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SylviaT Offline

Preferred Members

Posts: 30
Joined: Jun 2016

Machine: Philips Respironics DreamStation Auto CPAP
Mask Type: Nasal mask
Mask Make & Model: Respironics Dreamwear
Humidifier: Heated
CPAP Pressure: 8
CPAP Software: SleepyHead

Other Comments:

Sex: Female
Location: Emerald Coast - Florida

Post: #1
New to CPAP and Forum
I was recently diagnosed with sever Sleep Apnea and quite surprised really. I had never heard my parents say anything about having it and they are now both deceased. I'm healthy and not overweight and went to the doctor thinking my thyroid meds weren't right. WOW! The last couple of months and sleep tests have been eye opening to this disease!!!

Last night was my first night with my new CPAP and it took me over 3 hours to fall asleep. I sure didn't wake up refreshed like I've heard some people do. Hoping it changes as time goes on.

Joined this forum for suggestions and just having someone who knows what I'm experiencing around me!

Thanks all and happy to learn from you all!!!

Thanks
06-02-2016 05:39 PM
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pupcamper Online

Advisory Members

Posts: 398
Joined: Nov 2015

Machine: PR DreamStation CPAP Pro
Mask Type: Nasal pillows
Mask Make & Model: AirFit P10 Pillows; Quatro Air FFM
Humidifier: DreamStation Heated Humidifier
CPAP Pressure: 10.5 cmH2O; no ramp; no C-Flex
CPAP Software: SleepyHead EncorePro

Other Comments: Lung cancer survivor since 11/2004; CPAP since 11/2015

Sex: Male
Location: Van Buren, Arkansas, USA.

Post: #2
RE: New to CPAP and Forum
Welcome to the forum, SylviaT.

CPAP does have a learning curve and takes some getting used to. The hardest part is probably finding a mask that works for you. Don't be shy about getting your supplier to let you try different masks until you find one you can live with. It also helps to commit to using the CAPA every time you lay down, even for a short nap. After a while you won't even notice the machine and mask or imagine sleeping without them. Good luck on your new journey.

"....respiration,—a troublesome practice, but one which custom has rendered necessary to our easy existence...." Oliver Twist, Charles Dickens- 1837

I use FlashPAP to load data from a FlashAir III wifi sd card in my machine to my computer and display it with SleepyHead .
robysue's Beginner's Guide to SleepyHead
06-02-2016 05:57 PM
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OpalRose Offline

Monitors

Posts: 3,159
Joined: Nov 2014

Machine: PR System One REMstar Auto 560 with A Flex
Mask Type: Nasal pillows
Mask Make & Model: AirFit P10 For Her
Humidifier: REMStar heated humidifier with heated hose
CPAP Pressure: Auto Cpap 10-13 AFLEX 1
CPAP Software: SleepyHead EncoreBasic

Other Comments: Started CPAP Therapy October 23, 2014

Sex: Female
Location: Northeast Ohio, USA

Post: #3
RE: New to CPAP and Forum
Hi SylviaT,
Welcome to Apnea Board!
It is quite normal for us to take some time adapting to CPAP use. Afterall, you suddenly have something attached to your face and tethered to a hose.

The secret is to not let yourself get discouraged. Don't go even one night without it, no matter if it's just a couple hours.

You can try masking up and use the CPAP while either watching TV, or reading. Do this for an hour before you go to bed. You will be surprised how much time goes by, and it's a good way to just get used to the mask and the feel of the pressure.

In time, you may want to download the SleepyHead software. This is very helpful in learning about your treatment and to track your progress.
http://sleepyhead.jedimark.net/

Good Luck Smile

OpalRose
06-02-2016 06:52 PM
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SideSleeper Offline

Advisory Members

Posts: 225
Joined: Oct 2015

Machine: PR DS560HS REMstar Auto-A Flex+ +
Mask Type: Nasal mask
Mask Make & Model: Wisp & Dreamwear
Humidifier: Respironics System One
CPAP Pressure: APAP 11-11
CPAP Software: SleepyHead

Other Comments:

Sex: Female
Location: Western Oregon, USA

Post: #4
RE: New to CPAP and Forum
I didn't sleep very well for more than a week--I would just lie there listening to my very loud inhaling! It gradually got better and after a month I was looking forward to going to bed again. Now I wonder what I was thinking then as I can hardly hear myself breathing now. Stick with it--the better sleep you get with the machine does help even if you are getting less hours of sleep. It will get better if you are comfortable with the mask and pressure.
06-02-2016 10:00 PM
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trish6hundred Offline

Advisory Members

Posts: 6,430
Joined: May 2012

Machine: Resmed S9 AutoSet for Her
Mask Type: Full face mask
Mask Make & Model: Fisher & Paykel Simplus
Humidifier: H5i Heated Humidifier
CPAP Pressure: 10 - 7-20 Cm H2O
CPAP Software: Not using software

Other Comments: I started CPAP in 2008. Totally blind since birth.

