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New -questions about symptoms and time to feel better
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sleepyandsore Offline

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Posts: 12
Joined: May 2015

Machine: ResmedAirsense10 autoset for her
Mask Type: Nasal pillows
Mask Make & Model: not sure
Humidifier: yes
CPAP Pressure: 4-20 auto-cpap
CPAP Software: ResScan

Other Comments:

Sex: Female
Location:

Post: #1
New -questions about symptoms and time to feel better
What a wonderful Board! I'm so glad I found it Smile
I was just diagnosed with a home sleep study test on April 7th. My AHI was 18 events per hour and 30 events per hour in the supine position. My O2 went as low as 84%. I'm not sure how accurate these numbers are since the night of the test I laid in bed awake for 3 hours with the mask ion before I managed to fall asleep. The doctor said my numbers are likely higher because of that
I have had 4 days on the Resmed Airsense 10 autoset for her. I am using the nasal pillows and also a full face mask ( not at the same time - rather switching between them to see which feels better)
I set up MyAir page online through Resmed and last nights score was 96/100 with only 2.1 events pet hour, with a good mask seal. This is a great number supposedly.This makes no sense to me because each day after using Cpap I've been just as tired( maybe more tired) then I was without it. I am still dozing off mid morning if I am sitting. I feel no improvement at all so far. Is this normal?
Also, I am wondering if some of these symptoms could be due to sleep apnea?
* very achy muscles in the morning when waking up ( feel like I've been pummeled all night long) stiff but not in my joints - really just muscular
* my toenails have ridges horizontally since about 2 years ago - wondering if this is a result of low oxygen?
* some weight gain
*gut problems - dysbiosis - some candida
* thinning hair
* some puffiness in my face when I wake up ( technician said this was edema from apnea?)
I have low blood pressure, not high, and have had burnt out adrenals over the years. I also feel anxiety at night before falling asleep( wondering if this could be my subconscious anticipating the apnea and feeling fear about gasping for breath)
I really appreciate any help you can give me with theses questions. I am 57 and in pretty good health otherwise. I have gained about 15 pounds but would not be considered overweight ( 5'10" and 160 pounds) I eat very well ( organic and paleo). I've been tired for about 20 years though - and hope I've not been having sleep apnea that long. Would my health be affected permanently if that was the case?

ThanksSleep-well
(This post was last modified: 05-17-2015 09:31 PM by sleepyandsore.)
05-17-2015 09:25 PM
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sleepyandsore Offline

Members

Posts: 12
Joined: May 2015

Machine: ResmedAirsense10 autoset for her
Mask Type: Nasal pillows
Mask Make & Model: not sure
Humidifier: yes
CPAP Pressure: 4-20 auto-cpap
CPAP Software: ResScan

Other Comments:

Sex: Female
Location:

Post: #2
RE: New -questions about symptoms and time to feel better
also- can I take my SD card out of the Resmed and insert into my computer and then transfer data into sleepy head? I'll look at the sleepyhead info as well to see what to do. The hospital sleep technician said she will receive all my sleep data info through it being transferred to satellite and then to her - would my taking the SD card out interfere with that? ( I'd put it back in after transferring to sleepyhead)
05-17-2015 09:58 PM
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retired_guy Offline

Preferred Members-2

Posts: 2,744
Joined: Jan 2014

Machine: ResMed S9 Autoset
Mask Type: Nasal pillows
Mask Make & Model: Resmed Airfit P10
Humidifier: ResMed
CPAP Pressure: 10.6/14, EPR 3
CPAP Software: ResScan SleepyHead

Other Comments: Is it bedtime yet?

Sex: Male
Location: Beautiful, albeit very wet Oregon Coast

Post: #3
)
Hi Sleepy, I'm very pleased you found us. I'll start the ball rolling with a few thoughts:

First of all, you will need to download and install Sleepyhead from the top of the page. That will give you a much better picture of what is going on over time.

As to your testing AHI, that's not too bad. So your therapy should be able to fix it up. We do need to know what kind of events you are having now that you are being treated. Number of OA's vs CA's vs Hypops.. That sort of thing.

As to still being tired? When I began therapy I felt like I had a great nights sleep but spent my days yawning like crazy. So I could have said I was still tired. But I really think it was my body letting me know how happy it was that I was finally getting some rest. Over time, the yawning went away. I kind of miss it though.........

