It takes time and effort to get used to things in your brave new world.
First thing? Take what your sleep doc and your DME say with a grain of salt but don't get out of hand until you read, study, digest and understand the data that your machine is giving you. And I sure hope it is giving you lots of data. And I hope that you are using a pulse oximeter to record your SpO2 (blood oxygen, sorta) all night. When you put it all together you will quickly get a pretty good idea of where your pressures need to be.
What shocked me a bit was your Rx to start with pressures at MAX and then reduce them. That is a first for me and understandably would make many folks uncomfortable wearing a blower. I'd get a second opinion if possible. I started my wife at about 8 cmH2O - 17 cmH2O and the blower seems to want to blow about 14cmH2O to keep her airway open. She is on some meds and has a few centrals during the night as well, but from what the MD Rx'd using a ResMed Elite.... to taking my spare ResMed S9 Auto with the above settings, was like day and night. AHI 85+ with the doc's settings. Dropped down to what now appears to be the 6-8 range with the Autoset. Oh, and a full face mask - Mirage Quattro (SMALL). Fit is very important.
Hang in. Educate yourself and you will soon be sleeping like a baby until you fall and fracture your ribs and spine like I did in May... then nothing is going to help you sleep well. Another round of doctors ahead of us but I don't know that there is a cure for the spine injuries. It was just a matter of time. And such a freak 1.5 foot fall that it is hard to believe. Good luck to you. Hang in there.
Educate, Advocate, Contemplate.
Herein lies personal opinion, no professional advice, which ALL are well advised to seek.
The roller coaster ride continues .. still struggling with the mask seems I have about a 15 minute period every night that blows my leak numbers up like a balloon .. and it seems to be in the middle of my sleep and not on either ends which are good .. and I'm not having a episode during the mask leak either .. last nights was from 3:52 till 4:05 am .. nothing before it or after it .. really has me puzzled !
Leak Rate of detected mask leakage (L/min)Rate of detected mask leakage (L/min)
0.00 0.00 21.60 37.20 Time over leak redline 2.815%
My last 11 days AHI's are .81, .48, .97, 8.11, 4.75, .69, 1.56, 1.67, 6.94, 4.76, 2.45 ! You can tell the days when my pain levels are the highest and when they are controlled by my medication for my back pain. I'm not sure if my numbers are ever going to be much better then they are now .. might be able to tweak them just a little but because of the outside influence of my (Pain) and the subsequent use of pain medication I'm not sure how to go about doing it though .
I see my Pulmonologist who is also my sleep doctor at the end of next week and will have 5 weeks usage of the Resmed VPAP
Adapt, the first 2 weeks I was non compliant because the initial settings over inflated my lungs and I had to stop treatment to allow my lungs to get over the soreness caused to them .. but since have used the machine 11 days of varying lengths that are getting longer as my tolerance increases.
I will lobby to keep my settings the same to help me better acclimate myself to it and my AHI numbers haven't been all that bad except nights my pain level has been higher .. as you can see from my last comment here ..
Used it just over 5 hours last night and my first AHI of 0.00 .. 1 apnea 2 minutes into putting on the mask and I was still awake and then nothing afterwards .. and my leaks were less the 1% .
Pain level last night was good with no additional medication needed !!
Good job Rabbit.. Were you only in bed 5 hours? If so, you really need to go to bed earlier. Otherwise keep working to insure that whenever you're in bed, the machine is connected and running.