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New to board...need help!
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reefgal Offline

Members

Posts: 7
Joined: Sep 2012

Machine: ResMed S9
Mask Type: Nasal pillows
Mask Make & Model:
Humidifier: H5i
CPAP Pressure: 8
CPAP Software: ResScan

Other Comments: PLMD, RLS and chronic pain patient

Sex: Female
Location: Goodyear, AZ

Post: #1
New to board...need help!
Hi, my name is Sandy and I'm new to your board. My brother told me about it. My father, brother and I are all on CPAP therapy.

Help! I've been on CPAP therapy for over five years. I just recently discovered (thanks to a device called a Fit band from BioMedia) that I haven't been sleeping. I had been using nasal pillows, but was breathing through my mouth...so...no therapy.

I went to a sleep clinic and had a new study done six weeks ago. Not only did I wake up 19 times per hour because I stop breathing (for up to one minute) I experience 183 limb movements per hour (mostly in my legs).

The doctor set me up with a new CPAP machine, a new pressure setting (8) and a full-face mask. I'm not having any problem adjusting to the new pressure, my old pressure was 6, or the full-face mask...however, according to my Fit band, I slept 5 hours out of nine last night and slept no longer than 45 minutes at a stretch. Even though I am on medication for restless leg syndrome, I still experience constant limb movements all night. The night before last, I slept for less than three hours. My best night, I was awake 16 times, but did manage to sleep for 2 1/2 hours straight...A new record for me!

I'm extremely frustrated and don't know what to do. I expected an improvement after switching to a full-face mask and a higher pressure. So far, I haven't really seen much improvement. I have had a couple of nights where I sleep for two hours at a stetch, but I'm still waking 16-24 times per night.

I read the instructions on adjusting the pressure on the machine....thanks! I am going to try adjusting the pressure a bit and see if it helps. I bumped it up from 8.0 to 8.4. Any comments or suggestions would be welcome. Dont-know

Best regards,
Sandy

Practice random kindness and senseless acts of beauty.
09-18-2012 10:15 AM
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PaulaO2 Offline
Wiki Editor
Moderators

Posts: 8,067
Joined: Feb 2012

Machine: S9 Autoset
Mask Type: Full face mask
Mask Make & Model: F&P Simplus
Humidifier: H5i
CPAP Pressure: 14-20
CPAP Software: SleepyHead

Other Comments: Ehlers-Danlos Syndrome, Hypermobility Type; chronic sarcasm

Sex: Undisclosed
Location: western NC, USA

Post: #2
RE: New to board...need help!
Restless Leg Syndrome (RLS) and Periodic Limb Movement Disorder (PLMD) are two different things. RLS is a daytime thing and PLMD is a night time thing. A person can have one and not the other or be lucky enough to have both. PLMD is almost always caused by your brain trying to wake you up.

Which Resmed do you have? If it is the newer, silver S9, the name will be by the on/off button. EPR is a comfort feature and not the name of the device.

I looked up whatever the Fit band is. I don't think you should be using it as a way to tell whether you are sleeping or not. It goes on your arm, not your face (recording breaths), your chest (recording whether you are breathing or struggling to breathe), or your head (to monitor REM sleep).

There are two things that you as a CPAP user need to watch in terms of therapy treatment.

1 - your AHI. The AHI is the number of Apneas plus the number of Hypopneas divided by the number of hours slept. You want that number to be less than 5. This is something that doohickey can't tell you. If you have a data capable machine, such as the S9 Elite or the S9 Autoset, you can view the data that is on the card. If you have the S9 Escape or the Escape Auto, take it back and demand a data capable machine. The data will tell you how many times you stopped breathing (apnea), had shallow breathing (hypopnea), and some other stuff.

2 - how you are feeling. Do you feel rested? Are you sleepy during the day? Those are the important factors and probably more important than the AHI.

PaulaO2
Apnea Board Moderator
www.ApneaBoard.com


Breathe deeply and count to zen.