As to the symptoms? Certainly some of the things you ask about could be related to SA. One of the nicest benefits I have had since being treated is I can roll over in the night to my back, to my side, back again.... Since I've been able to do that I no longer wake up with my hip about to kill me, or my back.

I would encourage you to use the nasal pillows mask. That will allow you greater comfort and possibly less pressure in controlling your apnea. For me, the FFM's are ok, even kind of nice, but they create additional stress from the headgear and even pain in my whatchacallit gland that runs from my jaw to my ear. I converted to the P10 mask just about as soon as it came out and have never looked back. Not even when I've had a bad cold or something. Sooner or later I believe everyone will use the P10. Resistance is futile.

That's about all I have for you right now other than come back with your actual numbers (pressure, leak amounts, apnea events, etc) and we'll get you fixed up...
05-17-2015 10:01 PM
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retired_guy Offline

Preferred Members-2

Posts: 2,744
Joined: Jan 2014

Machine: ResMed S9 Autoset
Mask Type: Nasal pillows
Mask Make & Model: Resmed Airfit P10
Humidifier: ResMed
CPAP Pressure: 10.6/14, EPR 3
CPAP Software: ResScan SleepyHead

Other Comments: Is it bedtime yet?

Sex: Male
Location: Beautiful, albeit very wet Oregon Coast

Post: #4
RE: New -questions about symptoms and time to feel better
(05-17-2015 09:58 PM)sleepyandsore Wrote:  also- can I take my SD card out of the Resmed and insert into my computer and then transfer data into sleepy head? I'll look at the sleepyhead info as well to see what to do. The hospital sleep technician said she will receive all my sleep data info through it being transferred to satellite and then to her - would my taking the SD card out interfere with that? ( I'd put it back in after transferring to sleepyhead)

Yes you can. And yes you should. This will not interfere with the data the sleep techs get on-line.
05-17-2015 10:04 PM
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sleepyandsore Offline

Members

Posts: 12
Joined: May 2015

Machine: ResmedAirsense10 autoset for her
Mask Type: Nasal pillows
Mask Make & Model: not sure
Humidifier: yes
CPAP Pressure: 4-20 auto-cpap
CPAP Software: ResScan

Other Comments:

Sex: Female
Location:

Post: #5
RE: New -questions about symptoms and time to feel better
I just imported my SD card data into sleepyhead. I then discovered that the SD CARD must have been given to me with someone else's data on it. My sleepyhead profile shows data that is not mine. I just started using the Cpap machine May 13 and its showing data going back into April. How can I remove that from my sleepyhead profile? Any ideas?
Also, how do I attach the charts to my post?
05-17-2015 10:26 PM
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trish6hundred Offline

Advisory Members

Posts: 6,436
Joined: May 2012

Machine: Resmed S9 AutoSet for Her
Mask Type: Full face mask
Mask Make & Model: Fisher & Paykel Simplus
Humidifier: H5i Heated Humidifier
CPAP Pressure: 10 - 7-20 Cm H2O
CPAP Software: Not using software

Other Comments: I started CPAP in 2008. Totally blind since birth.

Sex: Female
Location: Missouri, USA

Post: #6
RE: New -questions about symptoms and time to feel better
Hi sleepyandsore,
WELCOME! to the forum.!
Sometimes it takes a while to notice improvements but just hang in there, it does get better.
The nasal pillows mask will offer you better comfort, but it's good that you have two different types of masks to help in your decision.
Hang in there for more responses to your post and much success to you with your CPAP therapy.

trish6hundred
05-17-2015 10:40 PM
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PaulaO2 Offline
Wiki Editor
Moderators

Posts: 8,065
Joined: Feb 2012

Machine: S9 Autoset
Mask Type: Full face mask
Mask Make & Model: F&P Simplus
Humidifier: H5i
CPAP Pressure: 14-20
CPAP Software: SleepyHead

Other Comments: Ehlers-Danlos Syndrome, Hypermobility Type; chronic sarcasm

Sex: Undisclosed
Location: western NC, USA

Post: #7
RE: New -questions about symptoms and time to feel better
How do I.... http://www.apneaboard.com/forums/Thread-How-to-HOW-DO-I

use an attachment (such as SleepyHead screenshot) http://www.apneaboard.com/forums/Thread-How-to-Attachments
insert an image (for non CPAP stuff) http://www.apneaboard.com/forums/Thread-How-to-Inserting-an-Image

As to the mask, if you breathe with your mouth open at night, you'll need a chin strap if you want to use the nasal pillows. Else you can use the full face mask (FFM). If you don't breathe with your mouth open, stick with the nasal pillows or a nasal mask. The leaks with the FFM is just not worth it.

