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Newbie. Is it too soon ?
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nutteetart Offline

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Posts: 5
Joined: May 2014

Machine: remstar auto aflex
Mask Type: Nasal pillows
Mask Make & Model: resmed
Humidifier: none
CPAP Pressure: unsure
CPAP Software: Other Software

Other Comments:

Sex: Female
Location: uk

Post: #1
Newbie. Is it too soon ?
Really need some help.
Having had strange eye symptoms with anxiety, weight gain and fatigue, my opthal suspected osa could be the link. My subsequent study proved I had moderate OSA with AHI of 25 so the prospect of CPAP gave me hope.
I have been on CPAP for 4 weeks although week one was a disaster on a full face mask so i changed to pillows which i get on with better. I'm still not sleeping great though. In fact i have only had 1 really good night which made me realise just how long its been since i slept that deeply. Maybe years!
So my question....... why do i still feel absolutely awful? No one on any forum has my eye issues so i already feel a no hoper yet i had high hopes that in general there would be some improvement.
Is it still too early to tell? Is sleep debt a possibility?
Feeling lost and lonely..... and tired
05-25-2014 05:03 AM
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Tez62 Offline

Monitors

Posts: 837
Joined: Feb 2013

Machine: Resmed S9 Autoset
Mask Type: Full face mask
Mask Make & Model: Resmed Mirage Quattro
Humidifier: Resmed
CPAP Pressure: 5-15
CPAP Software: SleepyHead

Other Comments:

Sex: Male
Location: Melbourne, Australia

Post: #2
RE: Newbie. Is it too soon ?
Nutteetart, welcome, I'm not sure about your eyes but you need to be positive and be patient, I know it's hard. We are all different so some take longer that others to start to feel the effects. For me, it took 3 - 6 months but after feeling so bad for years I was positive CPAP would work, it was my last resort.
05-25-2014 06:27 AM
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zonk Offline

Advisory Members

Posts: 7,908
Joined: Feb 2012

Machine: A10 AutoSet
Mask Type: Nasal mask
Mask Make & Model: Activa LT
Humidifier: Integrated /ClimateLineAir
CPAP Pressure: 9/13
CPAP Software: ResScan

Other Comments: CPAP since Nov 2010

Sex: Male
Location: Australia

Post: #3
RE: Newbie. Is it too soon ?
Have a check up with the eye doctor. The only eye issue when mask leak into your eyes but you should have no such problem with nasal pillows

When the followup with the sleep doctor?
First of all, tells us the exact make and model of your machine and pressure settings. Machine in profile 'resmed auto aflex' does not exist (a bit of ResMed and bit of Respironcis). Some of us, including myself cannot use CPAP without humidifier, your profie shows none
Some machines report efficacy data such as AHI, leak, etc ... and with the software, we might be able to figure whats going on (if CPAP related)
05-25-2014 07:07 AM
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nutteetart Offline

Members

Posts: 5
Joined: May 2014

Machine: remstar auto aflex
Mask Type: Nasal pillows
Mask Make & Model: resmed
Humidifier: none
CPAP Pressure: unsure
CPAP Software: Other Software

Other Comments:

Sex: Female
Location: uk

Post: #4
RE: Newbie. Is it too soon ?
Thank you for your replies.
My machine is respironics but i cant see anything else on it than i have told you. Apparently this will be changed when i go back to clinic as this will decide my pressure.
It appears to settle on 8 when i have looked. The machine records detail but i have not been shown how to retrieve it but the clinic said my apneas were now 0.2. It showed no leaks which surprised me as thats all my face mask did!
As far as eyes are concerned there can apparently be quite a few problems associated with osa but no one on the internet appears to share or have knowledge of my symptoms
I cant find any help. I cant see opthal or clinic consultants for 4 more weeks. Its a long time to not function. Very depressing.
i will continue my cpap therapy and try to be positive.
Thank you
05-25-2014 07:59 AM
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DanaLow62 Offline

New Members

Posts: 2
Joined: May 2014

Machine: ResMed S9 Auto
Mask Type: Full face mask
Mask Make & Model: ResMed Quattro Air
Humidifier: S9™ Series H5i™ Heated Humidifier with Climate Control
CPAP Pressure: Auto CPAP
CPAP Software: Not using software

Other Comments:

Sex: Male
Location: PA

Post: #5
My Ramp is set to OFF?
My Ramp is set to off on my cpap s9 auto set.. is this right?
05-25-2014 08:32 AM
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trish6hundred Offline

Advisory Members

Posts: 6,424
Joined: May 2012

Machine: Resmed S9 AutoSet for Her
Mask Type: Full face mask
Mask Make & Model: Fisher & Paykel Simplus
Humidifier: H5i Heated Humidifier
CPAP Pressure: 10 - 7-20 Cm H2O
CPAP Software: Not using software

Other Comments: I started CPAP in 2008. Totally blind since birth.

