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Newbie Getting Sleepier!
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DrPearl Offline

Members

Posts: 7
Joined: Oct 2016

Machine: ResMed 10 Airsesnse Auto for Her
Mask Type: Nasal pillows
Mask Make & Model: ResMed Swift Fx Bella
Humidifier: Heated Climateline within ResMed CPAP
CPAP Pressure: TBD Newly Diagnosed
CPAP Software: Other Software

Other Comments: Using ResMed MyAir site

Sex: Female
Location: Maryland, USA (near DC)

Post: #1
Newbie Getting Sleepier!
I am new to this and admittedly, worried that my CPAP will be a $600 (copayment) wasted on a new door stop! I have used it consistently since my pickup last Friday 10/7/14, so I only have 7 days of My Air data. Initially my AHI dropped to 2 per hour, but has started climbing up to 4.9. I understand these are still low numbers, and this is so very new. I am concerned because I have noticed an increase in daytime sleepiness. I was NOT expecting a decrease so early, but a trend reversal is a bit alarming. It is important to note that I wake up feeling good and rested. I just "space out" around mid-morning, or lunch time. I checked my blood sugars so it's not that or my BP (have a BP arm cuff style monitor).

I raised these concerns via a call to the sleep clinic today. I spoke with an unfamiliar clinician who said it was too early and it takes 30 days to see an effect. When I stressed, I understood improvement takes time, but shouldn't deterioration also take time? She said I should call again if needed. I am significantly more sleepy, took a nap instead of walking at lunch yesterday, etc...

My questions for this community:

Any experience with trend reversals?
How long is long enough to adapt?
Any tips on what I should expect during my transition?

I noticed last night that it felt warm with the face mask and chin strap, so k turned the ceiling fan on. I am not giving up yet, I just don't know when to push, or when I am just being an over reactive nervous Nellie!
Thanks,
10-14-2016 10:08 AM
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Sleeprider Online
Wiki Editor
Advisory Members

Posts: 3,388
Joined: Dec 2014

Machine: Resmed Aircurve 10 Vauto
Mask Type: Nasal pillows
Mask Make & Model: Resmed Airfit P10
Humidifier: Resmed Climateline
CPAP Pressure: Auto Bilevel 18/9, PS 3
CPAP Software: ResScan SleepyHead EncoreBasic

Other Comments:

Sex: Male
Location: Where they make Respironics

Post: #2
RE: Newbie Getting Sleepier!
It would help to have something more to work from. What pressure(s) are you using? What mode (Autoset, autoset for her, CPAP)? What is the breakdown of your AHI?

Strongly recommend you download SleepyHead so you have more detailed information and can see any patterns where AHI is higher or lower during the night. Also, be sure to request your Setup Manual from the forum. http://www.apneaboard.com/adjust-cpap-pr...tup-manual

It's normal to still feel fatigue for a while after starting therapy but if your AHI is headed the wrong direction, we may be able to help you turn that around with more detail. Get the software and manual, and post a few more details.

______________________________________________
Organize your SleepyHead Data
Post your SleepyHead Data from Imgur
Robysue's Beginner's Guide to Sleepyhead
10-14-2016 10:25 AM
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richb Online

Advisory Members

Posts: 538
Joined: Jun 2015

Machine: Resmed AirCurve 10 ASV
Mask Type: Nasal mask
Mask Make & Model: ResMed Mirage FX
Humidifier: Built in
CPAP Pressure: Epap 6 Ipap 8 Auto ASV
CPAP Software: ResScan SleepyHead

Other Comments: Idiopathic Central Apnea

Sex: Male
Location: Vermont

Post: #3
RE: Newbie Getting Sleepier!
Hi Dr Pearl. Welcome to the Apnea Board. I second Sleeprider's suggestions. In particular the part about using the Sleepyhead software. You will be able to get a much better handle on what is causing problems in your treatment when you (and we) can see the graphs made visible by the software. There are any number of variables that can reduce the efficacy of your treatment. These can include mask leaks, sleep position, pressure settings, having the correct machine and more. Once we can see the output of the software people with experiences like yours can begin making suggestions for solutions to problems just like yours based on their own experience.

Rich

Apnea Board Member RobySue has posted a Beginners Guide to Sleepyhead Software here: http://www.apneaboard.com/wiki/index.php...SleepyHead
(This post was last modified: 10-14-2016 11:01 AM by richb.)
10-14-2016 11:01 AM
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DrPearl Offline

Members

Posts: 7
Joined: Oct 2016

Machine: ResMed 10 Airsesnse Auto for Her
Mask Type: Nasal pillows
Mask Make & Model: ResMed Swift Fx Bella
Humidifier: Heated Climateline within ResMed CPAP
CPAP Pressure: TBD Newly Diagnosed
CPAP Software: Other Software

Other Comments: Using ResMed MyAir site

Sex: Female
Location: Maryland, USA (near DC)

Post: #4
RE: Newbie Getting Sleepier!
I use a brand new ResMed 10 AutoSet for Her with the Heated Climatine hose. Everything is on the auto settings, including ramp up. I have an early December appointment for the sleep clinic to view the SD card data and make changes in my settings. (I will have my Thyroid removed in Mid-November and they said some settings could change as my throat changes). I turned the Humidity from 4 down to 3 after choking /snorting water from the Nasal Pillows (If I had not personally filled it with distilled water, I would have sworn it was Chlorine water from a swimming pool). I am returning to using the nasal spray Rx, so that should help. Waking up, I noticed that the CPAP is normally 11 to 11.x for readings. One night I thought it was at 13.??.
10-14-2016 11:20 AM
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richb Online

