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Newbie saying hello
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linn Offline

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Posts: 102
Joined: Sep 2015

Machine: CPAP (Auto)
Mask Type: Nasal mask
Mask Make & Model: Resmed AirSense 10 Autoset for Her
Humidifier: unsure
CPAP Pressure: 7.6
CPAP Software: Not using software

Other Comments: Hashimoto's Disease, Sleep Apnea, Goiter

Sex: Female
Location: Canada

Post: #1
Rainbow Newbie saying hello
Hi everyone,

I woke up choking in June and I am waiting for my sleep study on Nov. 1. I sleep for 8-10 hours at night and need a nap in the afternoon. When I wake up, I feel almost hungover - like I haven't even slept at all. Chronically exhausted...I can't even work.

I was diagnosed with mild sleep apnea about 7 years ago and didn't follow up on it due to a death in my family.

I'm sleep deprived, very depressed and I am having great problems functioning. I was hoping to connect with others on this forum because I am feeling very alone.
09-27-2015 07:18 AM
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zonk Offline

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Posts: 7,908
Joined: Feb 2012

Machine: A10 AutoSet
Mask Type: Nasal mask
Mask Make & Model: Activa LT
Humidifier: Integrated /ClimateLineAir
CPAP Pressure: 9/13
CPAP Software: ResScan

Other Comments: CPAP since Nov 2010

Sex: Male
Location: Australia

Post: #2
RE: Newbie saying hello
Hi linn and welcome to the forum

Good luck with the sleep study on Nov 1
keep us posted of how it goes
Cheers
09-27-2015 07:23 AM
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OpalRose Offline

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Posts: 3,168
Joined: Nov 2014

Machine: PR System One REMstar Auto 560 with A Flex
Mask Type: Nasal pillows
Mask Make & Model: AirFit P10 For Her
Humidifier: REMStar heated humidifier with heated hose
CPAP Pressure: Auto Cpap 10-13 AFLEX 1
CPAP Software: SleepyHead EncoreBasic

Other Comments: Started CPAP Therapy October 23, 2014

Sex: Female
Location: Northeast Ohio, USA

Post: #3
RE: Newbie saying hello
Hi linn,
You've come to the right place, your certainly not alone.

It's good that you have a sleep study scheduled, but in the meantime, try to sleep on your side, not on back if possible. It also helps to sleep slightly elevated.

Check back with us after your sleep study, and in the meantime there is a lot to learn. Start checking out the different machines available. Knowledge is everything. DME's are famous for trying to stick you with what we call a "brick". You will need a fully data capable machine.

OpalRose
09-27-2015 07:28 AM
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linn Offline

Preferred Members

Posts: 102
Joined: Sep 2015

Machine: CPAP (Auto)
Mask Type: Nasal mask
Mask Make & Model: Resmed AirSense 10 Autoset for Her
Humidifier: unsure
CPAP Pressure: 7.6
CPAP Software: Not using software

Other Comments: Hashimoto's Disease, Sleep Apnea, Goiter

Sex: Female
Location: Canada

Post: #4
RE: Newbie saying hello
(09-27-2015 07:28 AM)OpalRose Wrote:  Hi linn,
You've come to the right place, your certainly not alone.

It's good that you have a sleep study scheduled, but in the meantime, try to sleep on your side, not on back if possible. It also helps to sleep slightly elevated.

Check back with us after your sleep study, and in the meantime there is a lot to learn. Start checking out the different machines available. Knowledge is everything. DME's are famous for trying to stick you with what we call a "brick". You will need a fully data capable machine.

Thanks everyone. I always sleep on my side - I can't breathe when I sleep on my back. I really hope that I can adapt to the CPAP - I'm hoping it will save my life.

(09-27-2015 07:23 AM)zonk Wrote:  Hi linn and welcome to the forum

Good luck with the sleep study on Nov 1
keep us posted of how it goes
Cheers

Thanks Smile
(This post was last modified: 09-27-2015 07:39 AM by linn.)
09-27-2015 07:37 AM
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trish6hundred Offline

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Posts: 6,436
Joined: May 2012

Machine: Resmed S9 AutoSet for Her
Mask Type: Full face mask
Mask Make & Model: Fisher & Paykel Simplus
Humidifier: H5i Heated Humidifier
CPAP Pressure: 10 - 7-20 Cm H2O
CPAP Software: Not using software

Other Comments: I started CPAP in 2008. Totally blind since birth.

Sex: Female
Location: Missouri, USA

Post: #5
RE: Newbie saying hello
Hi linn,
WELCOME! to the forum.!
You are not alone in this.
Check out this link: http://www.apneaboard.com/wiki/index.php...ne_Choices .
There is lots of great information to help you with machines to avoid and which ones are good machines to get with data-capability so you can see and know what is going on as you sleep.
Much success to you with your sleep study, and as you start your CPAP journey.

trish6hundred
09-27-2015 08:39 AM
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linn Offline

Preferred Members

Posts: 102
Joined: Sep 2015

Machine: CPAP (Auto)
Mask Type: Nasal mask
Mask Make & Model: Resmed AirSense 10 Autoset for Her
Humidifier: unsure
CPAP Pressure: 7.6
CPAP Software: Not using software

Other Comments: Hashimoto's Disease, Sleep Apnea, Goiter

Sex: Female
Location: Canada

Post: #6
RE: Newbie saying hello
(09-27-2015 08:39 AM)trish6hundred Wrote:  Hi linn,
WELCOME! to the forum.!
You are not alone in this.
Check out this link:
There is lots of great information to help you with machines to avoid and which ones are good machines to get with data-capability so you can see and know what is going on as you sleep.
Much success to you with your sleep study, and as you start your CPAP journey.