PaulaO2
Apnea Board Moderator
www.ApneaBoard.com


Breathe deeply and count to zen.

INFORMATION ON APNEA BOARD FORUMS OR ON APNEABOARD.COM SHOULD NOT BE CONSIDERED AS MEDICAL ADVICE. ALWAYS SEEK THE ADVICE OF A PHYSICIAN BEFORE SEEKING TREATMENT FOR MEDICAL CONDITIONS, INCLUDING SLEEP APNEA. INFORMATION POSTED ON THE APNEA BOARD WEB SITE AND FORUMS ARE PERSONAL OPINION ONLY AND NOT NECESSARILY A STATEMENT OF FACT.
05-18-2015 12:31 AM
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OpineCone Offline

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Posts: 46
Joined: Feb 2015

Machine: ResMed S9 Auto
Mask Type: Nasal pillows
Mask Make & Model: ResMed AirFit P10 Large
Humidifier: ResMed H5i
CPAP Pressure: 11 - 17
CPAP Software: ResScan SleepyHead

Other Comments: Mask straps spread widely to fit large head, worn under PureSom Ruby chinstrap for stability

Sex: Male
Location: Massachusetts USA

Post: #8
RE: New -questions about symptoms and time to feel better
(05-17-2015 10:26 PM)sleepyandsore Wrote:  I just imported my SD card data into sleepyhead. I then discovered that the SD CARD must have been given to me with someone else's data on it. My sleepyhead profile shows data that is not mine. I just started using the Cpap machine May 13 and its showing data going back into April. How can I remove that from my sleepyhead profile? Any ideas?
Also, how do I attach the charts to my post?

Hi sleepyandsore:

There seems to be an easy way to purge unwanted days from sleepyhead, although I have not tried it and so I cannot be sure exactly what the effect will be. In particular, I wonder whether the days you purge will reappear the next time you transfer data from the SD card. If they do, you may have to keep purging those unwanted days for a while until they are no longer stored on the SD card (which happens after 30 days, I think).

Here's what you need to do: In the menus, top left on the sleepyhead screen, select Daily. Use the calendar below the menus to select the first day you want to purge. In the top menu select: Data>Advanced>Purge Current Selected Day

Repeat the process for the other unwanted days.
05-18-2015 09:43 AM
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cbrfoltz Offline

Members

Posts: 11
Joined: Apr 2015

Machine: AirSense10 For Her
Mask Type: Full face mask
Mask Make & Model: AirFit10
Humidifier: ResMed Humid Air S
CPAP Pressure: 11
CPAP Software: Not using software Other Software

Other Comments: CPAP user as of 5-8-2015

Sex: Female
Location: USA

Post: #9
RE: )
"As to still being tired? When I began therapy I felt like I had a great nights sleep but spent my days yawning like crazy. So I could have said I was still tired. But I really think it was my body letting me know how happy it was that I was finally getting some rest. Over time, the yawning went away. I kind of miss it though........."


I am glad you mentioned this. It's exactly how I've been feeling, and I was thinking that something was wrong. Now when I get tired in the day, I'm going to remember that it's my body thanking me Cool

Baire
05-18-2015 11:06 AM
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PaytonA Offline
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Posts: 3,007
Joined: Dec 2013

Machine: ResMed S9 VPAP Auto
Mask Type: Full face mask
Mask Make & Model: Resmed Mirage Quattro
Humidifier: H5i(distilled-top up)
CPAP Pressure: VAuto MinE14.0 MaxI 20.6 PS4.0
CPAP Software: ResScan SleepyHead

Other Comments:

Sex: Male
Location: Orange County,California

Post: #10
RE: New -questions about symptoms and time to feel better
(05-18-2015 12:31 AM)PaulaO2 Wrote:  .......The leaks with the FFM is just not worth it.

Not everyone has leaks with their FFM!
05-18-2015 11:49 AM
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