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New to CPAP and not much is happening
#11
RE: New to CPAP and not much is happening
Doctors will disagree with the Soft Cervical Collar (SCC). Only the very rare doc will have any idea what you are talking about. He will ask where you heard about it, you will say the internet and he will no longer hear a word you say. This is actually something a user here actually discovered, we doubted it, but investigated and observed results. Bottom line is we have help many hundreds of users by suggesting a SCC. See the link in my signature for some real examples.
Gideon - Project Manager and Lead Tester for OSCAR - Open Source CPAP Analysis Reporter

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#12
RE: New to CPAP and not much is happening
mmmm, guinness. yeah, I gave it up too, 16 years ago, except for the occasional sip now and again just to remind me how good it is.

echoing Gideon, you're likely to waste your time and money asking the pros. sadly, few of us get much support (of any kind) from most sleep docs and dme/rt's. they don't seem to do a very good job of accurately diagnosing and treating apnea and it's rare to find one that will take the time to help us optimize our therapy, much less know how. instead, we come here to learn from the experiences of others and to share our own. once you find what works, you can educate your apnea med team and hope they're receptive and willing to pass the knowledge on to others.
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#13
RE: New to CPAP and not much is happening
Just the most recent member who has a wife that didn't believe the soft cervical collar could work. http://www.apneaboard.com/forums/Thread-...t-settings  And she even had a sleep test that says she doesn't have sufficient apnea for treatment!

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Sleeprider
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INFORMATION ON APNEA BOARD FORUMS OR ON APNEABOARD.COM SHOULD NOT BE CONSIDERED AS MEDICAL ADVICE. ALWAYS SEEK THE ADVICE OF A PHYSICIAN BEFORE SEEKING TREATMENT FOR MEDICAL CONDITIONS, INCLUDING SLEEP APNEA. INFORMATION POSTED ON THE APNEA BOARD WEB SITE AND FORUMS ARE PERSONAL OPINION ONLY AND NOT NECESSARILY A STATEMENT OF FACT.
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#14
RE: New to CPAP and not much is happening
@sheepless - Guinness has been a good friend and enemy of mine for a long time now.  We had to part ways though.  Getting older and wiser i guess....lol.  But I am slated to go to Ireland in September for 2 weeks and I'm going to the Guinness Brewery and would like to have one in a small town pub, hopefully just one Rolleyes .
My Dr doesn't seem to responsive.  Quick meetings and basically, it seems to me, "Good Luck."  When he asked my for permission to increase my airflow on the machine.  I was like,"Why TF are you asking me??? You're the expert. Tell me what to do so I can sleep better.  I KNOW NOTHING."  He said he would get back to me in a month and that's 2 weeks from now.  If I hear nothing everything is good.  I feel this doing something, but not enough.  I'm not as crabby in the am, but I'm still tired as s*** when I wake up.



@sleeprider -  I notice their Phillips Dreamstation is set to BiPap where mine is set to CPAP.  Wouldn't BiPAP better better?  I can't stand the constant pressure of 15.  I do hit the ramp button if I wake up, but if it doesn't notice me snoring or having episodes why should it be pushing air at 15?  I found it hard to breathe when I woke up in the middle of the night, last night.  It didn't feel like I was actually exhaling when I was trying to. 
I think this machine is mine now.  My health insurance wanted to do a 3 month rental first.  I'm all for hacking into it to get it to work for me. Also, so I don't have to go see the Dr again.  They just seem to draw this out so much.  I get sometimes it takes a while to get used to the machine, but geesh.

Ken
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#15
RE: New to CPAP and not much is happening
Ken, we have no idea about your therapy without the charts, but bilevel is nearly always better than CPAP, and Resmed is nearly always better than Philips. [/img]All we have seen in your charts is such a persistent VS2 that it looks like a machine defect, even in ramp. That chart was on fixed CPAP mode. I have never seen a chart like this. Something is mechanically wrong with your CPAP so that it detects persistent, never-ending snores, and you need something else. I hope it is a Resmed Autoset. Your machine is defective. Get it exchanged.

