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Newbie to my own sleep apnea (hubby using CPAP since 2003)
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Evpraxia Offline

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Posts: 313
Joined: Aug 2014

Machine: ResMed S9 AutoSet
Mask Type: Nasal pillows
Mask Make & Model: ResMed Swift LT for Her - Nasal Pillows System
Humidifier: ResMed H5i
CPAP Pressure: 7-17
CPAP Software: ResScan SleepyHead

Other Comments: Cat Staff, bibliophile, love Classical & Byzantine music

Sex: Female
Location: Pacific Northwest USA

Post: #1
Newbie to my own sleep apnea (hubby using CPAP since 2003)
I was diagnosed with sleep apnea on Thursday (moderate to severe) and am NOT patiently waiting for my CPAP to come in. So, in the meantime, I am using my hubby's old CPAP (the "brick") with a setting of 8, which we will be increasing tonight.

My sister was diagnosed the week before me and is also waiting for her CPAP to come in. She has moderate to severe sleep apnea

Hubby has used a CPAP since Feb of 2003. He now has a diagnosis of severe/mixed using setting of 13-18.

Better living through machinery!
Evpraxia in the Pacific Northwest USA

Evpraxia in the Pacific Northwest USA
Diagnosed: 44 AHI when supine, O2 down to 82%
Treated since 20 Sept 2014:: 0.7 AHI, Settings 7-15, EPR on Full Time at Level 3
Better living through CPAP/APAP machines!
08-31-2014 05:40 PM
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trish6hundred Online

Advisory Members

Posts: 6,431
Joined: May 2012

Machine: Resmed S9 AutoSet for Her
Mask Type: Full face mask
Mask Make & Model: Fisher & Paykel Simplus
Humidifier: H5i Heated Humidifier
CPAP Pressure: 10 - 7-20 Cm H2O
CPAP Software: Not using software

Other Comments: I started CPAP in 2008. Totally blind since birth.

Sex: Female
Location: Missouri, USA

Post: #2
RE: Newbie to my own sleep apnea (hubby using CPAP since 2003)
Hi Evpraxia,
WELCOME! to the forum.!
It's good to hear that you are starting to use a CPAP machine 'til you get your own.
Hang in there for more responses to your post and best of luck to you as you continue with your CPAP therapy.

trish6hundred
08-31-2014 05:57 PM
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Tez62 Offline

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Posts: 837
Joined: Feb 2013

Machine: Resmed S9 Autoset
Mask Type: Full face mask
Mask Make & Model: Resmed Mirage Quattro
Humidifier: Resmed
CPAP Pressure: 5-15
CPAP Software: SleepyHead

Other Comments:

Sex: Male
Location: Melbourne, Australia

Post: #3
RE: Newbie to my own sleep apnea (hubby using CPAP since 2003)
Welcome Evpraxia, at least something is better than nothing, hopefully you and your sister get your CPAP's soon.
08-31-2014 05:58 PM
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Evpraxia Offline

Advisory Members

Posts: 313
Joined: Aug 2014

Machine: ResMed S9 AutoSet
Mask Type: Nasal pillows
Mask Make & Model: ResMed Swift LT for Her - Nasal Pillows System
Humidifier: ResMed H5i
CPAP Pressure: 7-17
CPAP Software: ResScan SleepyHead

Other Comments: Cat Staff, bibliophile, love Classical & Byzantine music

Sex: Female
Location: Pacific Northwest USA

Post: #4
RE: Newbie to my own sleep apnea (hubby using CPAP since 2003)
Thank you for being here!

Given my family background (my father gave himself dementia and damaged his heart so much he had to have a valve replacement) there is NO WAY I would NOT use a CPAP/APAP.

