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New to treatment, no guidance from PCP, OK to go it alone?
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Mosquitobait Offline

Advisory Members

Posts: 818
Joined: Apr 2015

Machine: Resmed AirSense 10 For Her
Mask Type: Nasal pillows
Mask Make & Model: Respironics Dreamwear
Humidifier: integrated, Climate line tube
CPAP Pressure: 9-12.6
CPAP Software: SleepyHead

Other Comments: RLS and Bradycardia

Sex: Female
Location: Minneapolis

Post: #11
RE: New to treatment, no guidance from PCP, OK to go it alone?
(02-04-2016 09:38 AM)Deej Wrote:  So I guess what I'm getting at (other than I am looking for a replacement PCP) is am I going to be OK doing this therapy on my own? Do I need follow-ups with my PCP or anyone else? I did not get any initial info such as my sleep test AHI or any goals I need to meet. I did download Sleepyhead and as you can see I am more of a "highly engaged" patient type, so I don't have a problem learning about my condition and setting the machine on my own, I just don't want to march forward using google as my doctor if it's not recommended.

Eventually I will probably get a new PCP and get them engaged in my treatment, but getting that ball rolling and getting settled will probably take months, especially since I will probably have to go out of town to get a new doctor.

Dee, first you need to get a copy of your sleep study. So contact the provider who did your sleep test and ask for a copy of the raw data study as well as the final report. THEN, get a copy of your prescription from your doc. Whether you need to see your PCP again depends on your insurance company. Most require a follow-up to pay for your machine. You'll need to contact your insurance company about it.

Welcome to the board!
02-04-2016 02:52 PM
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Deej Offline

Members

Posts: 6
Joined: Feb 2016

Machine: AirSense 10 Auto
Mask Type: Nasal pillows
Mask Make & Model: Philips Nuance Pro
Humidifier: AirSense 10 Auto
CPAP Pressure: 8-20
CPAP Software: SleepyHead

Other Comments:

Sex: Male
Location:

Post: #12
RE: New to treatment, no guidance from PCP, OK to go it alone?
I just got my study results faxed over from the lab. Here are the numbers it gave, I'm not sure which is the "true" AHI.

AHI/RDI > 3%
42.8
65.3
37.6

AHI/RDI > 4%
36.2
57.5
34.6

AI (apnea index)
17.5
26.9
9.8





I THINK the AHI/RDI is what they are calling the AHI, but I'm not sure if I should use the 3% O2 numbers or 4% O2.


Either way, it looks like my therapy is helping greatly since my AHI was below 2.
02-04-2016 04:09 PM
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trish6hundred Offline

Advisory Members

Posts: 6,634
Joined: May 2012

Machine: Resmed S9 AutoSet for Her
Mask Type: Full face mask
Mask Make & Model: Fisher & Paykel Simplus
Humidifier: H5i Heated Humidifier
CPAP Pressure: 10 - 7-20 Cm H2O
CPAP Software: Not using software

Other Comments: I started CPAP in 2008. Totally blind since birth.

Sex: Female
Location: Missouri, USA

Post: #13
RE: New to treatment, no guidance from PCP, OK to go it alone?
Hi Deej,
WELCOME! to the forum.!
Much success to you as you start your CPAP journey and going it alone; as you are finding out, there is lots of information and helpful people here on this board.
Keep up the good work and hang in there.

trish6hundred
02-04-2016 09:43 PM
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