INFORMATION ON APNEA BOARD FORUMS OR ON APNEABOARD.COM SHOULD NOT BE CONSIDERED AS MEDICAL ADVICE. ALWAYS SEEK THE ADVICE OF A PHYSICIAN BEFORE SEEKING TREATMENT FOR MEDICAL CONDITIONS, INCLUDING SLEEP APNEA. INFORMATION POSTED ON THE APNEA BOARD WEB SITE AND FORUMS ARE PERSONAL OPINION ONLY AND NOT NECESSARILY A STATEMENT OF FACT.
09-18-2012 11:03 AM
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reefgal Offline

Members

Posts: 7
Joined: Sep 2012

Machine: ResMed S9
Mask Type: Nasal pillows
Mask Make & Model:
Humidifier: H5i
CPAP Pressure: 8
CPAP Software: ResScan

Other Comments: PLMD, RLS and chronic pain patient

Sex: Female
Location: Goodyear, AZ

Post: #3
ResScan-what does this mean?
AHI and AI events per hour: When I was using my old nasal pillows and chin strap, I was reading 2.4/2.2 - 4.4/3.4. On September 7th, I got a full-face mask. Since then the readings have shot up to 7.3/4 - 20.1/16.6

It appears my events have increased since I got the new mask...huh!?

Leak: Using my old nasal pillows and chin strap I was getting 10.8/4.8/0.0 - 75.6/10.8/0.0. Using the new mask, it ranges from 10.8/3.6/0.0 - 164.4/21.6/3.6.

What does this mean? It looks like I was doing better with my old mask and chin strap. However, I found the chinstrap uncomfortable and my husband says I was constantly trying to open my mouth.

I have all the data, but I don't know how to interpret it. Can anyone give me some guidance on which numbers I should be looking at and how to improve my therapy?
09-18-2012 11:34 AM
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reefgal Offline

Members

Posts: 7
Joined: Sep 2012

Machine: ResMed S9
Mask Type: Nasal pillows
Mask Make & Model:
Humidifier: H5i
CPAP Pressure: 8
CPAP Software: ResScan

Other Comments: PLMD, RLS and chronic pain patient

Sex: Female
Location: Goodyear, AZ

Post: #4
RE: New to board...need help!
I have the S9 that is data capable. I just installed the ResScan software and am looking at the data. I am very confused. When I was using my old nasal pillows and chin strap, my AHI/AI ranged from .8/.8 - 4.4/3.4. Since I got my full-face mask, my AHI/AI is from 8.2/4.9 - 20.1/16.6.

It seems to me that the full-face mask is not working, correct?

As for how I feel...I feel like a zombie. I can fall asleep sitting quietly for move than five minutes. My short-term memory is terrible.
09-18-2012 11:42 AM
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reefgal Offline

Members

Posts: 7
Joined: Sep 2012

Machine: ResMed S9
Mask Type: Nasal pillows
Mask Make & Model:
Humidifier: H5i
CPAP Pressure: 8
CPAP Software: ResScan

Other Comments: PLMD, RLS and chronic pain patient

Sex: Female
Location: Goodyear, AZ

Post: #5
RE: New to board...need help!
As for the BodyMedia Fit band, you are correct in that it does not help me monitor my sleep apnea. However, if not for this band, I would not have been aware of how bad my apnea was and that it was not under control at all. The Fit band turned out to be the best investment in my health that I have ever made. Now, I have to resolve the issue of my sleep apnea and PLMD and RLS (I have both).

I am considering investing in an oxygen sensor as well. I really need to get this sleep apnea under control. I am a chronic pain patient. Lack of sleep translates directly to increased pain for me. Also, the stress of feeling like I was losing my mind, extremely poor short-term memory (which I have never had before) was also contributing to increased pain.

I apprecieate your assistance. Can you tell me what my AHI/AI numbers are telling you?
09-18-2012 11:49 AM
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SuperSleeper Offline

Administrators

Posts: 9,973
Joined: Feb 2012

Machine: PR System One REMstar Auto (DS560)
Mask Type: Nasal pillows
Mask Make & Model: ResMed Mirage Swift II
Humidifier: none
CPAP Pressure: 12.5 - 18.5 cmH20 (auto range)
CPAP Software: SleepyHead

Other Comments: Have diabetes Type II

Sex: Male
Location: Illinois, USA

Post: #6
RE: ResScan-what does this mean?
Don't have much time to answer all the questions, but a quick point: Full face masks are notorious for leaking and will not be as effective in lowering your AHI levels as nasal masks or a nasal pillows system.

I'd only use a Full face mask if you absolutely have to and have no choice.


EDIT: also, I merged the two threads you created so folks can see the other issues you're having and respond appropriately with all the information. Stay tuned, I'm sure others will be along to help out with some replies...