Advisory Members

Posts: 538
Joined: Jun 2015

Machine: Resmed AirCurve 10 ASV
Mask Type: Nasal mask
Mask Make & Model: ResMed Mirage FX
Humidifier: Built in
CPAP Pressure: Epap 6 Ipap 8 Auto ASV
CPAP Software: ResScan SleepyHead

Other Comments: Idiopathic Central Apnea

Sex: Male
Location: Vermont

Post: #5
RE: Newbie Getting Sleepier!
Don't wait until December to figure out what is going on. Install the Sleepyhead software and download the from your SD card now.

Rich

Apnea Board Member RobySue has posted a Beginners Guide to Sleepyhead Software here: http://www.apneaboard.com/wiki/index.php...SleepyHead
10-14-2016 11:39 AM
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DrPearl Offline

Members

Posts: 7
Joined: Oct 2016

Machine: ResMed 10 Airsesnse Auto for Her
Mask Type: Nasal pillows
Mask Make & Model: ResMed Swift Fx Bella
Humidifier: Heated Climateline within ResMed CPAP
CPAP Pressure: TBD Newly Diagnosed
CPAP Software: Other Software

Other Comments: Using ResMed MyAir site

Sex: Female
Location: Maryland, USA (near DC)

Post: #6
RE: Newbie Getting Sleepier!
Okay, I will get the software, manuals etc and work on that over the weekend. I had initially requested an appointment when I phoned today. I read lots of forum comments about the SD card so I know this can be done without corrupting the data for diagnostic purposes.
10-14-2016 11:45 AM
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richb Online

Advisory Members

Posts: 538
Joined: Jun 2015

Machine: Resmed AirCurve 10 ASV
Mask Type: Nasal mask
Mask Make & Model: ResMed Mirage FX
Humidifier: Built in
CPAP Pressure: Epap 6 Ipap 8 Auto ASV
CPAP Software: ResScan SleepyHead

Other Comments: Idiopathic Central Apnea

Sex: Male
Location: Vermont

Post: #7
RE: Newbie Getting Sleepier!
Good going.

Rich

Apnea Board Member RobySue has posted a Beginners Guide to Sleepyhead Software here: http://www.apneaboard.com/wiki/index.php...SleepyHead
10-14-2016 01:01 PM
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trish6hundred Online

Advisory Members

Posts: 6,452
Joined: May 2012

Machine: Resmed S9 AutoSet for Her
Mask Type: Full face mask
Mask Make & Model: Fisher & Paykel Simplus
Humidifier: H5i Heated Humidifier
CPAP Pressure: 10 - 7-20 Cm H2O
CPAP Software: Not using software

Other Comments: I started CPAP in 2008. Totally blind since birth.

Sex: Female
Location: Missouri, USA

Post: #8
RE: Newbie Getting Sleepier!
Hi DrPearl,
WELCOME! to the forum.!
I want to encourage you to stick with CPAP therapy. It takes some time to get used to it and/or notice improvements, so just stick with it, over some time, it does get better.
Hang in there for more responses to your post and good luck to you on your CPAP journey and with your upcoming appointment and surgery.

trish6hundred
10-14-2016 05:37 PM
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DrPearl Offline

Members

Posts: 7
Joined: Oct 2016

Machine: ResMed 10 Airsesnse Auto for Her
Mask Type: Nasal pillows
Mask Make & Model: ResMed Swift Fx Bella
Humidifier: Heated Climateline within ResMed CPAP
CPAP Pressure: TBD Newly Diagnosed
CPAP Software: Other Software

Other Comments: Using ResMed MyAir site

Sex: Female
Location: Maryland, USA (near DC)

Post: #9
RE: Newbie Getting Sleepier!
Thanks so much, I am adding a few more nights of data before analyzing mine. I thought last night was my worst, but "MyAir" gave me 99 out of 100 pts total. I find the chin strap too hot, so slept without it. I woke up several times from painfully dry throat, and had to drink water each time. Tonight I will try lining the strap with paper towels, so two more nights of data. I am guessing 10 consecutive nights of data should provide some direction. Is that enough time, or am I getting ahead of myself.

V/r,
DrP
10-15-2016 09:51 PM
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Sleeprider Online
Wiki Editor
Advisory Members

Posts: 3,388
Joined: Dec 2014

Machine: Resmed Aircurve 10 Vauto
Mask Type: Nasal pillows
Mask Make & Model: Resmed Airfit P10
Humidifier: Resmed Climateline
CPAP Pressure: Auto Bilevel 18/9, PS 3
CPAP Software: ResScan SleepyHead EncoreBasic

Other Comments:

Sex: Male
Location: Where they make Respironics

Post: #10
RE: Newbie Getting Sleepier!
I think at this point you have some meaningful trends. What is your leak rate on Sleepyhead? Your comments make me thing that could be an issue.

______________________________________________
Organize your SleepyHead Data
Post your SleepyHead Data from Imgur
Robysue's Beginner's Guide to Sleepyhead
10-15-2016 09:57 PM
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