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New to CPAP and feel lost!
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txparamedic Offline

Members

Posts: 4
Joined: Feb 2016

Machine: ResMed AirSense 10 Autoset
Mask Type: Full face mask
Mask Make & Model: Respironics Amara View
Humidifier: AirSense 10 Built In
CPAP Pressure: 5-20
CPAP Software: SleepyHead

Other Comments:

Sex: Male
Location: Houston, Texas

Post: #1
New to CPAP and feel lost!
Hello All,

Its refreshing to find a community of people helping each other out like this. Thank you for allowing me to join!

After a home sleep study and a 3 minute or less visit with the doctor I was prescribed a CPAP. A few days later some people showed up at my door and threw all this equipment at me and then asked if I had any questions. I told them I had lots of questions, but after the $8/hour delivery guy couldn't answer the first two of them I figured I was on my own.

I have spent hours reading and researching before I tried to use the CPAP. I thought I had it all figured out so 3 nights ago I gave it a try. All seemed to go well, my pre therapy AHI was 48 and after the first night the machine reported an AHI of 1.7. The problem is I seemed to have a reaction to the mask material, I have a red mark that is still on my face 3 days later. It was so bad that I didn't go to work the first day, and left half a day on the second. Today its still there but not nearly as bad. I'm at a loss as to what to do, I ordered a few different mask liners, but thought I would check with the experts here. Any help would be much appreciated, Thanks!
02-12-2016 10:41 AM
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Sleepster Offline
Wiki Editor
Moderators

Posts: 4,995
Joined: Feb 2012

Machine: ResMed AirCurve10 VAuto
Mask Type: Full face mask
Mask Make & Model: F&P Simplus
Humidifier: HumidAir and SlimLine Hose
CPAP Pressure: MaxI 13.6 | MinE 5.2 | PS 4.4
CPAP Software: ResScan SleepyHead

Other Comments: Diagnosed Nov 2011. Conquered aerophagia.

Sex: Male
Location: Houston, Texas

Post: #2
RE: New to CPAP and feel lost!
(02-12-2016 10:41 AM)txparamedic Wrote:  The problem is I seemed to have a reaction to the mask material, I have a red mark that is still on my face 3 days later.

Call your equipment provider and report the problem. Changing masks, especially for beginners, is what the industry is geared to do. Your insurance company will have allowances for this and will accommodate it because finding the right mask is a well-known issue with CPAP therapy.

If you don't get a satisfactory response from your equipment provider call your doctors office and your insurance company. You don't have to put up with the type of crappy service you've been getting from your equipment provider. They are being paid a lot of money for the services they provide, and the only people holding them accountable are us, the ones they're supposed to be providing for.

What you're going through is unfortunately very common. Your persistence is the only way you'll succeed.

Sleepster
Apnea Board Moderator
www.ApneaBoard.com


INFORMATION ON APNEA BOARD FORUMS OR ON APNEABOARD.COM SHOULD NOT BE CONSIDERED AS MEDICAL ADVICE. ALWAYS SEEK THE ADVICE OF A PHYSICIAN BEFORE SEEKING TREATMENT FOR MEDICAL CONDITIONS, INCLUDING SLEEP APNEA. INFORMATION POSTED ON THE APNEA BOARD WEB SITE AND FORUMS ARE PERSONAL OPINION ONLY AND NOT NECESSARILY A STATEMENT OF FACT.
02-12-2016 10:55 AM
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Sleeprider Online
Wiki Editor
Advisory Members

Posts: 3,400
Joined: Dec 2014

Machine: Resmed Aircurve 10 Vauto
Mask Type: Nasal pillows
Mask Make & Model: Resmed Airfit P10
Humidifier: Resmed Climateline
CPAP Pressure: Auto Bilevel 18/9, PS 3
CPAP Software: ResScan SleepyHead EncoreBasic

Other Comments:

Sex: Male
Location: Where they make Respironics

Post: #3
RE: New to CPAP and feel lost!
It's important not to over-tighten the mask, but if that is not the cause, and you really are sensitive to silicone, then you may need to look at an alternative. Silicone is usually not a problem on the face, but pressure can cause marks and redness that can be persistent. The mask needs to be fitted fairly loosely (think hovercraft).

If you can use nasal pillows, this type of mask has minimal facial contact and can be very effective. You might want to contact your supplier about changing.

