RE: So here I sit, night after night... afraid to go to sleep without a machine for fear I won't wake up.
Hi. I don't have diastolic dysfunction, but here's what they told me to do while I waited on the machine: Sleep in a chair as upright as you can. No heavy drinking and don't drink alcohol in the evening at all. No heavy meal after lunch. Anything that relaxes you (including certain medications) makes your ahi worse. I don't know if sleeping upright will make your heart condition worse or not, and doubt if your doctors do either. See if you can rent a machine by the month and pay for it for it yourself while you wait on the HMO. I'm told your sleep doctor can give you a prescription and you can get if filled anywhere you want, not just the place they sent you to. It might be unorthodox but you might offset your and your husband's sleep hours a little and use his machine (if that's legal) while you wait on your machine. I've read there is a way to buy masks over the internet without a prescription. Did any of your doctors mention beta blockers or calcium channal blockers for the treatment of diastolic dysfunction? It's obvious you are going to have to study and bring your doctors up to speed on your condition and treatment. Good luck.
WELCOME! to the forum.
Firstly, good on you that you got a diagnosis. Yes it is alarming, but don't panic - the chance is not all that high that you will suddenly drop from this while waiting for your machine ( I do not use Resmed, btw, and if they offer you a Respironics, it is okay to say yes - they are very good machines, indeed, over here are preferred over the Resmed, but I suspect that has to do with pricing policies, since both companies offer equally good machines).
Once on the device and following good compliance, your heart condition should lessen and even "cure" itself in just over a year (no, not really cure, there is no such thing, just that the heart will regularise itself again as your body adjusts to the new sleeping pattern), if current statistics are correct, and in the meantime, it is far less life threatening than you may think. It sounds scary, and yes, anything to do with the heart is, but you are not in immediate danger. So relax and don't fret, just get your PAP device and get to it. Your worrying will do far more damage than your SA at this point, so don't. Let go of the tension and welcome the fact that you will soon have a therapy that will do all you need it to. And good luck.
10-07-2013, 08:12 AM
(This post was last modified: 10-07-2013, 08:14 AM by skyler.)
Shari- welcome to the forum. It's a bummer when you get a diagnosis of sleep apnea (severe) and a heart problem caused by the sleep apnea and you can't get a machine.
Fortunately it's fairly easy to remedy if you have have $300 (maybe less)for a new machine. Check out the online retailers, #2, on the list is good, and there is a used store for second hand machines starting at $70. I realize most of us don't have much extra money on hand. If you buy a new machine at $70, a mask for an average of $100, and your tubing you're set. All you need to get started is a prescription for the machine and mask.
Keep us posted,
Your husband has a prescription , you could get him to buy you the stuff until the insurance comes through and use this one for backup for you both.
Number 2 supplier is a great source , I would start out with an apap a Respironics ds 560 is a great machine . That should settle you down for the wait .