Thanks Trish Smile I am on disability, so I will have to take whatever machine they give me. I have been trying to get back to work, but I have really bad fatigue and depression - it's been going on for years. I can't seem to get any refreshing sleep and I don't know why.
09-27-2015 08:51 AM
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cate1898 Offline

Advisory Members

Posts: 784
Joined: Aug 2015

Machine: PR System One 560BT Auto
Mask Type: Nasal pillows
Mask Make & Model: P10's/backup-DreamWear
Humidifier: PR attached
CPAP Pressure: 8.5 - 13. A-Flex 3
CPAP Software: SleepyHead

Other Comments: Began CPAP Therapy Sept. 11, 2015. Hx Hypertension, Post Graves Disease, chronic migraines.

Sex: Female
Location: Southern Ontario//SW Florida

Post: #7
RE: Newbie saying hello
Hi linn
Welcome to the forum. You have certainly come to the right place!

While you're waiting for your appointment November 1st make sure you read as much as you can as you will learn a lot as I am doing. When it is time for you to buy your machine, after your loaner machine period, make sure you get a fully data cable machine. That way you can take the SD card out of the machine and track your own progress as you will find the health care system lacking here in Canada. You can download the software on this forum. It is called 'Sleepyhead'.
09-27-2015 03:26 PM
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linn Offline

Preferred Members

Posts: 102
Joined: Sep 2015

Machine: CPAP (Auto)
Mask Type: Nasal mask
Mask Make & Model: Resmed AirSense 10 Autoset for Her
Humidifier: unsure
CPAP Pressure: 7.6
CPAP Software: Not using software

Other Comments: Hashimoto's Disease, Sleep Apnea, Goiter

Sex: Female
Location: Canada

Post: #8
RE: Newbie saying hello
(09-27-2015 03:26 PM)cate1898 Wrote:  Hi linn
Welcome to the forum. You have certainly come to the right place!

While you're waiting for your appointment November 1st make sure you read as much as you can as you will learn a lot as I am doing. When it is time for you to buy your machine, after your loaner machine period, make sure you get a fully data cable machine. That way you can take the SD card out of the machine and track your own progress as you will find the health care system lacking here in Canada. You can download the software on this forum. It is called 'Sleepyhead'.

Thank you Cate Smile Is it better to get a nasal mask or a full face mask?
09-27-2015 03:29 PM
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kaiasgram Offline

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Posts: 241
Joined: Aug 2013

Machine: S9 VPAP Auto
Mask Type: Nasal pillows
Mask Make & Model: Aloha
Humidifier: H5i
CPAP Pressure: 8-10
CPAP Software: SleepyHead

Other Comments:

Sex: Female
Location: Northern California

Post: #9
RE: Newbie saying hello
(09-27-2015 08:51 AM)linn Wrote:  I can't seem to get any refreshing sleep and I don't know why.

Hi linn,

Even mild sleep apnea can wreck your sleep. And since you already know you have sleep apnea there's no mystery here. I wonder too if your apnea has gotten worse since your initial diagnosis (it often does over time), or if it was never actually mild to begin with -- it's not unusual that a sleep study underestimates the severity of apnea. People are not sleeping in their normal sleep environment and may not sleep as deeply, or as long....

While you may not have a choice of machine, it never hurts to advocate for yourself and request a machine with full data (not just hours of use) capability. Without treatment data it can be very difficult to get therapy dialed in correctly -- even your doctor cannot get any treatment data from "brick" machines that only record the number of hours used so there's no way to evaluate your treatment.


I'm sorry you have to wait so long for your sleep study. Sad But stick around. There's lots to learn and you are not alone. Many of us (me included) have been where you are and we're happy to help.
09-27-2015 04:14 PM
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linn Offline

Preferred Members

Posts: 102
Joined: Sep 2015

Machine: CPAP (Auto)
Mask Type: Nasal mask
Mask Make & Model: Resmed AirSense 10 Autoset for Her
Humidifier: unsure
CPAP Pressure: 7.6
CPAP Software: Not using software

Other Comments: Hashimoto's Disease, Sleep Apnea, Goiter

Sex: Female
Location: Canada

Post: #10
RE: Newbie saying hello
(09-27-2015 04:14 PM)kaiasgram Wrote:  
(09-27-2015 08:51 AM)linn Wrote:  I can't seem to get any refreshing sleep and I don't know why.

Hi linn,

Even mild sleep apnea can wreck your sleep. And since you already know you have sleep apnea there's no mystery here. I wonder too if your apnea has gotten worse since your initial diagnosis (it often does over time), or if it was never actually mild to begin with -- it's not unusual that a sleep study underestimates the severity of apnea. People are not sleeping in their normal sleep environment and may not sleep as deeply, or as long....

While you may not have a choice of machine, it never hurts to advocate for yourself and request a machine with full data (not just hours of use) capability. Without treatment data it can be very difficult to get therapy dialed in correctly -- even your doctor cannot get any treatment data from "brick" machines that only record the number of hours used so there's no way to evaluate your treatment.


I'm sorry you have to wait so long for your sleep study. Sad But stick around. There's lots to learn and you are not alone. Many of us (me included) have been where you are and we're happy to help.
Wow - the people on this forum are SO kind Smile
My doctor at the time told me not to worry about the apnea - since it was mild. I have gained about 25lbs since then so I imagine that it is worse now. I literally feel disabled - I can barely function. The mornings are worse than the evenings and the depression is horrific.

I will try to get a machine with data -- hopefully, the CPAP will include that. If not, I will try to advocate for myself.

Thanks for your kind words...I really appreciate it!
09-27-2015 04:30 PM
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