If you really are sensitive to silicone, then the Circadiance brand masks are cloth material.

Be sure to follow the link at the top of the forum to download your Resmed Airsense 10 Autoset clinical manual. It can make getting to know your machine a lot easier.

______________________________________________
Organize your SleepyHead Data
Post your SleepyHead Data from Imgur
Robysue's Beginner's Guide to Sleepyhead
02-12-2016 10:56 AM
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OpalRose Offline

Monitors

Posts: 3,181
Joined: Nov 2014

Machine: PR System One REMstar Auto 560 with A Flex
Mask Type: Nasal pillows
Mask Make & Model: AirFit P10 For Her
Humidifier: REMStar heated humidifier with heated hose
CPAP Pressure: Auto Cpap 10-13 AFLEX 1
CPAP Software: SleepyHead EncoreBasic

Other Comments: Started CPAP Therapy October 23, 2014

Sex: Female
Location: Northeast Ohio, USA

Post: #4
RE: New to CPAP and feel lost!
Welcome to Apnea Board txparamedic,
Finding and getting the right mask fit for you is the hardest part to therapy. I don't use a full face mask, but liners may help. You also may have the straps too tight. It shouldn't hurt or leave marks on your face. Here is a thread that may help with your mask fit.
http://www.apneaboard.com/forums/Thread-...GUARANTEED

If you find that you can't adjust the mask to fit properly, then try a different mask. You should have a 30 day trial.

OpalRose
02-12-2016 11:03 AM
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txparamedic Offline

Members

Posts: 4
Joined: Feb 2016

Machine: ResMed AirSense 10 Autoset
Mask Type: Full face mask
Mask Make & Model: Respironics Amara View
Humidifier: AirSense 10 Built In
CPAP Pressure: 5-20
CPAP Software: SleepyHead

Other Comments:

Sex: Male
Location: Houston, Texas

Post: #5
RE: New to CPAP and feel lost!
I am committed to making the CPAP work. I don't believe it was an issue with over tightening, as I was careful not to do this thanks to this forum! I only wore the mask once and the red marks have persisted for 3 days and are just now starting to go away. Do you think some sort of a liner would help? I am going to call the supplier and my insurance company to find out exactly what I am entitled to as far ask mask trials. Thank you for the advise.
02-12-2016 11:03 AM
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trish6hundred Offline

Advisory Members

Posts: 6,453
Joined: May 2012

Machine: Resmed S9 AutoSet for Her
Mask Type: Full face mask
Mask Make & Model: Fisher & Paykel Simplus
Humidifier: H5i Heated Humidifier
CPAP Pressure: 10 - 7-20 Cm H2O
CPAP Software: Not using software

Other Comments: I started CPAP in 2008. Totally blind since birth.

Sex: Female
Location: Missouri, USA

Post: #6
RE: New to CPAP and feel lost!
Hi txparamedic,
WELCOME! to the forum.!
You could try mask liners to see if they would help. There are a few different brands of them, take a look at the suppliers list here at the top of each page on this board and you’ll find them.
If you just keep having trouble with the mask you are using now, don’t be shy about asking to try as many of them, ‘till you find the one that works for you, there are quite a few masks out there.
Hang in there for more responses to your post and much success to you with your CPAP therapy.

trish6hundred
02-12-2016 03:32 PM
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green wings Offline

Advisory Members

Posts: 553
Joined: Feb 2016

Machine: Respironics System One RemStar Pro (460)
Mask Type: Nasal pillows
Mask Make & Model: AirFit P10
Humidifier: integrated humidifier
CPAP Pressure: 13.0 cm
CPAP Software: SleepyHead

Other Comments: using CPAP since Jan. 2016

Sex: Undisclosed
Location: US

Post: #7
RE: New to CPAP and feel lost!
Hi txparamedic. I am in my first month of CPAP usage & can identify with some of your experiences. You have a certain amount of time (at least 30 days) to change masks until you find one that works.

As bad as I've felt that my experience with my DME company (equipment supplier) has been, I did get a 30 minute "set-up" visit with a respiratory therapist to get me started.

The first mask I tried caused a rash on my face. Even my eyelids swelled. I don't know why that happened, since the second model I tried was supposedly made of the same materials.

I just found this community earlier this week and am delighted to have found a group of people to help me trouble-shoot the problems I am having using the CPAP equipment.

