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Newbe with Complex Apnea - Best ASV to get?
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dosleepflorida Offline

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Posts: 2
Joined: May 2013

Machine: Respironics System One
Mask Type: Nasal mask
Mask Make & Model: Mirage FX
Humidifier: Respironics
CPAP Pressure: auto
CPAP Software: EncorePro

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Sex: Female
Location:

Post: #141
RE: Newbe with Complex Apnea - Best ASV to get?
Sorry but I am not in Arizona, but rather accross the country. In our area there are clinics that can get you a donated machine if your doctor gives you the Rx. I know in my office, I have 2 Auto SV BIPAP machines that are ready for people just like you.

Unfortuantely CPAP and traditional BIPAP does not treat complex sleep apnea in many patients; however, there are a group of people, often men in what sounds like your age category that do quite well with regular CPAP if we watch you on the machine with download over about 4-6 weeks. Those "central" apneas do seem to resolve or at least improve. It is not always, but if you could have your doctor write for one of these machines on a trial basis and follow you closely at the office or at a CPAP clinic, you may actually do pretty well. It is thought that this has something to do with resetting the CO2 threshold. The worse the apnea, the more often I personally see people have central events up front. It is about 70-30 that people end up doing just fine on regular CPAP (all being equal).

Good luck!

DO Sleep Solutions, Inc.
- Dr. Zzzz...
05-13-2013 08:01 AM
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racprops Offline

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Posts: 260
Joined: Mar 2013

Machine: Respironics DS960HS
Mask Type: Full face mask
Mask Make & Model: Respironics FitLife FFM
Humidifier: Respironics
CPAP Pressure: ????
CPAP Software: SleepyHead EncoreBasic

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Sex: Male
Location: Phoenix AZ

Post: #142
RE: Newbe with Complex Apnea - Best ASV to get?
Welcome dosleepflorida

From your system list I take you're a user as well as a prescriber?

I read your other post about the resmed S9 machine.

How do you like the Respironics System one BiPAP Auto SV Advance DS950HS machines??

I would suggest you get a copy of Sleepyhead reporting software, both for its better interface and as so many users use it over Encore.

I hope you stay with us but fear you will become swamped with questions: I being one first in line.

Rich
(This post was last modified: 05-13-2013 08:42 AM by racprops.)
05-13-2013 08:28 AM
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trish6hundred Offline

Advisory Members

Posts: 6,424
Joined: May 2012

Machine: Resmed S9 AutoSet for Her
Mask Type: Full face mask
Mask Make & Model: Fisher & Paykel Simplus
Humidifier: H5i Heated Humidifier
CPAP Pressure: 10 - 7-20 Cm H2O
CPAP Software: Not using software

Other Comments: I started CPAP in 2008. Totally blind since birth.

Sex: Female
Location: Missouri, USA

Post: #143
RE: Newbe with Complex Apnea - Best ASV to get?
Hi dosleepflorida,
WELCOME! to the forum.!

trish6hundred
05-13-2013 07:27 PM
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archangle Offline
Wiki Editor
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Posts: 3,159
Joined: Feb 2012

Machine: ResMed S9 AutoSet
Mask Type: Nasal pillows
Mask Make & Model: ResMed Swift FX
Humidifier: ResMed S9 H5i
CPAP Pressure: 16-20
CPAP Software: ResScan SleepyHead EncoreBasic

Other Comments: Happy PAPper

Sex: Undisclosed
Location: USA

Post: #144
RE: Newbe with Complex Apnea - Best ASV to get?
(05-13-2013 12:24 AM)vsheline Wrote:  Turning EPR down (gradually, maybe one notch a week) to 2 or 1 or Off may improve the CA Index (average number of clear airway apneas per hour).

Using EPR can increase (make worse) the CAI number, for the minority of patients who are susceptible to central events. Some long-time CPAP users have found that their CAI numbers improved a lot when they turned off EPR.

Some people find EPR/Flex/exhale relief helps centrals, some find it makes it worse. That's one of the reasons it's so important to have a fully data capable machine, monitor the data and carefully tinker while observing the results.

Get the free SleepyHead software here.
Useful links.
Click here for information on the main alternative to CPAP.
If it's midnight and a DME tells you it's dark outside, go and check it yourself.
05-14-2013 05:18 AM
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racprops Offline

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Posts: 260
Joined: Mar 2013

Machine: Respironics DS960HS
Mask Type: Full face mask
Mask Make & Model: Respironics FitLife FFM
Humidifier: Respironics
CPAP Pressure: ????
CPAP Software: SleepyHead EncoreBasic

Other Comments:

Sex: Male
Location: Phoenix AZ

Post: #145
RE: Newbe with Complex Apnea - Best ASV to get?
BREAK THOUGH!!! NO EVENTS!!!!

I felt it was time for a desperate act, so far I have not slept over 4 hours at one time on the machine..and that seemed to only happen after many nights of one hour at a time..

So last night I took a Zantac.

I woke up a little stiff and need a bathroom break.

Then I relisted I have slept for seven hours..nearly a full night’s sleep.

I had to see how I did.

So I plugged in the SD card and downloaded it.

First I felt: ON NO it malfunctioned, it failed to scan my last night how did I mess it up..