[Image: attachment.php?aid=29340]
Sleeprider
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INFORMATION ON APNEA BOARD FORUMS OR ON APNEABOARD.COM SHOULD NOT BE CONSIDERED AS MEDICAL ADVICE. ALWAYS SEEK THE ADVICE OF A PHYSICIAN BEFORE SEEKING TREATMENT FOR MEDICAL CONDITIONS, INCLUDING SLEEP APNEA. INFORMATION POSTED ON THE APNEA BOARD WEB SITE AND FORUMS ARE PERSONAL OPINION ONLY AND NOT NECESSARILY A STATEMENT OF FACT.
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#16
RE: New to CPAP and not much is happening
(01-25-2021, 07:53 PM)Sleeprider Wrote: Ken, we have no idea about your therapy without the charts, but bilevel is nearly always better than CPAP, and Resmed is nearly always better than Philips.  [/img]All we have seen in your charts is such a persistent VS2 that it looks like a machine defect, even in ramp. That chart was on fixed CPAP mode. I have never seen a chart like this.  Something is mechanically wrong with your CPAP so that it detects persistent, never-ending snores, and you need something else. I hope it is a Resmed Autoset.  Your machine is defective. Get it exchanged.

Charts meaning the screenshots or charts from the Dr?  Here is the last night before the Dr set the machine to CPAP with Fixed 15.0 (cmH2O) 01/05/21 and the 1st 2 nights I had the machine.  It must be something with the pressure?  After he set it to a Fixed 15.0 (cmH2O) the VS2 events are a constant all night long.

I will ask about a ResMed Autoset.  


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#17
RE: New to CPAP and not much is happening
Not sure how my text got in the quote.

Charts meaning the screenshots or charts from the Dr? There was the last night before the Dr set the machine to CPAP with Fixed 15.0 (cmH2O) 01/05/21 and the 1st 2 nights I had the machine. It must be something with the pressure? After he set it to a Fixed 15.0 (cmH2O) the VS2 events are a constant all night long.

I will ask about a ResMed Autoset.
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#18
RE: New to CPAP and not much is happening
I think the Autoset would be good for you because much of what we see is hypopnea and RERA, which does very well with the way Resmed delivers what is actually bilevel pressure. That helps make both inhale and exhale easier, and we have seen much lower hypopnea and RERA as a result. Hopefully you don't have nights like the October 7 chart very often. In that chart, and to a lesser extent on Oct 6 there are clusters of apnea which suggest chin-tucking or positional apnea. http://www.apneaboard.com/wiki/index.php...onal_Apnea

The most recent January chart was only a 2-hour session, and ended with hypopnea and RERA. Again, the Resmed would deal with that better, and is not affected by the variable breathing which paralyzes the Philps. It's complicated, but during those pink-shaded variable breathing times, your machine is unable to change pressure in response to events. Here is a wiki I wrote in it http://www.apneaboard.com/wiki/index.php..._Breathing My overall impression is that you would do better with a small increase in minimum pressure from 5.0 to 6 or 7.
Sleeprider
Apnea Board Moderator
www.ApneaBoard.com

____________________________________________
Download OSCAR Software
Soft Cervical Collar
Optimizing Therapy
Organize your OSCAR Charts
Attaching Files
Mask Primer
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INFORMATION ON APNEA BOARD FORUMS OR ON APNEABOARD.COM SHOULD NOT BE CONSIDERED AS MEDICAL ADVICE. ALWAYS SEEK THE ADVICE OF A PHYSICIAN BEFORE SEEKING TREATMENT FOR MEDICAL CONDITIONS, INCLUDING SLEEP APNEA. INFORMATION POSTED ON THE APNEA BOARD WEB SITE AND FORUMS ARE PERSONAL OPINION ONLY AND NOT NECESSARILY A STATEMENT OF FACT.
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