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New member saying hi!
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ToddB Offline

New Members

Posts: 2
Joined: Mar 2013

Machine: Resmed s9 autoset
Mask Type: Nasal pillows
Mask Make & Model: F&P pilairo
Humidifier: Resmed h5i
CPAP Pressure: 8 - 13
CPAP Software: ResScan SleepyHead

Other Comments:

Sex: Male
Location:

Post: #1
New member saying hi!
Well, after years of being "poopoo'd" by my now ex doctor I was finally sent for a sleep study. That doctor was way too holistic..... most stuff could be solved with a combination of herbs, yoga and vaseline so I opted to a more "modern" doctor. Anyway I'll get to the chase, sleep study showed AHI of 35. Six days ago I finally got a S9 autoset and a pilairo. What a difference! Only problem is I went and got a nasal mask (mirage FX) today because the nasal cones didn't get along with the inside of my nostrils and healing time is needed. Not sure which I will stick with, but either way, I'm much better off than the past several years. So that's my story (quick version) and here I am!
03-20-2013 07:41 PM
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trish6hundred Offline

Advisory Members

Posts: 6,430
Joined: May 2012

Machine: Resmed S9 AutoSet for Her
Mask Type: Full face mask
Mask Make & Model: Fisher & Paykel Simplus
Humidifier: H5i Heated Humidifier
CPAP Pressure: 10 - 7-20 Cm H2O
CPAP Software: Not using software

Other Comments: I started CPAP in 2008. Totally blind since birth.

Sex: Female
Location: Missouri, USA

Post: #2
RE: New member saying hi!
Hi ToddB and WELCOME! to the forum.!
While there is certainly nothing wrong with holistic medicine, sometimes, you need to go down a different path as you did, good thing, now you can get your apnea treated.
AS far as your nose getting used to your pillows, get some HPA Lanolin, )found in the baby isles of most stores,) and swav a LITTLE bit in your nostriles before you put your pillows in and that should help with the irritation and possibly give you a better seal as well.
Best of luck to you with your CPAP therapy.

trish6hundred
03-20-2013 07:51 PM
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cbramsey Online

Advisory Members

Posts: 900
Joined: Mar 2012

Machine: ResMed S9 Autoset
Mask Type: Nasal mask
Mask Make & Model: ResMed Mirage FX
Humidifier: ResMed H5i with ClimateLine
CPAP Pressure: 6 - 12
CPAP Software: ResScan

Other Comments: Supreme Overlord of Web Darkness

Sex: Male
Location: NC, USA

Post: #3
RE: New member saying hi!
Welcome to the forum!!! We are glad you joined us!!! Welcome

Take some time and look around the forum. There is a lot of great information here.

As far as initial tips, you might want to check out the following Wiki article with Tips for new CPAP users.

In order to see how well your CPAP is working, you might want to consider downloading the ResScan software or the Open Source SleepyHead software.

Best of luck to you. Sleep-well

INFORMATION ON APNEA BOARD FORUMS OR ON APNEABOARD.COM SHOULD NOT BE CONSIDERED AS MEDICAL ADVICE. ALWAYS SEEK THE ADVICE OF A PHYSICIAN BEFORE SEEKING TREATMENT FOR MEDICAL CONDITIONS, INCLUDING SLEEP APNEA. INFORMATION POSTED ON THE APNEA BOARD WEB SITE AND FORUMS ARE PERSONAL OPINION ONLY AND NOT NECESSARILY A STATEMENT OF FACT.
03-20-2013 07:57 PM
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Shastzi Offline

Advisory Members

Posts: 1,174
Joined: Dec 2012

Machine: ResMed S9 Autoset
Mask Type: Full face mask
Mask Make & Model: FitLife Total face mask
Humidifier: F&P HC150 with Hybernite heated hose.
CPAP Pressure: 15cm-20cm H2O (auto)
CPAP Software: SleepyHead Other Software

Other Comments: CMS50-F wearable Oximeter; Software: SPO2 Assistant

Sex: Undisclosed
Location: Florida, USA.

Post: #4
RE: New member saying hi!
Welcome ToddB!
I got an S9 last month and I must say it's been one of my best purchases!

Welcome

"With ordinary talent and extraordinary perseverance, all things are attainable." - Thomas Foxwell Buxton

Cool
03-20-2013 08:28 PM
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Ugly Offline

Preferred Members

Posts: 568
Joined: Oct 2012

Machine: ResMed S9 AutoSet
Mask Type: Nasal mask
Mask Make & Model: ResMed Mirage Micro
Humidifier: ResMed H5i
CPAP Pressure: 7-14
CPAP Software: ResScan SleepyHead

Other Comments: Hydrocephalus, myopia, depression, chronic ugliness, stupidity, tinnitus, mixed sleep apnea.

Sex: Male
Location: Barrie Ontario Canada

Post: #5
RE: New member saying hi!
(03-20-2013 07:41 PM)ToddB Wrote:  Well, after years of being "poopoo'd" by my now ex doctor I was finally sent for a sleep study.

Oh I'm so sorry for not warning you.
It sounds like the same doctor I had Doctor-no-get-it

Quote: That doctor was way too holistic..... most stuff could be solved with a combination of herbs, yoga and Vaseline

I wonder what he'd do for my hydrocephalus, when there's problems it can only be treated surgically.

Quote: so I opted to a more "modern" doctor.

And you're all the better for it. Congratulations.

Quote:Anyway I'll get to the chase, sleep study showed AHI of 35. Six days ago I finally got a S9 autoset and a pilairo.

