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Newbie here and my story
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wullybully76 Offline

Members

Posts: 6
Joined: Jul 2016

Machine: Respironics DreamStation BiPAP Auto
Mask Type: Full face mask
Mask Make & Model: Fisher & Paykel Simplus / Respironics ComfortGel Blue
Humidifier: None
CPAP Pressure: EPAP 11 IPAP 16
CPAP Software: SleepyHead

Other Comments: Diagnosed June 2016 with mild asthma, Also using DreamMapper app for Dreamstation

Sex: Female
Location: NJ, USA

Post: #1
Smile Newbie here and my story
Hello all,

New to the forums and have been lurking and reading for a little bit.

Some background on me: I was diagnosed with OSA back in July 2010 after a sleep study. Received what I think was the ResMed S9 CPAP and started off fine using it and felt comfortable (sleeping much better and even lost a good amount of weight) but after 6 months, I started to feel uncomfortable with the air blowing while suffering from allergies at the time. Grew frustrated and gave up on the machine. I knew in my mind that I should have followed up with my doctor and figured out a solution but going through a painful and difficult divorce at the time, I had my mind on other things.

Forward to 2016, sleep of course had gotten worst over the years; would fall asleep almost anywhere and anytime and now I ask myself how I was able to function at work!! If I wasn't working, I wanted to stay at home and just try to sleep. Quality of life was poor.

At the end of April, I became really sick; fever that started at 101F and kept getting higher so my primary sent me to the ER and was admitted with adenovirus/severe pneumonia. I ended up staying in the hospital for 2 weeks.

Told the doctors that I was diagnosed back in 2010 with OSA but didn't tolerate the CPAP and in the ER, they saw my pulse ox drop to 86% when I was asleep so they put me on a BiPAP during my hospital stay and I was worried that I would hate it.

After many tests and being on IV antibiotics for a few days continuously, doctors saw my right lung wasn't clearing up as quickly and they wanted to do a bronchoscopy (procedure where I would be put to sleep so they can use a camera down my throat to check the lungs and get samples to find out if there was bacteria.)

Having OSA and oh, swollen tonsils, doctors were concerned I would stop breathing during the procedure and told me I'd have to get a breathing tube and would be in the ICU for recovery. That freaked me out enough with so many worrying thoughts but they wanted to wait a few days before going ahead to see if the swelling in my tonsils would go down.

Doctors saw the swelling go down and felt comfortable to do the procedure 3 days later plus they said I didn't need the breathing tube now which was the one thing I was really scared about for the procedure. Still worried about going under anesthesia but procedure went well and they were done in an hour.

I actually tolerated the BiPAP well and was able to get much needed rest at the hospital. The doctors wanted to make sure I went home with a machine so I stayed at the hospital an extra 2 days in order for my insurance to authorize it (insurance seems to move so slooooooow!) My experience at the hospital now enforces how much I need to manage my OSA and health so here I am on these forums trying to be proactive and informed.

My doctor had me do an overnight sleep study at the end of June for insurance purposes and to have a most recent report on my OSA. After reading this forum, I will be obtaining a copy of my sleep study results so I can better understand my OSA and treatment. He also ordered a breathing test which confirmed I also now have mild asthma.

Ok, I apologize for my wall of text here Lolabove but I hope by sharing my background that others who might feel like giving up or are getting frustrated realize that there will be road bumps on our journey but as we go on, our health will be so much better and our day to day lives will be improved.

In just 4 months, I feel so much better overall than I had been in recent years. I have more energy now so I have been going to the gym more often. Heck, I'm even able to stay awake through an entire movie and enjoy it. Smile
08-22-2016 10:13 AM
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Crimson Nape Offline

Monitors

Posts: 1,332
Joined: Oct 2014

Machine: ResMed S9 Autoset
Mask Type: Other
Mask Make & Model: P-10 / F&P Simplus / DreamWear
Humidifier: H5i w/Climateline
CPAP Pressure: 8 - EPR 3
CPAP Software: SleepyHead

Other Comments: CMS-50F & 50IW

Sex: Male
Location: Georgia

Post: #2
RE: Newbie here and my story
Hi wullybully76!

Welcome

I hope your treatment continues to be positive.

Statistics prove that people who have more birthdays live longer.
08-22-2016 10:25 AM
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rkl122 Offline

Preferred Members

Posts: 74
Joined: Apr 2016

Machine: Philips Respironics System One 560P (Auto, Aflex, 60 Series)
Mask Type: Nasal pillows
Mask Make & Model: PR Dreamware Frame Med, Pillow MW
Humidifier: Remstar System One - Hose Unheated
CPAP Pressure: low 8.5, high 12.5, expting
CPAP Software: SleepyHead EncoreBasic

Other Comments:

Sex: Male
Location: NJ

Post: #3
RE: Newbie here and my story
Love stories like this. Welcome and thanx for sharing!

