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Newbie Who Needs Help
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sleepyntx Offline

New Members

Posts: 2
Joined: Sep 2012

Machine: Phillips Respironics REMstar Auto A-Flex
Mask Type: Nasal mask
Mask Make & Model:
Humidifier: System One Heated Humidifier
CPAP Pressure: 6
CPAP Software: ResScan

Other Comments:

Sex: Female
Location:

Post: #1
Newbie Who Needs Help
I started using an A-pap last Dec., I don't remember the pressure range, but I felt I wasn't getting enough air, so doc changed to C-pap with a pressure setting of 6. I've tried many masks, using nasal mask now, but noises from the mask leaks and my mouth opening were waking my husband. I've asked him to awaken me when that happens, so neither of us are getting any sleep.

I've tightened my mask to stop the leaks, but strap marks show on my face until noon. Tried chin strap to keep mouth closed, but it slips off, so now taping my mouth, which is creating a new wrinkle.

Shouldn't the doctor, respiratory therapist and I have worked this out by now, it's been 9 months? The doc gives one change/prescription per visit ($45 each time) and this is costly and slow. What else should I be asking or trying?
09-12-2012 09:41 PM
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trish6hundred Offline

Advisory Members

Posts: 6,430
Joined: May 2012

Machine: Resmed S9 AutoSet for Her
Mask Type: Full face mask
Mask Make & Model: Fisher & Paykel Simplus
Humidifier: H5i Heated Humidifier
CPAP Pressure: 10 - 7-20 Cm H2O
CPAP Software: Not using software

Other Comments: I started CPAP in 2008. Totally blind since birth.

Sex: Female
Location: Missouri, USA

Post: #2
RE: Newbie Who Needs Help
Hi sleepyntx, First, WELCOME! to the forum.! If you can't work it out with the doc you are going to, you might think about finding a new one. You really shouldn't tape your mouth shut, that is a very dangerous thing to do. Maybe you could try a different style of chinstrap as there are a few different types. I'm sorry you are having such a rough time right now with CPAP therapy. Hang in there and someone will have more suggestions. Best of luck.

trish6hundred
09-12-2012 09:53 PM
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zonk Offline

Advisory Members

Posts: 7,908
Joined: Feb 2012

Machine: A10 AutoSet
Mask Type: Nasal mask
Mask Make & Model: Activa LT
Humidifier: Integrated /ClimateLineAir
CPAP Pressure: 9/13
CPAP Software: ResScan

Other Comments: CPAP since Nov 2010

Sex: Male
Location: Australia

Post: #3
RE: Newbie Who Needs Help
What mask are you using?
How old is the cushion, are you washing it each morning with soap water and it does help to wash face before put the mask on
Its counter productive to over-tighten the mask
The cushion should fill with air to inflate and seal on the face
Chinstrap can help with minimizing mouth leaks and shouldn't be tight either
Fit the mask while the machine is running at the set pressure and turn Ramp off ... You don,t need at such low pressure

Here is a good mask fit guide written by jeffy1958
http://www.apneaboard.com/forums/Thread-...GUARANTEED

Edit: check the machine set at the correct pressure (6)
(This post was last modified: 09-12-2012 10:27 PM by zonk.)
09-12-2012 10:18 PM
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zonk Offline

Advisory Members

Posts: 7,908
Joined: Feb 2012

Machine: A10 AutoSet
Mask Type: Nasal mask
Mask Make & Model: Activa LT
Humidifier: Integrated /ClimateLineAir
CPAP Pressure: 9/13
CPAP Software: ResScan

Other Comments: CPAP since Nov 2010

Sex: Male
Location: Australia

Post: #4
RE: Newbie Who Needs Help
You may request the manual for your machine via Email (scroll down to section three)
http://www.apneaboard.com/adjust-cpap-pr...tup-manual

PRS1 setup (pictures and video)
http://www.apneaboard.com/pr-system-one-...structions

PRS1 60 series video (Heated Hose)
http://vimeo.com/41393273
09-12-2012 10:35 PM
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PaulaO2 Offline
Wiki Editor
Moderators

Posts: 8,062
Joined: Feb 2012

Machine: S9 Autoset
Mask Type: Full face mask
Mask Make & Model: F&P Simplus
Humidifier: H5i
CPAP Pressure: 14-20
CPAP Software: SleepyHead

Other Comments: Ehlers-Danlos Syndrome, Hypermobility Type; chronic sarcasm

Sex: Undisclosed
Location: western NC, USA

Post: #5
RE: Newbie Who Needs Help
Over tightening the mask will actually create more leaks.