Sex: Female
Location: Missouri, USA

Post: #6
RE: Newbie. Is it too soon ?
Hi nutteetart,
WELCOME! to the forum.!
I'm sorry you are having a rough time right now but I encourage you to stick with CPAP.
CPAP therapy can take some getting used to but it does get better over time.
You might try to settup during the evening and wear your mask and use the machine as you read or watch tv, to help your body get used to it.
Hang in there for more suggestions and best of luck to you with your CPAP therapy.

trish6hundred
05-25-2014 09:17 AM
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trish6hundred Offline

Advisory Members

Posts: 6,424
Joined: May 2012

Machine: Resmed S9 AutoSet for Her
Mask Type: Full face mask
Mask Make & Model: Fisher & Paykel Simplus
Humidifier: H5i Heated Humidifier
CPAP Pressure: 10 - 7-20 Cm H2O
CPAP Software: Not using software

Other Comments: I started CPAP in 2008. Totally blind since birth.

Sex: Female
Location: Missouri, USA

Post: #7
RE: My Ramp is set to OFF?
(05-25-2014 08:32 AM)DanaLow62 Wrote:  My Ramp is set to off on my cpap s9 auto set.. is this right?
Hi DanaLow62,
WELCOME! to the forum.!
Ramp is used to help people get used to the therapy, it's a comfort feature. Ramp is set to gradually get you to your pressure if it's on.
Once people get used to their therapy, they usually turn ramp off.
Hang in there for a better explanation of ramp than I gave you and more suggestions.
Best of luck to you with your CPAP therapy.

trish6hundred
05-25-2014 09:31 AM
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PaytonA Online
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Monitors

Posts: 3,000
Joined: Dec 2013

Machine: ResMed S9 VPAP Auto
Mask Type: Full face mask
Mask Make & Model: Resmed Mirage Quattro
Humidifier: H5i(distilled-top up)
CPAP Pressure: VAuto MinE14.0 MaxI 20.6 PS4.0
CPAP Software: ResScan SleepyHead

Other Comments:

Sex: Male
Location: Orange County,California

Post: #8
RE: Newbie. Is it too soon ?
(05-25-2014 07:59 AM)nutteetart Wrote:  As far as eyes are concerned there can apparently be quite a few problems associated with osa but no one on the internet appears to share or have knowledge of my symptoms

What are your eye symptoms?

Best Regards,

PaytonA
05-25-2014 10:19 AM
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JimZZZ Offline

Advisory Members

Posts: 370
Joined: Dec 2013

Machine: ResMed S9 AutoSet
Mask Type: Full face mask
Mask Make & Model: Fisher & Paykel Simplus
Humidifier: ResMed H5i (not using)
CPAP Pressure: 9 - 14
CPAP Software: ResScan SleepyHead

Other Comments: CareFusion PureSom Ultra Chinstrap

Sex: Male
Location: Western North Carolina

Post: #9
RE: Newbie. Is it too soon ?
(05-25-2014 05:03 AM)nutteetart Wrote:  Really need some help.

You have come to the right place for help and support. If you give the forum more detailed information, you will increase the probability of getting information from folks with the same issues you are experiencing. I'm not sure exactly what device you are using but if it is fully data capable, you could download Sleepyhead software to your PC and get detailed data on the effectiveness of your therapy.

(05-25-2014 05:03 AM)nutteetart Wrote:  Having had strange eye symptoms

I have had eye problems but have no reason to believe they are related to APNEA. After multiple retina detachments I have central blindness in one eye and extreme astigmatism (from surgery/buckle) in the other. What is your eye issue?

(05-25-2014 05:03 AM)nutteetart Wrote:  In fact i have only had 1 really good night which made me realise just how long its been since i slept that deeply. Maybe years!

Take hope from this one good night and continue the quest to get your therapy optimized. It takes a while but eventually you may sleep well most nights. I am 6 months on CPAP and have finally settled on a mask I like and a pressure range that works for me. Hang in...
Welcome
05-25-2014 10:30 AM
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nutteetart Offline

Members

Posts: 5
Joined: May 2014

Machine: remstar auto aflex
Mask Type: Nasal pillows
Mask Make & Model: resmed
Humidifier: none
CPAP Pressure: unsure
CPAP Software: Other Software

Other Comments:

Sex: Female
Location: uk

Post: #10
RE: Newbie. Is it too soon ?
Thank you for your kind responses.
My eye issues started 3 yrs ago when i noticed i was squinting a lot and they were dry and blurry. Having had anxiety issues i thought it was all related but 1 gp, 3 opticians, 3 opthalmologists and a hysterectomy later my anxiety problems are much better but my eyes are terrible.
At this moment my left eye is sore and burning and is squinty and my right eye is swollen and dry. I feel disoriented because i cant see straight and my neck, shoulders and base of my skull all ache i presume from holding myself weirdly and straining and when they are this bad it feels like they dont track properly and words jump about on a page. On top of that... i have no energy.
A medhelp forum suggested sjogrens syndrome but its only my eyes that are dry.
The experts seem baffled but the opthal was right to ask about apnea. All these years i thought i was waking through panic. This wasnt the case.
I believe the eye probs associated to osa are diabetic retinopathy, a neuropathy thing, glaucoma and papilledema or something and my opthal suspected floppy eyelid syndrome. I dont think i have this though. I have been wearing an eyemask as well as my breathing mask. Very attractive but no change Sad
I have a feeling none of you will have heard of this. My sleep clinic havent either but I am seriously worried.
I cant read or watch tv or do anything for long and quite understandably i am quite depressed now.
Every night i go to bed hopeful i will start to improve then i plummet in the morning when i still feel awful.
I will check out sleepyhead when my eyes let me study. Thank you for your support. X
05-25-2014 11:40 AM
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