Post Reply 
Newbie questions, and too much effort to breathe?
Author Message
archangle Online
Wiki Editor
Advisory Members

Posts: 3,163
Joined: Feb 2012

Machine: ResMed S9 AutoSet
Mask Type: Nasal pillows
Mask Make & Model: ResMed Swift FX
Humidifier: ResMed S9 H5i
CPAP Pressure: 16-20
CPAP Software: ResScan SleepyHead EncoreBasic

Other Comments: Happy PAPper

Sex: Undisclosed
Location: USA

Post: #11
RE: Newbie questions, and too much effort to breathe?
You're just exhausted because you aren't using paragraphs. SHa_biggrin5

Welcome to our board.

Quite a few people report feeling tired or sleeping a lot after starting CPAP. You may not be sleeping well as you adapt to CPAP.

Even if you're sleeping well, some people experience "sleep debt." The experts say there's no such thing, but a lot of people report something that sounds like it. You "catch up" on sleep for a while and then you feel better later.

I think it may be "apnea withdrawal." A lot of things happen when you have apnea. Your O2 goes down, your CO2 goes up, which changes your blood chemistry. You have stress hormones from being strangled in your sleep. You don't get deep sleep and that screws up the "balance" of your body. Your body makes a lot of chemical, physical, and neurological adjustments to all these things. When you stop having apnea, your body is still pumping out chemicals trying to adjust to strangulation, stress and oxygen deprivation. Your brain and nervous system are still trying to compensate. You may be "off balance" for a while. It's sort of like what happens if you quit drinking, smoking, or even taking some prescription drugs.

Apnea withdrawal is my theory. I haven't published any peer reviewed studies or received my Nobel prize yet.

Get the free SleepyHead software here.
Useful links.
Click here for information on the main alternative to CPAP.
If it's midnight and a DME tells you it's dark outside, go and check it yourself.
06-26-2014 10:04 PM
Find all posts by this user Post Reply Quote this message in a reply

Donate to Apnea Board
PaulaO2 Offline
Wiki Editor
Moderators

Posts: 8,068
Joined: Feb 2012

Machine: S9 Autoset
Mask Type: Full face mask
Mask Make & Model: F&P Simplus
Humidifier: H5i
CPAP Pressure: 14-20
CPAP Software: SleepyHead

Other Comments: Ehlers-Danlos Syndrome, Hypermobility Type; chronic sarcasm

Sex: Undisclosed
Location: western NC, USA

Post: #12
RE: Newbie questions, and too much effort to breathe?
Sounds like a viable theory to me. And one I agree with completely.

PaulaO2
Apnea Board Moderator
www.ApneaBoard.com


Breathe deeply and count to zen.

INFORMATION ON APNEA BOARD FORUMS OR ON APNEABOARD.COM SHOULD NOT BE CONSIDERED AS MEDICAL ADVICE. ALWAYS SEEK THE ADVICE OF A PHYSICIAN BEFORE SEEKING TREATMENT FOR MEDICAL CONDITIONS, INCLUDING SLEEP APNEA. INFORMATION POSTED ON THE APNEA BOARD WEB SITE AND FORUMS ARE PERSONAL OPINION ONLY AND NOT NECESSARILY A STATEMENT OF FACT.
06-26-2014 10:55 PM
Find all posts by this user Post Reply Quote this message in a reply
Gabby Offline

Preferred Members-2

Posts: 665
Joined: Dec 2013

Machine: ResMed AirSense 10 AutoSet For Her
Mask Type: Nasal pillows
Mask Make & Model: Philips Nuance Nasal Mask
Humidifier: ResMed AirSense 10 For Her
CPAP Pressure: 8-14
CPAP Software: SleepyHead

Other Comments:

Sex: Female
Location: Sunshine Coast, Qld., Australia.

Post: #13
RE: Newbie questions, and too much effort to breathe?
Archangle, I like the sound of this theory. Could you please tell me how long you think it could go on for, this Apnea withdrawal?
Thanks

Sleep Tight...
Gabby
06-27-2014 04:18 AM
Find all posts by this user Post Reply Quote this message in a reply

Donate to Apnea Board
Terry Offline

Advisory Members

Posts: 553
Joined: May 2014

Machine: Philips Respironics RemStar Auto with A-Flex (560P)
Mask Type: Nasal pillows
Mask Make & Model: P/R Nuance & Pap Cap
Humidifier: Integrated
CPAP Pressure: Auto
CPAP Software: SleepyHead

Other Comments:

Sex: Male
Location:

Post: #14
RE: Newbie questions, and too much effort to breathe?
(unused muscles I think) but is it normal to feel really tired after using the cpap?

You should feel pretty good. Your machine might need adjusting.