Your machine is data capable. Ever considered checking out the data?

Like Trish said, there's several different kinds of chin straps available. Check out some of the online suppliers on our Supplier's list. My opinion is that taping lips is just too dangerous. A chin strap will still allow you to open your mouth if you need to.

It is not uncommon for folks to still be struggling. The mask is the most important bit. If it leaks, doesn't fit, your the person hates it, then the machine can be the best on the market and be useless.

In terms of pressure, 6 is rather low and I'm not surprised you were feeling like you didn't get enough air. Instead of turning your machine into a dumb one, it would seem turning up the lower number would have been a better option. APAPs work well because they adjust the pressure to what you need. You set a low (telling the machine do not go lower than X) and a high (and don't go over X) then it uses that range to keep your airway open. If all is well, it will be at the lowest setting possible to keep the airway open. If you have an event, then it increases the pressure in order to re-open the airway.

As for the $45, that's downright rude. $45 to do what? Push some buttons and turn a knob? Download the user manual and do it yourself. Then treat your husband out to dinner with the $45 you just saved.

PaulaO2
Apnea Board Moderator
www.ApneaBoard.com


Breathe deeply and count to zen.

INFORMATION ON APNEA BOARD FORUMS OR ON APNEABOARD.COM SHOULD NOT BE CONSIDERED AS MEDICAL ADVICE. ALWAYS SEEK THE ADVICE OF A PHYSICIAN BEFORE SEEKING TREATMENT FOR MEDICAL CONDITIONS, INCLUDING SLEEP APNEA. INFORMATION POSTED ON THE APNEA BOARD WEB SITE AND FORUMS ARE PERSONAL OPINION ONLY AND NOT NECESSARILY A STATEMENT OF FACT.
09-12-2012 11:12 PM
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samer sultan al ajami Offline

New Members

Posts: 3
Joined: Sep 2012

Machine: resmed s9 autoset
Mask Type: Nasal mask
Mask Make & Model:
Humidifier: none
CPAP Pressure: 4-20
CPAP Software: ResScan SleepyHead

Other Comments:

Sex: Male
Location:

Post: #6
RE: Newbie Who Needs Help
i had the same problem, but really it was solved by using the proper chin trap, there is one type that has four strips around the head and specifically disigned to hold the whole chin and push it backward, it was given to me by my dr. without any name on it. it made a difference, on the other hand tightening the mask do not make any change, and even sometimes it worsen the case. try to look for types of chin traps over the internet maybe you can find this trap i am talking about, it color is purple


(09-12-2012 09:41 PM)sleepyntx Wrote:  I started using an A-pap last Dec., I don't remember the pressure range, but I felt I wasn't getting enough air, so doc changed to C-pap with a pressure setting of 6. I've tried many masks, using nasal mask now, but noises from the mask leaks and my mouth opening were waking my husband. I've asked him to awaken me when that happens, so neither of us are getting any sleep.

I've tightened my mask to stop the leaks, but strap marks show on my face until noon. Tried chin strap to keep mouth closed, but it slips off, so now taping my mouth, which is creating a new wrinkle.

Shouldn't the doctor, respiratory therapist and I have worked this out by now, it's been 9 months? The doc gives one change/prescription per visit ($45 each time) and this is costly and slow. What else should I be asking or trying?
09-13-2012 12:49 AM
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Moriarty Offline

Advisory Members

Posts: 270
Joined: Jul 2012

Machine: Respironics REMStar 50 Series Auto
Mask Type: Nasal pillows
Mask Make & Model: Fisher & Pakel Pilairo Q
Humidifier: Respironics System One
CPAP Pressure: 8.5-20 (average 9.4)
CPAP Software: SleepyHead

Other Comments: Image above is my CPAP machine...

