 PM
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biglar831 Offline

Members

Posts: 14
Joined: Aug 2012

Machine: Phillips Respironics REMstar Auto A-Flex
Mask Type: Full face mask
Mask Make & Model: Respironics Amara
Humidifier: System one
CPAP Pressure: 8.0-15.0
CPAP Software: SleepyHead

Other Comments: This place is the best

Sex: Male
Location: Cleveland, Ohio

Post: #26
RE: New member here - Love the site already - Need some advice
(08-27-2012 04:30 PM)archangle Wrote:  
(08-26-2012 06:32 PM)biglar831 Wrote:  The name if my machine is a Phillips Respironics REMstar System One 150P is the model number sleepyhead pulled off of it.

You got screwed. I hope you can exchange it.

Treating apnea with a non-data capable CPAP is like treating a diabetic with insulin, but only checking blood sugar levels once a year or so in the lab.

Yeah I can't. I called my DME supllier and they said I would have to pay out of pocket to exchange the machine. I'm so bummed. I also just got back from the sleep study and they had me on a machine that gave me exhale relief...I slept like a baby. I need that machine. I don't know what that is called though.
08-28-2012 01:30 PM
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PaulaO2 Offline
Wiki Editor
Moderators

Posts: 8,067
Joined: Feb 2012

Machine: S9 Autoset
Mask Type: Full face mask
Mask Make & Model: F&P Simplus
Humidifier: H5i
CPAP Pressure: 14-20
CPAP Software: SleepyHead

Other Comments: Ehlers-Danlos Syndrome, Hypermobility Type; chronic sarcasm

Sex: Undisclosed
Location: western NC, USA

Post: #27
RE: New member here - Love the site already - Need some advice
Did your insurance pay for this machine? If so, call the DME and tell them you are about to call the insurance company to tell them they paid big bucks for an outdated machine. More than likely, they will suddenly see the error of their ways.

A lot of the newer machines have the exhale/inhale relief. Resmed calls it EPR. Respironics calls it Flex (with either C, Bi, or A in front of Flex).

PaulaO2
Apnea Board Moderator
www.ApneaBoard.com


Breathe deeply and count to zen.

INFORMATION ON APNEA BOARD FORUMS OR ON APNEABOARD.COM SHOULD NOT BE CONSIDERED AS MEDICAL ADVICE. ALWAYS SEEK THE ADVICE OF A PHYSICIAN BEFORE SEEKING TREATMENT FOR MEDICAL CONDITIONS, INCLUDING SLEEP APNEA. INFORMATION POSTED ON THE APNEA BOARD WEB SITE AND FORUMS ARE PERSONAL OPINION ONLY AND NOT NECESSARILY A STATEMENT OF FACT.
08-28-2012 01:39 PM
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Sleepster Offline
Wiki Editor
Moderators

Posts: 4,995
Joined: Feb 2012

Machine: ResMed AirCurve10 VAuto
Mask Type: Full face mask
Mask Make & Model: F&P Simplus
Humidifier: HumidAir and SlimLine Hose
CPAP Pressure: MaxI 13.6 | MinE 5.2 | PS 4.4
CPAP Software: ResScan SleepyHead

Other Comments: Diagnosed Nov 2011. Conquered aerophagia.

Sex: Male
Location: Houston, Texas

Post: #28
RE: New member here - Love the site already - Need some advice
(08-28-2012 01:30 PM)biglar831 Wrote:  Yeah I can't. I called my DME supllier and they said I would have to pay out of pocket to exchange the machine. I'm so bummed.

Yup. What Paula said. Call 'em back and tell them you don't want the machine and you won't pay for it. Get another DME that'll give you a fully data-capable machine. Hopefully a APAP.

Call your insurance company and explain the situation to them.

Sleepster
Apnea Board Moderator
www.ApneaBoard.com


INFORMATION ON APNEA BOARD FORUMS OR ON APNEABOARD.COM SHOULD NOT BE CONSIDERED AS MEDICAL ADVICE. ALWAYS SEEK THE ADVICE OF A PHYSICIAN BEFORE SEEKING TREATMENT FOR MEDICAL CONDITIONS, INCLUDING SLEEP APNEA. INFORMATION POSTED ON THE APNEA BOARD WEB SITE AND FORUMS ARE PERSONAL OPINION ONLY AND NOT NECESSARILY A STATEMENT OF FACT.
(This post was last modified: 08-28-2012 04:03 PM by Sleepster.)
08-28-2012 04:03 PM
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trish6hundred Offline

Advisory Members

Posts: 6,450
Joined: May 2012

Machine: Resmed S9 AutoSet for Her
Mask Type: Full face mask
Mask Make & Model: Fisher & Paykel Simplus
Humidifier: H5i Heated Humidifier
CPAP Pressure: 10 - 7-20 Cm H2O
CPAP Software: Not using software

Other Comments: I started CPAP in 2008. Totally blind since birth.