Sex: Female
Location: Missouri, USA

Post: #5
RE: New to CPAP and Forum
Hi SylviaT,
WELCOME! to the forum.!
Hang in there for more responses to your post and much success to you with your CPAP therapy.

trish6hundred
06-02-2016 10:18 PM
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chill Online

Advisory Members

Posts: 850
Joined: Mar 2016

Machine: DreamStation X500
Mask Type: Full face mask
Mask Make & Model: Walk-in Mask Closet
Humidifier: DreamStation
CPAP Pressure: 13-16
CPAP Software: SleepyHead

Other Comments: CPAP True Believer

Sex: Male
Location: Vancouver, Canada

Post: #6
RE: New to CPAP and Forum
Welcome! Sleep apnea is not hereditary or not always. I don't think either of my parents or siblings has it. Stick with it, it can make a world of difference in your health.
06-02-2016 11:48 PM
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Asjb Offline

Advisory Members

Posts: 173
Joined: Oct 2014

Machine: Aircurve 10 CS Pacewave ASV. Before 11/2015 Airsense 10 Auto
Mask Type: Full face mask
Mask Make & Model: FP Simplus & Remzzzs liner
Humidifier: Integral
CPAP Pressure: Current info in this post
CPAP Software: ResScan SleepyHead

Other Comments:

Sex: Undisclosed
Location: France

Post: #7
RE: New to CPAP and Forum
Hello SylviaT and welcome to the Board!

I suggest you should not be concerned *at all*. Taking three hours to fall asleep on your first night with CPAP is absolutely par for the course. No mammal was likely to have been designed to go to sleep naturally wearing a tight mask and a hosey thing flapping around! - let alone having to come to terms with a treatment that is highly likely to be a life-long necessity.

If you peruse this Board you will find many posts from fellow Hoseheads who were sleeping normally within a week of starting treatment, but also from many others who took months, even sometimes more than a year, to get used to the situation.

The fact that you have joined the Board and are looking for feedback is an absolutely great start. Come back at any time with any question or problem.

best wishes for a happy and healthy life with CPAP!
................................................................................​...................
All my opinions are only as an xPAP user trying to help other xPAP users.
No suggestions I may make should be taken as professional advice.
If you have medical concerns please consult a doctor


My current pressures: Auto-ASV. EPAP 10-13. PS 3-10
06-03-2016 07:11 AM
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richb Offline

Advisory Members

Posts: 522
Joined: Jun 2015

Machine: Resmed AirCurve 10 ASV
Mask Type: Nasal mask
Mask Make & Model: ResMed Mirage FX
Humidifier: Built in
CPAP Pressure: Epap 6 Ipap 8 Auto ASV
CPAP Software: ResScan SleepyHead

Other Comments: Idiopathic Central Apnea

Sex: Male
Location: Vermont

Post: #8
RE: New to CPAP and Forum
Welcome SylviaT,

In my case I found that setting Ramp time to the max (45 min for my machine) helped me get used to exhaling against the pressure. Your pressure is fairly low at this point but can still cause some discomfort at first. I no longer use any ramp as I am fully used to the machine. I would also suggest installing the Sleepyhead software on your computer. You can get a much better picture of what is going on with your treatment. You can also see if there are issues that can be corrected.

Rich

Apnea Board Member RobySue has posted a Beginners Guide to Sleepyhead Software here: http://www.apneaboard.com/wiki/index.php...SleepyHead
06-03-2016 07:44 AM
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AndyB Offline

Preferred Members

Posts: 71
Joined: May 2015

Machine: ResMed AirSense 10 Autoset with RERA
Mask Type: Full face mask
Mask Make & Model: F&P Simplus, ResMed AirFit F10; PR Amara View
Humidifier: ResMed integrated heated
CPAP Pressure: 10.4-13.0
CPAP Software: SleepyHead

Other Comments: Diagnosed May 2015; EPR @ 1cmH2O; Ramp off; ResMed Climateline heated hose

Sex: Male
Location: SE Wisconsin

Post: #9
RE: New to CPAP and Forum
Ditto all of the excellent comments above about giving your body and brain time to adjust to this new way of sleeping -- it took me several months, but now -- a year into CPAP therapy -- all is good. A couple of additional suggestions that helped me: (1) use a hose cover, and (2) use a hose hanger. The former reduces noise from the plastic hose rubbing on the headboard and insulates a hose on cold nights, and the latter keeps the hose from getting tangled in your arms as you turn over in the night. In any event, you are on the right path!
06-03-2016 09:42 AM
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jubeilyh Offline

New Members

Posts: 1
Joined: Jun 2016

Machine: resmed Airsense 10
Mask Type: Full face mask
Mask Make & Model: Resmed AirFit F10
Humidifier: Resmed
CPAP Pressure: 5-13
CPAP Software: Not using software

Other Comments:

Sex: Male
Location:

Post: #10
RE: New to CPAP and Forum
Dear All,
It was my first time too to use the CPAP and it took me more than 2 hours to sleep. I am using full face mask and it kept leaking from all sides all night. in the morning I woke up with sever headache instead of being relaxed as I was told.
looking forward for your advices.
Sleep-well
06-03-2016 09:59 AM
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