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Newbie - 2 nights
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okiegal61 Offline

Members

Posts: 19
Joined: Feb 2013

Machine: Phillips Respironics DS560 HS Remstar Auto A-Flex w/ HH
Mask Type: Other
Mask Make & Model: Wisp
Humidifier: Phillips
CPAP Pressure: 11
CPAP Software: SleepyHead

Other Comments: adjusting well --

Sex: Female
Location: Oklahoma

Post: #1
Newbie - 2 nights
I have been using my new machine for 2 nights. Although, I might have to try another mask, overall it is an improvement in my daily energy level.

My questions are Last night my ahi was 13.9 (my sleep study ws 32), therapy hours were 7.30, no large leaks, but I have a question on what another term means, Periodic breathing 2.7 %.

I must admit, I have not read the manual fully, but glanced over things. I was thinking my numbers would drop dramatically when I started using the CPAP, I guess for some it does, for some it does not. I do know, If I lay on my back, it is a better AHI- as I took a nap. But I tend to sleep bette on my right side, which is when I have the most obstructions, per the sleep study.

I think my machine is not one of the preferred models, but since I was a newbie at this, I figured, I would follow the drs orders, until I get more familiar with all of this. so will the sleepyhead program,work with my data card, to give me a detail day to day progress? or should I just keep looking at this on my own.

I am supposed to be a call next week to see how it is all going. And I will tell them about my mask problems. mainly pain in the top bridge of my nose. but the leakage is ok, It works, other that that red mark that hurts, and wont go away.

Thanks
03-24-2013 12:39 PM
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trish6hundred Offline

Advisory Members

Posts: 6,451
Joined: May 2012

Machine: Resmed S9 AutoSet for Her
Mask Type: Full face mask
Mask Make & Model: Fisher & Paykel Simplus
Humidifier: H5i Heated Humidifier
CPAP Pressure: 10 - 7-20 Cm H2O
CPAP Software: Not using software

Other Comments: I started CPAP in 2008. Totally blind since birth.

Sex: Female
Location: Missouri, USA

Post: #2
RE: Newbie - 2 nights
Hi okiegal61,
WELCOME! to the forum.!
You haven't been at CPAP therapy that long, everybody is different so it might take a while for you to get used to it, just stick with it. if your mask is giving you trouble, you sure do want to let the DME know about it next week when they call you to ask how things are going.
Best of luck to you with your CPAP therapy and hang in there for more responses to your post.

trish6hundred
03-24-2013 12:59 PM
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Bompa Offline

Monitors

Posts: 854
Joined: Mar 2012

Machine: DreamStation Pro
Mask Type: Nasal pillows
Mask Make & Model: Nuance Pro
Humidifier: DreamStation Heated Humidifer
CPAP Pressure: 12.0
CPAP Software: SleepyHead Other Software

Other Comments:

Sex: Male
Location: Falkenburg,

Post: #3
RE: Newbie - 2 nights
Hi Okiegal:
First of all welcome to the Forum. You must remember that not all of us here are a touch looney! Loco
WE do offer a lot of good advice and have fun doing it.
Remember that to get used to using a CPAP machine and sleeping with a mask on with air blowing at you will take time to get used to.

try wearing the mask during the day for short periods like when watching TV or reading. It does take time for your face to get used to wearing the mask. Quite a few users, including myself, have had to use creams to help with problem areas.
Don't give up!!!!!
Welcome
03-24-2013 01:51 PM
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PaulaO2 Offline
Wiki Editor
Moderators

Posts: 8,067
Joined: Feb 2012

Machine: S9 Autoset
Mask Type: Full face mask
Mask Make & Model: F&P Simplus
Humidifier: H5i
CPAP Pressure: 14-20
CPAP Software: SleepyHead

Other Comments: Ehlers-Danlos Syndrome, Hypermobility Type; chronic sarcasm

Sex: Undisclosed
Location: western NC, USA

Post: #4
RE: Newbie - 2 nights
If I understand it correctly, and I probably do not, periodic breathing is where you had a cessation of breathing but it did not last 10 seconds. Not sure what the percentage means.

How were you central event counts?

PaulaO2
Apnea Board Moderator
www.ApneaBoard.com


Breathe deeply and count to zen.