SuperSleeper
Apnea Board Administrator
www.ApneaBoard.com


INFORMATION ON APNEA BOARD FORUMS OR ON APNEABOARD.COM SHOULD NOT BE CONSIDERED AS MEDICAL ADVICE. ALWAYS SEEK THE ADVICE OF A PHYSICIAN BEFORE SEEKING TREATMENT FOR MEDICAL CONDITIONS, INCLUDING SLEEP APNEA. INFORMATION POSTED ON THE APNEA BOARD WEB SITE AND FORUMS ARE PERSONAL OPINION ONLY AND NOT NECESSARILY A STATEMENT OF FACT.

09-18-2012 12:00 PM
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trish6hundred Offline

Advisory Members

Posts: 6,450
Joined: May 2012

Machine: Resmed S9 AutoSet for Her
Mask Type: Full face mask
Mask Make & Model: Fisher & Paykel Simplus
Humidifier: H5i Heated Humidifier
CPAP Pressure: 10 - 7-20 Cm H2O
CPAP Software: Not using software

Other Comments: I started CPAP in 2008. Totally blind since birth.

Sex: Female
Location: Missouri, USA

Post: #7
RE: New to board...need help!
Hi reefgal, First, WELCOME! to the forum.! I don't know the answers to your questions but hang in there, someone will be able to help you with more suggestions, best of luck with your CPAP therapy.

trish6hundred
09-18-2012 02:13 PM
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reefgal Offline

Members

Posts: 7
Joined: Sep 2012

Machine: ResMed S9
Mask Type: Nasal pillows
Mask Make & Model:
Humidifier: H5i
CPAP Pressure: 8
CPAP Software: ResScan

Other Comments: PLMD, RLS and chronic pain patient

Sex: Female
Location: Goodyear, AZ

Post: #8
RE: New to board...need help!
Anyone have a suggestion for a chin strap that does not cause one's jaw to hurt or cause a headache? After anaylizing data from ResScan, I realize I was doing much better with my nasal pillows and a chin strap. My AHI numbers were MUCH lower. The chin straps I've tried are wide and go right over the top of my head. The velcro gets caught in my long hair and the pressure gives me a headache. I need a strap that goes around my head or attaches to my nasal pillow mask. Any suggestions? I ordered a Wrist oximeter from eBay. I'm going to monitor my AHI number and see if I can tweek the pressure on my machine.

Best regards,
Sandy

Practice random kindness and senseless acts of beauty.
09-18-2012 03:22 PM
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PollCat Offline
Apnea Board Polling Administrator
Monitors

Posts: 1,576
Joined: Feb 2012

Machine: ResMed S9 Autoset
Mask Type: Nasal pillows
Mask Make & Model: ResMed AirFit P10
Humidifier: H5i Cleanable with ClimateLine
CPAP Pressure: 10 - 18
CPAP Software: SleepyHead

Other Comments: CPAP-ing since 1995; Type 2 Diabetes; Chronic Asthma; Gout

Sex: Male
Location: Westfield, IN

Post: #9
RE: New to board...need help!
Respironics makes the Optilife mask with nasal pillows/cushions that has a built-in chin strap - though they call it a support strap. I've used it for a couple years now because I also disliked the chin straps!


INFORMATION ON APNEA BOARD FORUMS OR ON APNEABOARD.COM SHOULD NOT BE CONSIDERED AS MEDICAL ADVICE. ALWAYS SEEK THE ADVICE OF A PHYSICIAN BEFORE SEEKING TREATMENT FOR MEDICAL CONDITIONS, INCLUDING SLEEP APNEA.
INFORMATION POSTED ON THE APNEA BOARD WEB SITE AND FORUMS ARE PERSONAL OPINION ONLY AND NOT NECESSARILY A STATEMENT OF FACT.
09-18-2012 03:40 PM
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zonk Offline

Advisory Members

Posts: 7,908
Joined: Feb 2012

Machine: A10 AutoSet
Mask Type: Nasal mask
Mask Make & Model: Activa LT
Humidifier: Integrated /ClimateLineAir
CPAP Pressure: 9/13
CPAP Software: ResScan

Other Comments: CPAP since Nov 2010

Sex: Male
Location: Australia

Post: #10
RE: New to board...need help!
Use whatever mask you find fit better and more comfortable
AHI at and below 5 is a good range
The chinstrap should not be tight so it causes you headaches .. just reminder to keep mouth closed as therapy air escaping through the mouth would render the treatment ineffective
Could you post a snapshots of stats and charts
09-18-2012 04:05 PM
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