Sex: Female
Location: Missouri, USA

Post: #29
RE: New member here - Love the site already - Need some advice
Hi biglar831, What Paula and Sleepster said! Don't just settle for the crumbs THEY put out there. Best of luck to you and I hope you can get the machine you REALLY need for beter therapy.

trish6hundred
08-28-2012 08:09 PM
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biglar831 Offline

Members

Posts: 14
Joined: Aug 2012

Machine: Phillips Respironics REMstar Auto A-Flex
Mask Type: Full face mask
Mask Make & Model: Respironics Amara
Humidifier: System one
CPAP Pressure: 8.0-15.0
CPAP Software: SleepyHead

Other Comments: This place is the best

Sex: Male
Location: Cleveland, Ohio

Post: #30
RE: New member here - Love the site already - Need some advice
Hey guys...Here are tge results from my sleep study #2. Any advice what I should ask for. I am really lookinh for a machine that records data, gives me exhaling relief, and is adjustable. It appears my doc is cool enough that I can tell him what I want and he will writre it up. Also my DME said they would exchange machines.


Sleep history: The patient is a 32 year old male with sleep disordered
breathing. A split night polysomnogram was performed on 4/15/12 which showed
severe obstructive sleep apnea syndrome. Of note, the CPAP titration time was
short and REM sleep was not recorded. The patient has been using CPAP 6cmH2O
at home. A medium Amara mask was used during the titration study.
Past medical history: GERD, Obesity
Medications: Omeprazole
Sleep procedure: PSG w/CPAP or Bilevel PAP 4 or > param PC (95811)

Procedure: The study was attended continuously by a sleep technologist. The
monitored parameters included: left (E1-M2) and right (E2-M1) EOG, frontal
(F3-M2 & F4-M1), central (C3-M2 & C4-M1) and occipital (O1-M2 & O2-M1) EEG,
mental and submental EMG, left and right anterior tibialis EMG, single ECG
waveform, snoring, continuous airflow via PAP interface, chest and abdominal
effort, oxygen saturation and body position via video monitoring.

Hypopnea definition: The nasal pressure signal excursions (or those of the
alternative hypopnea sensor) drop by =50% of baseline. The duration of this
drop occurs for a period lasting at least 10 seconds. There is a =3%
desaturation from pre-event baseline or the event is associated with an
arousal. At least 90% of the event?s duration must meet the amplitude
reduction criteria for hypopnea.

SLEEP ARCHITECTURE:
The study started at 22:59:55 and ended at 06:27:37. Total sleep time was 324
minutes resulting in a sleep efficiency of 77.1% (TRT = 421 m). There were 26
awakenings with a total time awake after sleep onset of 45 minutes. The sleep
latency was 51.0 minutes and the REM latency was 98 minutes. The patient
spent 66.6% of sleep time in the supine position. The sleep stage percentages
were 6.2% stage N1, 58.1% stage N2, 10.8% stage N3 and 25% REM sleep. There
were 95 arousals, resulting in an arousal index of 17.6. There were 99 stage
shifts.

RESPIRATORY DATA:
This is a CPAP titration study. Snoring was eliminated at a CPAP setting of 9
cmH20. The mean oxygen saturation during the study was 96%, with a minimum
oxygen saturation of 91%.

CPAP-BILEVEL SUMMARY:

IP EP TST REM %Sup Apn Hyp Tot SupIdx AHI RAHI ArIdx Nadr Mean SaO2
6 6 60.5 m 0.0 m 100.0% 0 5 5 5.0 5.0 0.0 11.9 92% 94.0%
7 7 33.0 m 6.5 m 100.0% 0 5 5 9.1 9.1 18.5 10.9 93% 96.0%
8 8 76.5 m 9.5 m 76.5% 16 0 16 12.3 12.5 0.0 25.9 91% 96.0%
9 9 30.0 m 22.0 m 0.0% 0 2 2 0.0 4.0 2.7 10.0 95% 97.0%
10 10 124.5 m 43.0 m 51.4% 11 2 13 8.4 6.3 2.8 18.3 92% 97.0%
LIMB MOVEMENT DATA:
There were 0 periodic limb movements during sleep, resulting in a PLM-index
of 0.

ECG DATA:
The average heart rate during sleep was 63 beats per minute, with a range of
48 to 96. During wake, the heart rate ranged from 54 to 86 beats per minute.

ICSD DIAGNOSIS:
Obstructive Sleep Apnea Syndrome [327.23]

IMPRESSION:
1. At a CPAP setting of 9 cmH2O, the apnea-hypopnea and arousal indicies were
normalized. At this setting, snoring was eliminated and the oxygen saturation
was maintained above 94%.
2. Abnormal sleep architecture likely due to PAP titration and first night
effect.

RECOMMENDATIONS:
CPAP 9 cmH20 with humidification.
08-30-2012 10:54 PM
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