INFORMATION ON APNEA BOARD FORUMS OR ON APNEABOARD.COM SHOULD NOT BE CONSIDERED AS MEDICAL ADVICE. ALWAYS SEEK THE ADVICE OF A PHYSICIAN BEFORE SEEKING TREATMENT FOR MEDICAL CONDITIONS, INCLUDING SLEEP APNEA. INFORMATION POSTED ON THE APNEA BOARD WEB SITE AND FORUMS ARE PERSONAL OPINION ONLY AND NOT NECESSARILY A STATEMENT OF FACT.
03-24-2013 03:33 PM
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LTSleeper Offline

New Members

Posts: 3
Joined: Mar 2013

Machine: ResMed S9 AutoSet
Mask Type: Nasal pillows
Mask Make & Model: ResMed S9 AutoSet
Humidifier: H5i
CPAP Pressure: 6 to 12
CPAP Software: Not using software

Other Comments:

Sex: Female
Location:

Post: #5
RE: Newbie - 2 nights
Hi, okiegal. I guess we were the lucky ones on the same day. Just had my second night with my APAP therapy as well. I think everyone I have worked with so far told me that it will be about a 2-week process getting adjusted to it. The second night seemed to be better for me. Good luck!!

03-24-2013 03:52 PM
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zonk Offline

Advisory Members

Posts: 7,908
Joined: Feb 2012

Machine: A10 AutoSet
Mask Type: Nasal mask
Mask Make & Model: Activa LT
Humidifier: Integrated /ClimateLineAir
CPAP Pressure: 9/13
CPAP Software: ResScan

Other Comments: CPAP since Nov 2010

Sex: Male
Location: Australia

Post: #6
RE: Newbie - 2 nights
Congrats on improvement of energy levels, very good sign
Keep it up Well-done
I've had similar results when started but things get sorted out as get used to the machine and find better mask after tried several masks
Some might find the first mask is the best mask, everyone is different

We don,t need all have to use an S9, your machine good one too
You need to install the patch in addition to sleepyHead to work with PRS1 560
Finding the right mask is most important ... no efficient therapy without a good mask fit
Tennis ball in a sock sewn on back of pyjama tops would help avoid rolling on your back
Your machine report total leak (mask vents leak plus excess leak)
No large leak does not tell me much other than leak was not in the large leak territory
Any leak large or small if affect sleep quality. need to be sorted out

PRS1 manual ... Event Definitions
Obstructed Airway Apnea / Clear Airway Apnea Detection
An apnea is detected when there is an 80% reduction in airflow from baseline for at least 10 seconds or if there is no airflow detected for 10 seconds.
During the apnea, one or more pressure test pulses are delivered by the device. The device evaluates the response of the patient to the test pulse(s) and assesses whether the apnea has occurred while the patient has a clear airway or an obstructed airway. The airway is determined to be clear if the pressure test pulse generates a significant amount of flow; otherwise the airway is determined to be obstructed.

Periodic Breathing
A persistent waning and waxing breathing pattern which repeats itself between 30 and 100 seconds. The nadir of the breathing pattern is characterized by at least a 40% reduction in airflow from an established baseline flow. The pattern must be present for several minutes before it can be identified as periodic breathing.
No therapy adjustments are made in response to periodic breathing.
03-24-2013 04:08 PM
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Shastzi Offline

Advisory Members

Posts: 1,174
Joined: Dec 2012

Machine: ResMed S9 Autoset
Mask Type: Full face mask
Mask Make & Model: FitLife Total face mask
Humidifier: F&P HC150 with Hybernite heated hose.
CPAP Pressure: 15cm-20cm H2O (auto)
CPAP Software: SleepyHead Other Software

Other Comments: CMS50-F wearable Oximeter; Software: SPO2 Assistant

Sex: Undisclosed
Location: Florida, USA.

Post: #7
RE: Newbie - 2 nights
Hi okiegal!

Welcome

Your body is adapting to a whole new norm.
In the mean time we should get you going on some software so you can get a better picture of how things are going *over time*

Cheers!

