Post Reply 
New to CPAP, Symtoms getting worse
Author Message
Fee510 Offline

New Members

Posts: 2
Joined: Apr 2012

Machine: Resmed S9
Mask Type: Full face mask
Mask Make & Model:
Humidifier: H5i
CPAP Pressure: 10
CPAP Software: Not using software

Other Comments:

Sex: Male
Location:

Post: #1
New to CPAP, Symtoms getting worse
I was recently diagnosed with OSA and got my first CPAP (ResMed S9) last week. Prior to CPAP, my AHI was 131. Since using it, my AHI is now around 8 with a pressure of 10, however I'm finding myself more groggy in the morning and my morning headaches are much much worse. I tried calling my doctor about it, but the receptionist said she can't legally talk to me about it over the phone because things are worse. The next available appointment is 2 weeks from now. In the meantime, I'm suppose to do what "I feel comfortable with", whether that be using CPAP or not. I don't want to stop treatment because my AHI is so high, but I also don't want to have headaches all day either. Any advice?
04-11-2012 08:48 PM
Find all posts by this user Post Reply Quote this message in a reply

Donate to Apnea Board
PaulaO2 Offline
Wiki Editor
Moderators

Posts: 8,065
Joined: Feb 2012

Machine: S9 Autoset
Mask Type: Full face mask
Mask Make & Model: F&P Simplus
Humidifier: H5i
CPAP Pressure: 14-20
CPAP Software: SleepyHead

Other Comments: Ehlers-Danlos Syndrome, Hypermobility Type; chronic sarcasm

Sex: Undisclosed
Location: western NC, USA

Post: #2
RE: New to CPAP, Symtoms getting worse
That sounds like bull crap. That's like calling your doc to say the blood pressure meds aren't working. No doc would ever have staff say "I can't talk to you, no matter how bad you feel. two weeks you can see the doc". They'd instead say "how high is it? do you feel ill? let me ask the doctor how soon he/she wants to see you." Or, better yet, send the phone call to the nurse.

So, first off, I don't like your sleep doc!

That off my chest, you've been using it a week? I'd say give it a little more time.

Did you have headaches prior to starting CPAP? If not, are they more brain headaches or sinus headaches?

Were you groggy before using it? If not, are you groggy because you slept so deeply?

Are you sleeping better but waking up feeling like crap?

With an AHI of that high, there's not going to be a quick fix. It will take time. But it does for everyone. Keep using the machine. An AHI of 8 is great compared to what it was!

Also, consider calling and asking to speak with either a nurse or the doctor.
04-11-2012 08:58 PM
Find all posts by this user Post Reply Quote this message in a reply
Fee510 Offline

New Members

Posts: 2
Joined: Apr 2012

Machine: Resmed S9
Mask Type: Full face mask
Mask Make & Model:
Humidifier: H5i
CPAP Pressure: 10
CPAP Software: Not using software

Other Comments:

Sex: Male
Location:

Post: #3
RE: New to CPAP, Symtoms getting worse
(04-11-2012 08:58 PM)PaulaO2 Wrote:  That sounds like bull crap. That's like calling your doc to say the blood pressure meds aren't working. No doc would ever have staff say "I can't talk to you, no matter how bad you feel. two weeks you can see the doc". They'd instead say "how high is it? do you feel ill? let me ask the doctor how soon he/she wants to see you." Or, better yet, send the phone call to the nurse.

So, first off, I don't like your sleep doc!

That off my chest, you've been using it a week? I'd say give it a little more time.

Did you have headaches prior to starting CPAP? If not, are they more brain headaches or sinus headaches?

Were you groggy before using it? If not, are you groggy because you slept so deeply?

Are you sleeping better but waking up feeling like crap?

With an AHI of that high, there's not going to be a quick fix. It will take time. But it does for everyone. Keep using the machine. An AHI of 8 is great compared to what it was!

Also, consider calling and asking to speak with either a nurse or the doctor.


First off, I didn't talk to the doc, I talked to the receptionist. I'm going to try again tomorrow which will be attempt #3. I've had morning headaches for my entire adult life, but now they are much worse than before. Prior to CPAP, I usually woke up very congested; with it, I'm not congested at all. The pain from the headaches is around my temples. I've always woken up groggy, now its just worse. I don't know if I'm sleeping any "better" but I do know that I'm sleeping less; 6-7hrs compared to normally 8hrs.
04-11-2012 09:11 PM
Find all posts by this user Post Reply Quote this message in a reply

Donate to Apnea Board
PaulaO2 Offline
Wiki Editor
Moderators

Posts: 8,065
Joined: Feb 2012

Machine: S9 Autoset
Mask Type: Full face mask
Mask Make & Model: F&P Simplus
Humidifier: H5i
CPAP Pressure: 14-20
CPAP Software: SleepyHead

