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Newbie Needs Help - Dreamstation 1030X
#21
RE: Newbie Needs Help - Dreamstation 1030X
Let me add this, you will need to increase your complaint skills. This path will try your patience regardless, but more effective complaints move you down the tracks faster.
Dave
INFORMATION ON APNEA BOARD FORUMS OR ON APNEABOARD.COM SHOULD NOT BE CONSIDERED AS MEDICAL ADVICE. ALWAYS SEEK THE ADVICE OF A PHYSICIAN BEFORE SEEKING TREATMENT FOR MEDICAL CONDITIONS, INCLUDING SLEEP APNEA. INFORMATION POSTED ON THE APNEA BOARD WEB SITE AND FORUMS ARE PERSONAL OPINION ONLY AND NOT NECESSARILY A STATEMENT OF FACT.

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#22
RE: Newbie Needs Help - Dreamstation 1030X
Thanks for the "listen to my complaint baseball bat" SarcasticDave94, I really need that. I'm a pushover. I don't argue with the doctor, I just accept what he says and deal with it. However, this is basically life or death for me so I'm determined to stand my ground and put it all out there this time. I'm going in there determined.
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#23
RE: Newbie Needs Help - Dreamstation 1030X
You also have information you didn't have before to argue that the ST is not event the manufacturer's choice of therapy for you. I'm sure you can move the ball forward, and if not, new doctor. Understanding complex and central apnea and effective therapy methods is much farther down the road than you were before.
Sleeprider
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INFORMATION ON APNEA BOARD FORUMS OR ON APNEABOARD.COM SHOULD NOT BE CONSIDERED AS MEDICAL ADVICE. ALWAYS SEEK THE ADVICE OF A PHYSICIAN BEFORE SEEKING TREATMENT FOR MEDICAL CONDITIONS, INCLUDING SLEEP APNEA. INFORMATION POSTED ON THE APNEA BOARD WEB SITE AND FORUMS ARE PERSONAL OPINION ONLY AND NOT NECESSARILY A STATEMENT OF FACT.
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#24
RE: Newbie Needs Help - Dreamstation 1030X
I just got back from my appointment, it didn't go well at all. I explained to him how the first week on ST Mode I was experiencing very troubling side effects and I switched it over to CPAP mode. He was upset that I changed the settings myself. Almost like that had never happened before. He asked how I knew how to do that, I said it's in the manual. He said it could be a compliance issue and if I did it anymore that I can't be his patient. The only compliance issue I was ever made aware of was usage, but he said it's basically changing the prescription. I told him I'm fighting for my life, I think he felt that hyperbolic. 

He said since I changed the mode and pressure that the current data was useless because you can't really judge it because its different modes and pressures. I reiterated that the machine was not working for me. It's been almost a month now! After looking at some printouts, he said let's try 11. I said I've already done 10, 11, 12, 13, 14, 15, 16, 17.. it's not working for me.

I told him I feel like I'm dying, he asked if I had any fatigue, I looked him dead in the eyes and said that's all I have. I've gained 7 pounds this month, WTF!? He asked me what I want to do and I said switch to ASV. At that point, he inquired about my expertise and I explained I've done a great deal of research, my dad has a resmed and the sleep study already showed that this machine can not treat my complex apnea properly.

"I want to switch to ASV" - "That's what you want?" - "YES"

"Well, let's stick with this one for 2 weeks. Do not change any settings and we'll have a follow up in 2 weeks." I think he could tell that I'm quite miserable. Hopefully 2 weeks from now when he see's things haven't improved that he will switch me. He's letting me stay off ST and continue with CPAP effectively rendering his initial prescription rubbish. I told him I feel worse now than before I even started. He assured me, I am not dying. 

He gave me detailed printouts of my last 7 days and a in depth summary of the last month.
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#25
RE: Newbie Needs Help - Dreamstation 1030X
Ask him what his experience and expertise is in treating complex and central apnea patients. While he thinks he threatened you with "you can't be my patient', the appropriate response should be, "I may not want to be your patient unless you can help." Two weeks. Give it 4 days and call him with your results. It's time to move on. If it doesn't work in 4 days, it won't change.
Sleeprider
Apnea Board Moderator
www.ApneaBoard.com

____________________________________________
Download OSCAR Software
Soft Cervical Collar
Optimizing Therapy
Organize your OSCAR Charts
Attaching Files

How To Deal With Equipment Supplier


INFORMATION ON APNEA BOARD FORUMS OR ON APNEABOARD.COM SHOULD NOT BE CONSIDERED AS MEDICAL ADVICE. ALWAYS SEEK THE ADVICE OF A PHYSICIAN BEFORE SEEKING TREATMENT FOR MEDICAL CONDITIONS, INCLUDING SLEEP APNEA. INFORMATION POSTED ON THE APNEA BOARD WEB SITE AND FORUMS ARE PERSONAL OPINION ONLY AND NOT NECESSARILY A STATEMENT OF FACT.
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#26
RE: Newbie Needs Help - Dreamstation 1030X
I would love to do that but he is very close to where I live. The convenience of him is worth waiting. I dont have the energy to make the drive to the next closest guy, let alone jump thru hurdles with my insurance company. This past week has been more of the same, still extreme tiredness and fatigue, etc. The only data I have access to is DreamMapper by Phillips which doesn't give much at all.

It shows my AHI is between 4-8.
Clear Airway Apneas: 10-20 (per 6-8 hours)
Obstructive Apneas: 10-20 (per 6-8 hours)
Hypopneas 15-25 (per 6-8 hours)

I wish Oscar could read this data. All it will show is the flow rate, insp and exp time. I attached one, it looks like hieroglyphics to me.


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