AND then I relised it had not malfunctioned that many of the readouts were reporting breathing.

Then I had a OMG moment.

I HAD A PERFICE NIGHT ZERO AHI, ZERO APNEAS, ZERO EVERYTHING.

SEE:

[Image: 518BESTnightEVER_zpsb55b87e4.jpg]

[Image: 518BESTnightEVERB_zpsc949a23c.jpg]

[Image: 518BESTnightEVERC_zps005de6aa.jpg]

[Image: 518BESTnightEVERE_zpsed08cde2.jpg]

[Image: Bestnight512O2_zpsf2d6eb5f.jpg]

This would and could not have happen with out all your support and help.

Rich
05-18-2013 06:46 AM
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JJJ Offline

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Machine: ResMed S9 Autoset
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Mask Make & Model: Most recent: Wisp, Pilairo, Mirage Vista
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Sex: Male
Location: USA 97217

Post: #146
RE: Newbe with Complex Apnea - Best ASV to get?
(05-18-2013 06:46 AM)racprops Wrote:  BREAK THOUGH!!! NO EVENTS!!!!
I HAD A PERFICE NIGHT ZERO AHI, ZERO APNEAS, ZERO EVERYTHING.
Then I realized I have slept for seven hours..nearly a full night’s sleep.

Awesome! Congratulations!

Having just the other day achieved my first zero, I think we should form "The Big Fat Zeroes" club.

"Hi. I'm JJJ. I'm a Big Fat Zero." Smile
05-18-2013 08:58 AM
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racprops Offline

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Posts: 260
Joined: Mar 2013

Machine: Respironics DS960HS
Mask Type: Full face mask
Mask Make & Model: Respironics FitLife FFM
Humidifier: Respironics
CPAP Pressure: ????
CPAP Software: SleepyHead EncoreBasic

Other Comments:

Sex: Male
Location: Phoenix AZ

Post: #147
RE: Newbe with Complex Apnea - Best ASV to get?
It took 29 days to reach this.

And as I tried to go back asleep and got another 2.75 hours of sleep the machine the racked up 3.24 events 1.05 CA and 2.19 Hypopneas.

So I do know this will not be every night, but I also now know it can happen and that I am on the right track.

Rich

PS I will point out it took a Xanax and sleeping in my recliner is a near upright position. There is still work to do.
(This post was last modified: 05-18-2013 03:33 PM by racprops.)
05-18-2013 01:48 PM
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trish6hundred Offline

Advisory Members

Posts: 6,424
Joined: May 2012

Machine: Resmed S9 AutoSet for Her
Mask Type: Full face mask
Mask Make & Model: Fisher & Paykel Simplus
Humidifier: H5i Heated Humidifier
CPAP Pressure: 10 - 7-20 Cm H2O
CPAP Software: Not using software

Other Comments: I started CPAP in 2008. Totally blind since birth.

Sex: Female
Location: Missouri, USA

Post: #148
RE: Newbe with Complex Apnea - Best ASV to get?
Hi racprops,
That's GREAT that you reached the "BIG ZERO" mark, CONGRATULATIONS,! I know you have been trying to get there for quite a while.

trish6hundred
05-18-2013 02:02 PM
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Sleepster Offline
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Posts: 4,988
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Machine: ResMed AirCurve10 VAuto
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CPAP Software: ResScan SleepyHead

Other Comments: Diagnosed Nov 2011. Conquered aerophagia.

Sex: Male
Location: Houston, Texas

Post: #149
RE: Newbe with Complex Apnea - Best ASV to get?
(05-18-2013 01:48 PM)racprops Wrote:  PS I will point out it took a Xanax and sleeping in my recliner is a near upright position. There is still work to do.

Xanax. Ok, originally you said Zantac and I was trying to figure out how that was possible! Smile

Often drugs will do this, but the effect wears off and eventually your AHI goes back to what it was without the drug.

Sleepster
Apnea Board Moderator
www.ApneaBoard.com


INFORMATION ON APNEA BOARD FORUMS OR ON APNEABOARD.COM SHOULD NOT BE CONSIDERED AS MEDICAL ADVICE. ALWAYS SEEK THE ADVICE OF A PHYSICIAN BEFORE SEEKING TREATMENT FOR MEDICAL CONDITIONS, INCLUDING SLEEP APNEA. INFORMATION POSTED ON THE APNEA BOARD WEB SITE AND FORUMS ARE PERSONAL OPINION ONLY AND NOT NECESSARILY A STATEMENT OF FACT.
05-18-2013 04:28 PM
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racprops Offline

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Posts: 260
Joined: Mar 2013

Machine: Respironics DS960HS
Mask Type: Full face mask
Mask Make & Model: Respironics FitLife FFM
Humidifier: Respironics
CPAP Pressure: ????
CPAP Software: SleepyHead EncoreBasic

Other Comments:

Sex: Male
Location: Phoenix AZ

Post: #150
RE: Newbe with Complex Apnea - Best ASV to get?
Well as I have a habit of waking nearly every hour, and only getting good sleep when I fall asleep around 3 AM I am hoping to break that cycle.

Rich
05-18-2013 05:30 PM
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