Other Comments: Ehlers-Danlos Syndrome, Hypermobility Type; chronic sarcasm

Sex: Undisclosed
Location: western NC, USA

Post: #4
RE: New to CPAP, Symtoms getting worse
Yes, but the receptionist works for the sleep doc. He/she sets the office atmosphere. Someone told that receptionist to not talk to patients who dare to call back and say treatment isn't working. Which is a bad sign for a business where 50% or more of CPAP users have problems from the beginning. But me complaining about your doc is not your problem, it is mine. :grin:

You have only been using it a week. It takes time for everything to settle down. You have really really bad sleep apnea. Your adjustment is going to be tough.

While headaches with sleep apnea as high as yours are not a surprise, it's not good the headaches are getting worse. Do you have access to a blood pressure monitor? Do you have problems with blood pressure?

When you call again, insist on speaking to a nurse.

Stick with this. It will take time but it is worth it.
04-11-2012 09:25 PM
Find all posts by this user Post Reply Quote this message in a reply
zimlich Offline

Preferred Members-2

Posts: 392
Joined: Feb 2012

Machine: Respironics PR System One BiPap Auto SV Advanced
Mask Type: Nasal mask
Mask Make & Model: ResMed gel Nasal Mask
Humidifier: System One
CPAP Pressure: 8-20 ASV, 8 EPAP,PS 12
CPAP Software: Not using software

Other Comments: I use the Quattro FFM when necessary

Sex: Female
Location: Norfolk, VA

Post: #5
RE: New to CPAP, Symtoms getting worse
You certainly don't want the receptionist talking to you about your CPAP, ask for the nurse and make the next appointment available. A lot of us have a sleep deficit to make up and may feel worse before we feel better. Hang in there. Does anything help your headaches- tylenol or advil or something? I know a lot of people don't want to take medicine.I sure hope you get feeling better soon. Also your humidity may need to be adjusted higher lower. Experiment. Good luck, keep us posted.
04-12-2012 08:04 AM
Find all posts by this user Post Reply Quote this message in a reply

Donate to Apnea Board
Dgsr Offline

Preferred Members

Posts: 49
Joined: Jan 2014

Machine: S9 VPAP Auto
Mask Type: Full face mask
Mask Make & Model: Mirage Quattro
Humidifier: H5i
CPAP Pressure: I - 18, E - 14
CPAP Software: ResScan SleepyHead

Other Comments: Beard

Sex: Male
Location: Alabama

Post: #6
RE: New to CPAP, Symtoms getting worse
If nothing else, maybe get the opinion of your standard doctor. He/She should at least give you an idea on if you should continue use for the next two weeks until you see the sleep doc.
02-10-2014 08:57 PM
Find all posts by this user Post Reply Quote this message in a reply
djjwilly Offline

Preferred Members-2

Posts: 62
Joined: Mar 2013

Machine: Elite S9
Mask Type: Nasal pillows
Mask Make & Model: Resmed AirFit P10 and chinstrap
Humidifier: Resmed Elite H 5i
CPAP Pressure: 10
CPAP Software: ResScan

Other Comments:

Sex: Female
Location:

Post: #7
RE: New to CPAP, Symtoms getting worse
I agree someone has told that receptionist to make patients stick to the schedule and not bug them otherwise. I agree that doesn't sound like a very patient-oriented office. I'd be wondering if I could continue expecting to get good help from them. Just my impression. DJ
02-11-2014 09:10 AM
Find all posts by this user Post Reply Quote this message in a reply

Donate to Apnea Board
Post Reply 


Possibly Related Threads...
Thread: Author Replies: Views: Last Post
  Lack of progress and getting worse. Pudel 7 384 11-07-2016 02:37 PM
Last Post: Sleeprider
  Insomnia getting worse 3 months into therapy baconjurer 3 504 10-05-2016 11:50 PM
Last Post: PoolQ
  MAOI/antidepressant patient feeling worse with CPAP CPAPstruggler 15 1,944 10-05-2016 08:49 AM
Last Post: jbsix
Sad Worse sleep with CPAP machine PatCurt 33 1,833 09-02-2016 06:38 PM
Last Post: eseedhouse
  Teeth clenching started with CPAP, now worse. KMatch 11 817 05-26-2016 10:06 PM
Last Post: SuperSleeper
  Can Testosterone Replacement Make OSA Worse Adoniscmj 14 937 05-01-2016 01:18 PM
Last Post: Sleeprider
  New mask, worse AHI pdbabb66 1 395 03-27-2016 01:12 PM
Last Post: justMongo

Forum Jump:

Who's Online (Complete List)