"With ordinary talent and extraordinary perseverance, all things are attainable." - Thomas Foxwell Buxton

Cool
03-24-2013 06:28 PM
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JJJ Offline

Advisory Members

Posts: 751
Joined: Apr 2012

Machine: ResMed S9 Autoset
Mask Type: Nasal mask
Mask Make & Model: Most recent: Wisp, Pilairo, Mirage Vista
Humidifier: ResMed S9 Autoset
CPAP Pressure: 17-20
CPAP Software: SleepyHead

Other Comments:

Sex: Male
Location: USA 97217

Post: #8
RE: Newbie - 2 nights
(03-24-2013 12:39 PM)okiegal61 Wrote:  ... And I will tell them about my mask problems. mainly pain in the top bridge of my nose. but the leakage is ok, It works, other that that red mark that hurts, and wont go away.

First, don't be afraid to try a different masks. Most places let you try different masks at no charge. I'm in my ninth mask, so rest assured that if you need to change masks you are not unusual.

You might also try a liner to see if it helps with the sore spot. The two most popular are RemZzz and Quietus. You can go to their web sites to see what the liners look like, then make your own out of an old t-shirt.
03-24-2013 06:43 PM
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okiegal61 Offline

Members

Posts: 19
Joined: Feb 2013

Machine: Phillips Respironics DS560 HS Remstar Auto A-Flex w/ HH
Mask Type: Other
Mask Make & Model: Wisp
Humidifier: Phillips
CPAP Pressure: 11
CPAP Software: SleepyHead

Other Comments: adjusting well --

Sex: Female
Location: Oklahoma

Post: #9
RE: Newbie - 2 nights
Thanks for all the great answers and responses. I have been reading around here, since my sleep study in February, so I have been learning things.

I will be downloading that software soon, and see if I can get that running.

So far so good !
03-24-2013 09:00 PM
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Sleepster Offline
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Moderators

Posts: 4,995
Joined: Feb 2012

Machine: ResMed AirCurve10 VAuto
Mask Type: Full face mask
Mask Make & Model: F&P Simplus
Humidifier: HumidAir and SlimLine Hose
CPAP Pressure: MaxI 13.6 | MinE 5.2 | PS 4.4
CPAP Software: ResScan SleepyHead

Other Comments: Diagnosed Nov 2011. Conquered aerophagia.

Sex: Male
Location: Houston, Texas

Post: #10
RE: Newbie - 2 nights
(03-24-2013 12:39 PM)okiegal61 Wrote:  I have been using my new machine for 2 nights. Although, I might have to try another mask, overall it is an improvement in my daily energy level.

That's very encouraging. It's also normal for the AHI to be high like that at first.

Quote:I think my machine is not one of the preferred models, but since I was a newbie at this, I figured, I would follow the drs orders, until I get more familiar with all of this. so will the sleepyhead program,work with my data card, to give me a detail day to day progress? or should I just keep looking at this on my own.

Your machine is top of the line. One of the best. SleepyHead will work, but after you install it you will have to download and install the 60 Series patch. I also recommend EncoreBasic software. It's good to have both.

Quote:I am supposed to be a call next week to see how it is all going. And I will tell them about my mask problems.

Don't wait. Call now. Masks are hard to fit, and if it's bothering you now it'll just get worse. The providers know this and make allowances for new patients to try different masks.

Full face masks are hard to fit. Nasal masks are easier. You can also ask about hybrid masks, they have a small nasal pillow that goes in your nostrils instead of over them so there's nothing to press on the bridge of your nose and bother you.

If you go to Apnea Board Supplier List http://www.apneaboard.com/forums/Thread-CPAP-Supplier-List
and look at the web site for Supplier #1 they have a nice lay out and you can see what the different masks look like.
[/quote]

Sleepster
Apnea Board Moderator
www.ApneaBoard.com


INFORMATION ON APNEA BOARD FORUMS OR ON APNEABOARD.COM SHOULD NOT BE CONSIDERED AS MEDICAL ADVICE. ALWAYS SEEK THE ADVICE OF A PHYSICIAN BEFORE SEEKING TREATMENT FOR MEDICAL CONDITIONS, INCLUDING SLEEP APNEA. INFORMATION POSTED ON THE APNEA BOARD WEB SITE AND FORUMS ARE PERSONAL OPINION ONLY AND NOT NECESSARILY A STATEMENT OF FACT.
03-24-2013 10:40 PM
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