Straps are not too tight and I am deciding between the small and the medium nasal pillows, but what can I do so the bottom of my nostril doesn't feel so sore?


It might be too tight. It only needs to be tight enough to not leak. There are also a bunch of different masks, you could try a different nasal pillow mask.

Also noticed my left eyelid seemed a lot droopier than I remembered--is that normal or did I get air in it?


If it's still droopy after a shower, you should call your doctor.

The water chamber holds 13oz--does it have to be filled all the way each night, or would 10oz or 8oz be enough?

Nobody knows. It depends on how much your machine actually uses.

I'm thinking of having a bottled water by the bed or if needed for travel.

For the machine, it has to be distilled water, not just bottled. For you, it can be whatever you like.

What would happen if I went somewhere and did not take the cpap with me for sleeping?

Anything from "feel tired" to "dead." It really depends on how bad your apnea is. I won't even take a nap without my machine. It's not worth it to wake up and feel awful.

Terry
(This post was last modified: 06-27-2014 06:40 AM by Terry.)
06-27-2014 06:38 AM
Find all posts by this user Post Reply Quote this message in a reply
Skypilot Offline

Preferred Members

Posts: 96
Joined: Jun 2014

Machine: ResMed Hire
Mask Type: Nasal pillows
Mask Make & Model: AIRFITâ„¢ P10 nasal pilow
Humidifier: H5i Humidifier
CPAP Pressure: Doc said to try 12; was 14
CPAP Software: ResScan SleepyHead

Other Comments: The land of Nod is but a dream.

Sex: Undisclosed
Location: Canberra, Australia

Post: #15
RE: Newbie questions, and too much effort to breathe?
Can you elaborate please on why it has to be distilled water?
06-27-2014 07:42 AM
Find all posts by this user Post Reply Quote this message in a reply

Donate to Apnea Board
Terry Offline

Advisory Members

Posts: 553
Joined: May 2014

Machine: Philips Respironics RemStar Auto with A-Flex (560P)
Mask Type: Nasal pillows
Mask Make & Model: P/R Nuance & Pap Cap
Humidifier: Integrated
CPAP Pressure: Auto
CPAP Software: SleepyHead

Other Comments:

Sex: Male
Location:

Post: #16
RE: Newbie questions, and too much effort to breathe?
(06-27-2014 07:42 AM)Skypilot Wrote:  Can you elaborate please on why it has to be distilled water?

The humidifier requires distilled water because it works by evaporating water into the air you breathe. If the water isn't distilled, it will build up minerals inside the water chamber and eventually make it work poorly, and need to be replaced.

Also, if distilled water gets inside of your machine, and you manage to dry it up, it will probably be OK. If non-distilled water gets inside, there's very little chance it will be OK.

There's probably a warning in your machine's manual about only using distilled water.

Terry
(This post was last modified: 06-27-2014 08:15 AM by Terry.)
06-27-2014 08:13 AM
Find all posts by this user Post Reply Quote this message in a reply
diamaunt Offline

Members-b

Posts: 436
Joined: May 2012

Machine: S9 VPAP Auto 36006
Mask Type: Full face mask
Mask Make & Model: mirage quattro/pilairo q
Humidifier: none
CPAP Pressure: 9-20ish
CPAP Software: SleepyHead

Other Comments:

Sex: Male
Location: texas

Post: #17
RE: Newbie questions, and too much effort to breathe?
(06-27-2014 08:13 AM)tcarmen Wrote:  Also, if distilled water gets inside of your machine, and you manage to dry it up, it will probably be OK. If non-distilled water gets inside, there's very little chance it will be OK.

oh, good point, distilled water doesn't conduct electricity... it's only the contaminants in it that make it do so.
06-27-2014 09:37 AM
Find all posts by this user Post Reply Quote this message in a reply

Donate to Apnea Board
PaytonA Offline
Wiki Editor
Monitors

Posts: 3,019
Joined: Dec 2013

Machine: ResMed S9 VPAP Auto
Mask Type: Full face mask
Mask Make & Model: Resmed Mirage Quattro
Humidifier: H5i(distilled-top up)
CPAP Pressure: VAuto MinE14.0 MaxI 20.6 PS4.0
CPAP Software: ResScan SleepyHead

Other Comments:

Sex: Male
Location: Orange County,California

Post: #18
RE: Newbie questions, and too much effort to breathe?
(06-26-2014 10:04 PM)archangle Wrote:  You're just exhausted because you aren't using paragraphs. SHa_biggrin5

Welcome to our board.

Quite a few people report feeling tired or sleeping a lot after starting CPAP. You may not be sleeping well as you adapt to CPAP.

Even if you're sleeping well, some people experience "sleep debt." The experts say there's no such thing, but a lot of people report something that sounds like it. You "catch up" on sleep for a while and then you feel better later.