Are the sleep doctor and the DME company supposed to help you with these questions? Yes, they are. Do they usually? Apparently not, based on my own experience and that of many people on this board.

I decided that it looks like it's going to be on me to figure out all thus stuff.

Having said that, you are in (or near) a large city and probably have several DME companies to choose from. The problem is figuring out which ones are good. I have found that my doctor won't recommend one over another.

There very likely are sleep apnea support groups in your area. Even if you're not interested in attending meetings, you might be able to get some DME recs from them.

Just something to think about.

(02-12-2016 10:41 AM)txparamedic Wrote:  Hello All,

Its refreshing to find a community of people helping each other out like this. Thank you for allowing me to join!

After a home sleep study and a 3 minute or less visit with the doctor I was prescribed a CPAP. A few days later some people showed up at my door and threw all this equipment at me and then asked if I had any questions. I told them I had lots of questions, but after the $8/hour delivery guy couldn't answer the first two of them I figured I was on my own.

I have spent hours reading and researching before I tried to use the CPAP. I thought I had it all figured out so 3 nights ago I gave it a try. All seemed to go well, my pre therapy AHI was 48 and after the first night the machine reported an AHI of 1.7. The problem is I seemed to have a reaction to the mask material, I have a red mark that is still on my face 3 days later. It was so bad that I didn't go to work the first day, and left half a day on the second. Today its still there but not nearly as bad. I'm at a loss as to what to do, I ordered a few different mask liners, but thought I would check with the experts here. Any help would be much appreciated, Thanks!
02-13-2016 10:40 AM
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SaldusMiegas Offline

Advisory Members

Posts: 228
Joined: Apr 2015

Machine: ResMed AirSense 10 AutoSet
Mask Type: Nasal pillows
Mask Make & Model: P-10, F&P Simplus
Humidifier: integrated
CPAP Pressure: Rx:14, Set:Auto 8.0-15.0
CPAP Software: ResScan SleepyHead

Other Comments: Woot! P-10 pillows plus Ruby chinstrap for side-sleeping mouth breathers

Sex: Male
Location: Virginia

Post: #8
RE: New to CPAP and feel lost!
Hi txparamedic and green wings,

welcome you both to the forum.

You are taking charge of your therapy which is awesome and most important as we all have learned to do.

This place the best source of info I know of for learning the ropes and getting helpful advice from people who are or have been right where you are now.

Good luck with your therapy.

Saldus Miegas
02-13-2016 12:24 PM
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cate1898 Offline

Advisory Members

Posts: 784
Joined: Aug 2015

Machine: PR System One 560BT Auto
Mask Type: Nasal pillows
Mask Make & Model: P10's/backup-DreamWear
Humidifier: PR attached
CPAP Pressure: 8.5 - 13. A-Flex 3
CPAP Software: SleepyHead

Other Comments: Began CPAP Therapy Sept. 11, 2015. Hx Hypertension, Post Graves Disease, chronic migraines.

Sex: Female
Location: Southern Ontario//SW Florida

Post: #9
RE: New to CPAP and feel lost!
Welcome to the forum txparamedic! Hopefully you will soon find a mask that is comfortable and does not leave any marks. Keep us posted!

APNEABOARD - A great place to be if you're a hosehead!! Rolleyes

-------------------------------------------------------------------------------------------------
EVERY ACCOMPLISHMENT BEGINS WITH THE DECISION TO TRY!
02-14-2016 07:10 AM
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txparamedic Offline

Members

Posts: 4
Joined: Feb 2016

Machine: ResMed AirSense 10 Autoset
Mask Type: Full face mask
Mask Make & Model: Respironics Amara View
Humidifier: AirSense 10 Built In
CPAP Pressure: 5-20
CPAP Software: SleepyHead

Other Comments:

Sex: Male
Location: Houston, Texas

Post: #10
RE: New to CPAP and feel lost!
All, thanks for the advise and help. I tried a padacheek liner and it works great, no marks and no reactions to the plastic. Now the only problem I am having is when the pressure goes up at night to above 12cm, the mask starts to leak pretty badly and wake me up. Any suggestions on how to fix the problem, I am still using the amara view full face. I like the minimal feel of the amara view, but I wonder if I should switch to another mask? Thoughts or advise?
02-17-2016 08:51 PM
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