We are such stuff
As dreams are made on, and our little life
Is rounded with a sleep.
08-22-2016 10:47 AM
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OpalRose Offline

Monitors

Posts: 3,181
Joined: Nov 2014

Machine: PR System One REMstar Auto 560 with A Flex
Mask Type: Nasal pillows
Mask Make & Model: AirFit P10 For Her
Humidifier: REMStar heated humidifier with heated hose
CPAP Pressure: Auto Cpap 10-13 AFLEX 1
CPAP Software: SleepyHead EncoreBasic

Other Comments: Started CPAP Therapy October 23, 2014

Sex: Female
Location: Northeast Ohio, USA

Post: #4
RE: Newbie here and my story
Welcome to Apnea Board wullybully76!
Thanks for sharing your story. Smile

OpalRose
08-22-2016 10:50 AM
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icyura10 Offline

Preferred Members

Posts: 197
Joined: May 2016

Machine: RESMED AirCurve 10 VAUTO
Mask Type: Nasal pillows
Mask Make & Model: Phillips Respironiscs DreamWear under the nose nasal ma
Humidifier: INCLUDED
CPAP Pressure: IPAP (20); EPAP (12); PS (8)
CPAP Software: ResScan SleepyHead

Other Comments: I just dropped in to see what condition my condition was in!

Sex: Male
Location: I'm just a Galactic Traveler Traversing the Universe on a Blue Rock!

Post: #5
RE: Newbie here and my story
Welcome wullybully,

Were you one of the original member of Sam the Sham and the Pharaohs? Oops

Glad to hear you're on your way... there's a bunch of fine folks here that seemingly know their stuff (I'm still trying to figure out which knob's to twist and buttons to push to make things better for myself) and I'm sure they'll be more than willing to share their experience, observations and recommendations! (They don't seem to be shy here1 :dielaughingSmile

Warning: Eating chocolate may cause your clothes to shrink!
[Image: ry6XtE9.gif] <---- That's ME!
08-22-2016 11:21 AM
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trish6hundred Online

Advisory Members

Posts: 6,452
Joined: May 2012

Machine: Resmed S9 AutoSet for Her
Mask Type: Full face mask
Mask Make & Model: Fisher & Paykel Simplus
Humidifier: H5i Heated Humidifier
CPAP Pressure: 10 - 7-20 Cm H2O
CPAP Software: Not using software

Other Comments: I started CPAP in 2008. Totally blind since birth.

Sex: Female
Location: Missouri, USA

Post: #6
RE: Newbie here and my story
Hi wullybully76,
WELCOME! to the forum.!
It's great to hear that you are doing so well with your CPAP therapy, keep up the good work.
Hang in there for more responses to your post.

trish6hundred
08-22-2016 05:42 PM
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richb Online

Advisory Members

Posts: 538
Joined: Jun 2015

Machine: Resmed AirCurve 10 ASV
Mask Type: Nasal mask
Mask Make & Model: ResMed Mirage FX
Humidifier: Built in
CPAP Pressure: Epap 6 Ipap 8 Auto ASV
CPAP Software: ResScan SleepyHead

Other Comments: Idiopathic Central Apnea

Sex: Male
Location: Vermont

Post: #7
RE: Newbie here and my story
Welcome to the Apnea Board forum wullybully76. Thanks for sharing your story.

Rich

Apnea Board Member RobySue has posted a Beginners Guide to Sleepyhead Software here: http://www.apneaboard.com/wiki/index.php...SleepyHead
08-22-2016 06:37 PM
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wullybully76 Offline

Members

Posts: 6
Joined: Jul 2016

Machine: Respironics DreamStation BiPAP Auto
Mask Type: Full face mask
Mask Make & Model: Fisher & Paykel Simplus / Respironics ComfortGel Blue
Humidifier: None
CPAP Pressure: EPAP 11 IPAP 16
CPAP Software: SleepyHead

Other Comments: Diagnosed June 2016 with mild asthma, Also using DreamMapper app for Dreamstation

Sex: Female
Location: NJ, USA

Post: #8
RE: Newbie here and my story
Thank you everyone for the warm welcome!!!

I'm so glad to have found this website as it has already proven to be very useful in improving my therapy.
08-23-2016 11:35 AM
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