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Newbie needs Help
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Sedona79 Offline

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Posts: 11
Joined: Nov 2012

Machine: Icon Premo
Mask Type: Nasal pillows
Mask Make & Model: Swift FX
Humidifier: F&P
CPAP Pressure: 9
CPAP Software: Not using software

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Sex: Undisclosed
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Post: #11
RE: Newbie needs Help
(11-25-2012 12:36 AM)PaulaO2 Wrote:  As for the weird AHI, usually that is related to leaks. But if the tech says the leaks are acceptable, then obviously it is something else. Unless the tech is an idiot.

No two nights are the same. Take a look at the numbers and see if you can find any kind of patter. High AHI after a few beers at dinner? Or low AHI on a day where work went well?

Tech might be an idiot - probably more on the uneducated side of things. The only pattern I can make out is that my AHI is better in two cases - both involved travelling for work and drinking... very weird. So maybe the cure to all my problems is to never be at home and drink heavily. Or not. Oh-jeez
11-27-2012 09:28 AM
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Sedona79 Offline

Members

Posts: 11
Joined: Nov 2012

Machine: Icon Premo
Mask Type: Nasal pillows
Mask Make & Model: Swift FX
Humidifier: F&P
CPAP Pressure: 9
CPAP Software: Not using software

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Sex: Undisclosed
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Post: #12
RE: Newbie needs Help
So I have been playing with the settings, humity control, Sensiwave, etc on the machine for the last few days - and the AHI is still all over the place.

The one factor that is consistent is I seem to have some mouth leakage - I wake up a few times a night and realize that I have air flowing out of my mouth. FUN. WTF. Frustrating! Dont-know
11-27-2012 10:50 AM
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PaulaO2 Offline
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Posts: 8,067
Joined: Feb 2012

Machine: S9 Autoset
Mask Type: Full face mask
Mask Make & Model: F&P Simplus
Humidifier: H5i
CPAP Pressure: 14-20
CPAP Software: SleepyHead

Other Comments: Ehlers-Danlos Syndrome, Hypermobility Type; chronic sarcasm

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Location: western NC, USA

Post: #13
RE: Newbie needs Help
Don't make too many changes at once. Make one change, wait ten days, make another change, wait ten days. I know it's a pain in the asterisk but it's the best path. No two nights are the same so going by one night's result won't get you anywhere. And if you make too many changes at once, you won't know which one was right and which was wrong.

If you have big leaks, the AHI result is invalid.

Try a chin strap. You can make one yourself with an Ace bandage to see if it makes a difference. You want it tight enough to keep your mouth from opening when you relax but no so tight you can't open your mouth while awake.

PaulaO2
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11-27-2012 11:53 AM
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Rickgo Offline

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Posts: 10
Joined: Nov 2012

Machine: ResMed
Mask Type: Nasal mask
Mask Make & Model: S8
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CPAP Pressure: 16
CPAP Software: Not using software

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Sex: Male
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Post: #14
RE: Newbie needs Help
First of all you are doing a great job sticking with the treatment, which is the most important part. By staying on top of your treatment you will work out all the issues. My first sleep study (18 years ago) started my pressure at 8. I adjusted to that pressure pretty quickly and started having symptoms again while using my machine. I needed two more studies to get to my current pressure of 16, which is where I need to be and it works great.
11-27-2012 12:28 PM
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Sedona79 Offline

Members

Posts: 11
Joined: Nov 2012

Machine: Icon Premo
Mask Type: Nasal pillows
Mask Make & Model: Swift FX
Humidifier: F&P
CPAP Pressure: 9
CPAP Software: Not using software

Other Comments:

Sex: Undisclosed
Location:

Post: #15
RE: Newbie needs Help
(11-27-2012 11:53 AM)PaulaO2 Wrote:  Don't make too many changes at once. Make one change, wait ten days, make another change, wait ten days. I know it's a pain in the asterisk but it's the best path. No two nights are the same so going by one night's result won't get you anywhere. And if you make too many changes at once, you won't know which one was right and which was wrong.

If you have big leaks, the AHI result is invalid.

Try a chin strap. You can make one yourself with an Ace bandage to see if it makes a difference. You want it tight enough to keep your mouth from opening when you relax but no so tight you can't open your mouth while awake.

You're right! I'll give it a few nights on one setting and see if evens out. I had a good AHI score (7) last night and strangely enough I had humidity to the max - so I'll try it again and see if I can duplicate. Would be WONDERFUL!
(11-27-2012 12:28 PM)Rickgo Wrote:  First of all you are doing a great job sticking with the treatment, which is the most important part. By staying on top of your treatment you will work out all the issues. My first sleep study (18 years ago) started my pressure at 8. I adjusted to that pressure pretty quickly and started having symptoms again while using my machine. I needed two more studies to get to my current pressure of 16, which is where I need to be and it works great.

Thanks for the kind words! I'm pretty committed to this but I have to admit it ain't easy. You figure we have made so many advances for so many conditions yet OSA treatment seems to be in the dark ages. And the medical community is MIA.
(This post was last modified: 11-27-2012 09:19 PM by Sedona79.)
11-27-2012 09:17 PM
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Rickgo Offline

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Posts: 10
Joined: Nov 2012

Machine: ResMed
Mask Type: Nasal mask
Mask Make & Model: S8
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CPAP Pressure: 16
CPAP Software: Not using software

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Sex: Male
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Post: #16
RE: Newbie needs Help
CPAP therapy is only 30 years old so actually we have come a long way and CPAP treatment when done properly is 100% effective however the mainstream medical community and insurance companies still don't make sleep disorders a priority and that advances more difficult. I volunteer with and support the American Sleep Apnea Association. The ASAA is a patient advocacy group working to get more people diagnosed and help them with their treatment, they also are working to get sleep apnea into the mainstream medical community. We need more people to speak out about this. Well off to dinner. Keep working at it and stay on your treatment, it is the best thing you can do for yourself, and there are people here to help when you need it.
11-27-2012 10:25 PM
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2Tim215 Offline

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Posts: 283
Joined: Oct 2012

Machine: S9 ResMed AutoSet
Mask Type: Nasal pillows
Mask Make & Model: Swift FX Nasal Pillow - Medium
Humidifier: ResMed H5i w/Climate Hose
CPAP Pressure: 6cm-12cm
CPAP Software: ResScan SleepyHead

Other Comments: OSA, Fibromyalgia, Rheumatoid Arthritis, Osteoarthritis, Gout, PTSD, & Meralgia paresthetica.

Sex: Male
Location: Finger Lakes Region, NY

Post: #17
RE: Newbie needs Help
Hi Sedona79, Sounds like if you can get the chin strap worked out, either made or bought, your AHI's will decrease. The leaks through your mouth will put your numbers off and unreliable as usable data. The Swift FX is a very good mask, hope some more suggestions and sources for the Chin Strap follow! I don't use one but read Posts where there are options!

Tim
Finger Lakes Region, NY
11-27-2012 10:40 PM
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