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Newbie Getting Sleepier!
#1
I am new to this and admittedly, worried that my CPAP will be a $600 (copayment) wasted on a new door stop! I have used it consistently since my pickup last Friday 10/7/14, so I only have 7 days of My Air data. Initially my AHI dropped to 2 per hour, but has started climbing up to 4.9. I understand these are still low numbers, and this is so very new. I am concerned because I have noticed an increase in daytime sleepiness. I was NOT expecting a decrease so early, but a trend reversal is a bit alarming. It is important to note that I wake up feeling good and rested. I just "space out" around mid-morning, or lunch time. I checked my blood sugars so it's not that or my BP (have a BP arm cuff style monitor).

I raised these concerns via a call to the sleep clinic today. I spoke with an unfamiliar clinician who said it was too early and it takes 30 days to see an effect. When I stressed, I understood improvement takes time, but shouldn't deterioration also take time? She said I should call again if needed. I am significantly more sleepy, took a nap instead of walking at lunch yesterday, etc...

My questions for this community:

Any experience with trend reversals?
How long is long enough to adapt?
Any tips on what I should expect during my transition?

I noticed last night that it felt warm with the face mask and chin strap, so k turned the ceiling fan on. I am not giving up yet, I just don't know when to push, or when I am just being an over reactive nervous Nellie!
Thanks,
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#2
It would help to have something more to work from. What pressure(s) are you using? What mode (Autoset, autoset for her, CPAP)? What is the breakdown of your AHI?

Strongly recommend you download SleepyHead so you have more detailed information and can see any patterns where AHI is higher or lower during the night. Also, be sure to request your Setup Manual from the forum. http://www.apneaboard.com/adjust-cpap-pr...tup-manual

It's normal to still feel fatigue for a while after starting therapy but if your AHI is headed the wrong direction, we may be able to help you turn that around with more detail. Get the software and manual, and post a few more details.
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#3
Hi Dr Pearl. Welcome to the Apnea Board. I second Sleeprider's suggestions. In particular the part about using the Sleepyhead software. You will be able to get a much better handle on what is causing problems in your treatment when you (and we) can see the graphs made visible by the software. There are any number of variables that can reduce the efficacy of your treatment. These can include mask leaks, sleep position, pressure settings, having the correct machine and more. Once we can see the output of the software people with experiences like yours can begin making suggestions for solutions to problems just like yours based on their own experience.

Rich
Apnea Board Member RobySue has posted a Beginners Guide to Sleepyhead Software here:  http://www.apneaboard.com/wiki/index.php...SleepyHead

Download Sleepyhead
Organize your Sleepyhead Charts
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#4
I use a brand new ResMed 10 AutoSet for Her with the Heated Climatine hose. Everything is on the auto settings, including ramp up. I have an early December appointment for the sleep clinic to view the SD card data and make changes in my settings. (I will have my Thyroid removed in Mid-November and they said some settings could change as my throat changes). I turned the Humidity from 4 down to 3 after choking /snorting water from the Nasal Pillows (If I had not personally filled it with distilled water, I would have sworn it was Chlorine water from a swimming pool). I am returning to using the nasal spray Rx, so that should help. Waking up, I noticed that the CPAP is normally 11 to 11.x for readings. One night I thought it was at 13.??.
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#5
Don't wait until December to figure out what is going on. Install the Sleepyhead software and download the from your SD card now.

Rich
Apnea Board Member RobySue has posted a Beginners Guide to Sleepyhead Software here:  http://www.apneaboard.com/wiki/index.php...SleepyHead

Download Sleepyhead
Organize your Sleepyhead Charts
Post from Imgur


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#6
Okay, I will get the software, manuals etc and work on that over the weekend. I had initially requested an appointment when I phoned today. I read lots of forum comments about the SD card so I know this can be done without corrupting the data for diagnostic purposes.
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#7
Good going.

Rich
Apnea Board Member RobySue has posted a Beginners Guide to Sleepyhead Software here:  http://www.apneaboard.com/wiki/index.php...SleepyHead

Download Sleepyhead
Organize your Sleepyhead Charts
Post from Imgur


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#8
Hi DrPearl,
WELCOME! to the forum.!
I want to encourage you to stick with CPAP therapy. It takes some time to get used to it and/or notice improvements, so just stick with it, over some time, it does get better.
Hang in there for more responses to your post and good luck to you on your CPAP journey and with your upcoming appointment and surgery.
trish6hundred
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#9
Thanks so much, I am adding a few more nights of data before analyzing mine. I thought last night was my worst, but "MyAir" gave me 99 out of 100 pts total. I find the chin strap too hot, so slept without it. I woke up several times from painfully dry throat, and had to drink water each time. Tonight I will try lining the strap with paper towels, so two more nights of data. I am guessing 10 consecutive nights of data should provide some direction. Is that enough time, or am I getting ahead of myself.

V/r,
DrP
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#10
I think at this point you have some meaningful trends. What is your leak rate on Sleepyhead? Your comments make me thing that could be an issue.
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