Sex: Male
Location: Toowoomba - Qld - Australia

Post: #7
RE: Newbie Who Needs Help
(09-12-2012 09:41 PM)sleepyntx Wrote:  I've tightened my mask to stop the leaks, but strap marks show on my face until noon. Tried chin strap to keep mouth closed, but it slips off, so now taping my mouth, which is creating a new wrinkle.

I know it sounds counter-intuitive but I found that with my mask that increasing the tightness of the straps actually made the leaks worse.

It is unfortunately true however that in almost everything to do with masks what is great for one individual can be quite hopeless for another.
09-13-2012 05:15 AM
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sleepyntx Offline

New Members

Posts: 2
Joined: Sep 2012

Machine: Phillips Respironics REMstar Auto A-Flex
Mask Type: Nasal mask
Mask Make & Model:
Humidifier: System One Heated Humidifier
CPAP Pressure: 6
CPAP Software: ResScan

Other Comments:

Sex: Female
Location:

Post: #8
RE: Newbie Who Needs Help
Thank you everyone. Your comments were very welcome. I stopped using the tape a couple of night ago and started using the chin strap again. My therapist showed me the one that has 4 straps and fits around the head, but that seemed like too many straps to me. I will check online for other styles.

My nasal mask is only 2 wks old. I wash it every morning. Sometimes I'm too tired to wash my face (I know how horrible that it) but it's the truth. I will watch to see if that makes it worse. I did try turning the air on before putting on the headgear and felt like it wasn't fitting as tightly. It actually felt very comfortable and only leaked a tiny bit when I would turn over. I did still have strap marks for several hours after arriving at work, they seemed as bad as ever.

Just want to tell you all, the support I feel from you, gives me the added desire to continue this battle. Thanks!!
09-13-2012 07:57 PM
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trish6hundred Offline

Advisory Members

Posts: 6,430
Joined: May 2012

Machine: Resmed S9 AutoSet for Her
Mask Type: Full face mask
Mask Make & Model: Fisher & Paykel Simplus
Humidifier: H5i Heated Humidifier
CPAP Pressure: 10 - 7-20 Cm H2O
CPAP Software: Not using software

Other Comments: I started CPAP in 2008. Totally blind since birth.

Sex: Female
Location: Missouri, USA

Post: #9
RE: Newbie Who Needs Help
Hi sleepyntx, It's GREAT to hear, that you have stopped using tape and I hope it works out with the new chinstrap. Best of luck and keep us posted.

trish6hundred
09-13-2012 08:14 PM
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vsheline Offline

Advisory Members

Posts: 1,907
Joined: Jul 2012

Machine: S9 VPAP Adapt (USA Model# 36007, not better 36037 or 36067)
Mask Type: Full face mask
Mask Make & Model: F10 or SimPlus w/ 2Liners. MirageQuatro & Gecko gel pad
Humidifier: H5i
CPAP Pressure: 15 EPAP, PS 5-10
CPAP Software: ResScan

Other Comments: Marfan Syndrome, chronic bradycardia, occasional Cheyne-Stokes Respiration

Sex: Male
Location: California, USA

Post: #10
RE: Newbie Who Needs Help
Hi sleepyntx,

The super important thing to remember about how to adjust the mask straps, is to keep the straps even (symetrical) on left side versus right side. And not to over-tighten. But if using auto mode, be sure to use the Mask Fit feature of your machine to adjust the straps tight enought to stop leaks if the pressure gets raised during the night.

Also, if the problem with the full face masks you tried was leaks around the eyes or nose, I recommend trying the ResMed Gecko nasal pad (leak guard). It is put on before the full face mask is put on, and eliminates leaks around the eyes and nose so you don't need to tighten the mask so much.

Take care.

Membership in the Advisory Member group should not be understood as in any way implying medical expertise or qualification for advising Sleep Apnea patients concerning their treatment. The Advisory Member group provides advice and suggestions to Apnea Board administrators and staff on matters concerning Apnea Board operation and administrative policies - not on matters concerning treatment for Sleep Apnea. I think it is now too late to change the name of the group but I think Voting Member group would perhaps have been a more descriptive name for the group.
(This post was last modified: 09-16-2012 02:05 AM by vsheline.)
09-16-2012 01:57 AM
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