I think it may be "apnea withdrawal." A lot of things happen when you have apnea. Your O2 goes down, your CO2 goes up, which changes your blood chemistry. You have stress hormones from being strangled in your sleep. You don't get deep sleep and that screws up the "balance" of your body. Your body makes a lot of chemical, physical, and neurological adjustments to all these things. When you stop having apnea, your body is still pumping out chemicals trying to adjust to strangulation, stress and oxygen deprivation. Your brain and nervous system are still trying to compensate. You may be "off balance" for a while. It's sort of like what happens if you quit drinking, smoking, or even taking some prescription drugs.

Apnea withdrawal is my theory. I haven't published any peer reviewed studies or received my Nobel prize yet.

Check with SuperSleeper. He may have some of those Nobel prize thingies hanging around. He seems to have a storehouse of goodies to hand out: T shirts, hats, coffee, donuts, popcorn and I do not remember what all else. Dielaughing
06-27-2014 12:15 PM
Find all posts by this user Post Reply Quote this message in a reply
Buckeyedog Offline

Preferred Members

Posts: 74
Joined: Jun 2014

Machine: Resmed S9 VPAP Adapt
Mask Type: Nasal pillows
Mask Make & Model: Resmed Airfit P10
Humidifier: Resmed H5i
CPAP Pressure: 7-17
CPAP Software: SleepyHead

Other Comments:

Sex: Male
Location: Beavercreek, OH

Post: #19
RE: Newbie questions, and too much effort to breathe?
Sounds like you have more of Central Apnea as noted by Zonk above. I also have central apnea and I have a VPAP Adapt machine. I'm not real familiar with all the machines, but am wondering if your Autoset is the one you should really have?? Just throwing that out there. I was also very sleepy the first whole week really. Still have it at times as well. I think it just takes time for our bodies to adjust. Especially Central Apnea patients. I like Archangle's theory just fine! I also think to myself that since we have been deprived of sleep for so long that now our bodies are craving it. That's my theory anyway!!!
(This post was last modified: 06-27-2014 04:53 PM by Buckeyedog.)
06-27-2014 04:51 PM
Find all posts by this user Post Reply Quote this message in a reply

Donate to Apnea Board
Skypilot Offline

Preferred Members

Posts: 96
Joined: Jun 2014

Machine: ResMed Hire
Mask Type: Nasal pillows
Mask Make & Model: AIRFITâ„¢ P10 nasal pilow
Humidifier: H5i Humidifier
CPAP Pressure: Doc said to try 12; was 14
CPAP Software: ResScan SleepyHead

Other Comments: The land of Nod is but a dream.

Sex: Undisclosed
Location: Canberra, Australia

Post: #20
RE: Newbie questions, and too much effort to breathe?
(06-27-2014 08:13 AM)tcarmen Wrote:  
(06-27-2014 07:42 AM)Skypilot Wrote:  Can you elaborate please on why it has to be distilled water?

The humidifier requires distilled water because it works by evaporating water into the air you breathe. If the water isn't distilled, it will build up minerals inside the water chamber and eventually make it work poorly, and need to be replaced.

Also, if distilled water gets inside of your machine, and you manage to dry it up, it will probably be OK. If non-distilled water gets inside, there's very little chance it will be OK.

There's probably a warning in your machine's manual about only using distilled water.

Terry

I would have thought that the minerals would not build up if you wash out the container after each use? The minerals that are left in the water will be washed away. I wash my tank each day and let it dry so as not to allow any nasties to grow. (and it can be put through the dishwasher)

Water in the machine - I suppose there is a very small chance that happening but I cannot see how and then it would only be in the air flow path?

I do not think that is much of a persuasive argument for me to use distilled water..... but each to their own?
06-27-2014 05:56 PM
Find all posts by this user Post Reply Quote this message in a reply
Post Reply 


Possibly Related Threads...
Thread: Author Replies: Views: Last Post
  newbie questions re sleep test results Frances 4 341 10-20-2016 08:21 AM
Last Post: cate1898
  "Clicking" sound when I breathe in... Ulrika 8 7,799 10-02-2016 08:24 PM
Last Post: FrankNichols
  newbie yossarian 14 741 09-01-2016 02:01 PM
Last Post: Maskup Sleepwell
  [CPAP] newbie questions shona 9 443 08-29-2016 04:27 PM
Last Post: icyura10
  I have f'n had it! HELP my final effort! Daisylouu 34 1,996 08-26-2016 09:55 AM
Last Post: OpalRose
  From a Newbie to a newbie PappinLikeABoss 11 1,058 08-22-2016 05:38 PM
Last Post: chill
  New User...Can't Breathe Very Well? mabostic 15 727 08-05-2016 09:39 PM
Last Post: BucketHead

Forum Jump:

Who's Online (Complete List)