Congrats again. Pilairo. I have to look it up.
Part mask, part nasal pillow. How novel.

Quote:but either way, I'm much better off than the past several years. So that's my story (quick version) and here I am!

Welcome
And big hugs Grouphug3
Lots of friendly people here.
03-20-2013 08:54 PM
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ToddB Offline

New Members

Posts: 2
Joined: Mar 2013

Machine: Resmed s9 autoset
Mask Type: Nasal pillows
Mask Make & Model: F&P pilairo
Humidifier: Resmed h5i
CPAP Pressure: 8 - 13
CPAP Software: ResScan SleepyHead

Other Comments:

Sex: Male
Location:

Post: #6
RE: New member saying hi!
Been playing around with sleepyhead mostly, I did grab ResScan, but mostly look at SH. When I went in yesterday with SD card in hand he said I am doing very well so that was encouraging. I had a similar instance 20 years ago when I wasn't diagnosed with a brain tumor until it was the size of a baseball, the Dr made all kinds of excuses and never took it too seriously that at 15 I had been complaining of headaches for 10 years, after a school nurse got my parents to take me to a neurologist, and getting an MRI I was quickly admitted to Albany medical center. So I lost tolerance for doctors that don't take the steps that seem necessary and try less than effective treatments. Now that I think of it I also have restless leg syndrome that now is in check for the most part, when that kicks in sleep is impossible.
03-21-2013 07:51 AM
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Sleepster Offline
Wiki Editor
Moderators

Posts: 4,988
Joined: Feb 2012

Machine: ResMed AirCurve10 VAuto
Mask Type: Full face mask
Mask Make & Model: F&P Simplus
Humidifier: HumidAir and SlimLine Hose
CPAP Pressure: MaxI 13.6 | MinE 5.2 | PS 4.4
CPAP Software: ResScan SleepyHead

Other Comments: Diagnosed Nov 2011. Conquered aerophagia.

Sex: Male
Location: Houston, Texas

Post: #7
RE: New member saying hi!
(03-20-2013 08:54 PM)Ugly Wrote:  Congrats again. Pilairo. I have to look it up.
Part mask, part nasal pillow. How novel.

I believe there's a discussion of that mask in the Apnea Board Product Reviews Forum.

My DME has suggest I try the Respironics Wisp. Is it something new?

Sleepster
Apnea Board Moderator
www.ApneaBoard.com


INFORMATION ON APNEA BOARD FORUMS OR ON APNEABOARD.COM SHOULD NOT BE CONSIDERED AS MEDICAL ADVICE. ALWAYS SEEK THE ADVICE OF A PHYSICIAN BEFORE SEEKING TREATMENT FOR MEDICAL CONDITIONS, INCLUDING SLEEP APNEA. INFORMATION POSTED ON THE APNEA BOARD WEB SITE AND FORUMS ARE PERSONAL OPINION ONLY AND NOT NECESSARILY A STATEMENT OF FACT.
03-21-2013 08:47 PM
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JJJ Offline

Advisory Members

Posts: 751
Joined: Apr 2012

Machine: ResMed S9 Autoset
Mask Type: Nasal mask
Mask Make & Model: Most recent: Wisp, Pilairo, Mirage Vista
Humidifier: ResMed S9 Autoset
CPAP Pressure: 17-20
CPAP Software: SleepyHead

Other Comments:

Sex: Male
Location: USA 97217

Post: #8
RE: New member saying hi!
(03-21-2013 08:47 PM)Sleepster Wrote:  My DME has suggest I try the Respironics Wisp. Is it something new?

It is relatively new. In fact, maybe not all suppliers have it in stock yet. My DME is a very large outfit and they get advance shipments of things, so I got mine in late January. There is a thread here where I have discussed it some. You can find pics online.

To summarize, it is basically a nasal mask but with a smaller and less intrusive cushion than most, and no forehead support. Therefore, it is suitable for those of us who need something minimal and can't tolerate massive gear on our heads, and yet, for one reason or another, cannot use pillows.
03-21-2013 11:05 PM
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Bompa Offline

Monitors

Posts: 854
Joined: Mar 2012

Machine: DreamStation Pro
Mask Type: Nasal pillows
Mask Make & Model: Nuance Pro
Humidifier: DreamStation Heated Humidifer
CPAP Pressure: 12.0
CPAP Software: SleepyHead Other Software

Other Comments:

Sex: Male
Location: Falkenburg,

Post: #9
RE: New member saying hi!
Welcome aboard ToddB.

Just so you know ..we're not all on the strange side here.
Bug-eyed

Just a few of us...

Anyway..you'll find a lot of good advice here.
Amazing
03-23-2013 10:09 AM
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Shastzi Offline

Advisory Members

Posts: 1,174
Joined: Dec 2012

Machine: ResMed S9 Autoset
Mask Type: Full face mask
Mask Make & Model: FitLife Total face mask
Humidifier: F&P HC150 with Hybernite heated hose.
CPAP Pressure: 15cm-20cm H2O (auto)
CPAP Software: SleepyHead Other Software

Other Comments: CMS50-F wearable Oximeter; Software: SPO2 Assistant

Sex: Undisclosed
Location: Florida, USA.

Post: #10
RE: New member saying hi!
But it's no fun being *NORMAL* !!
Smile

"With ordinary talent and extraordinary perseverance, all things are attainable." - Thomas Foxwell Buxton

Cool
03-23-2013 12:12 PM
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