Evpraxia

Evpraxia in the Pacific Northwest USA
Diagnosed: 44 AHI when supine, O2 down to 82%
Treated since 20 Sept 2014:: 0.7 AHI, Settings 7-15, EPR on Full Time at Level 3
Better living through CPAP/APAP machines!
08-31-2014 08:39 PM
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Tez62 Offline

Monitors

Posts: 837
Joined: Feb 2013

Machine: Resmed S9 Autoset
Mask Type: Full face mask
Mask Make & Model: Resmed Mirage Quattro
Humidifier: Resmed
CPAP Pressure: 5-15
CPAP Software: SleepyHead

Other Comments:

Sex: Male
Location: Melbourne, Australia

Post: #5
RE: Newbie to my own sleep apnea (hubby using CPAP since 2003)
No worries, we are all here if you have any questions, Sleep Apnea is hereditary, my sleep specialist says " it is the illness that keeps giving"
08-31-2014 08:42 PM
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retired_guy Offline

Preferred Members-2

Posts: 2,744
Joined: Jan 2014

Machine: ResMed S9 Autoset
Mask Type: Nasal pillows
Mask Make & Model: Resmed Airfit P10
Humidifier: ResMed
CPAP Pressure: 10.6/14, EPR 3
CPAP Software: ResScan SleepyHead

Other Comments: Is it bedtime yet?

Sex: Male
Location: Beautiful, albeit very wet Oregon Coast

Post: #6
RE: Newbie to my own sleep apnea (hubby using CPAP since 2003)
I thought I had given myself Alzheimers. But I must not have.. In any case I can't remember where I put it if I did.

Welcome to the board Ev. I think it's fine you're beginning your therapy with your husband's old machine. But remember, don't change stuff too quickly. If you're at 10 tonight, stay there a few days and see what your results are.

You have a tremendous advantage in that your husband is already a master of this stuff. So he will no doubt be of great encouragement to you in the process.
08-31-2014 08:45 PM
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Evpraxia Offline

Advisory Members

Posts: 313
Joined: Aug 2014

Machine: ResMed S9 AutoSet
Mask Type: Nasal pillows
Mask Make & Model: ResMed Swift LT for Her - Nasal Pillows System
Humidifier: ResMed H5i
CPAP Pressure: 7-17
CPAP Software: ResScan SleepyHead

Other Comments: Cat Staff, bibliophile, love Classical & Byzantine music

Sex: Female
Location: Pacific Northwest USA

Post: #7
RE: Newbie to my own sleep apnea (hubby using CPAP since 2003)
(08-31-2014 08:45 PM)retired_guy Wrote:  I thought I had given myself Alzheimers. But I must not have.. In any case I can't remember where I put it if I did.

Welcome to the board Ev. I think it's fine you're beginning your therapy with your husband's old machine. But remember, don't change stuff too quickly. If you're at 10 tonight, stay there a few days and see what your results are.

You have a tremendous advantage in that your husband is already a master of this stuff. So he will no doubt be of great encouragement to you in the process.

Oh retired-guy, he IS a tremendous help! And I am SO glad he has been very diligent about using his CPAP. But then, he had my father as an example of what happens if you do NOT use the CPAP.

Evpraxia in the Pacific Northwest USA
Diagnosed: 44 AHI when supine, O2 down to 82%
Treated since 20 Sept 2014:: 0.7 AHI, Settings 7-15, EPR on Full Time at Level 3
Better living through CPAP/APAP machines!
08-31-2014 08:49 PM
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becker44a Offline

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Posts: 181
Joined: Jan 2014

Machine: ResMed S9 Autoset
Mask Type: Full face mask
Mask Make & Model: F&P Simplus Lg
Humidifier: ResMed H5i
CPAP Pressure: Rx 10 - 20cm, Usually 10-14cm
CPAP Software: ResScan SleepyHead

Other Comments:

Sex: Male
Location: NE Ohio, USA

Post: #8
RE: Newbie to my own sleep apnea (hubby using CPAP since 2003)
(08-31-2014 05:40 PM)Evpraxia Wrote:  I was diagnosed with sleep apnea on Thursday (moderate to severe) and am NOT patiently waiting for my CPAP to come in. So, in the meantime, I am using my hubby's old CPAP (the "brick") with a setting of 8, which we will be increasing tonight.
. . .
Better living through machinery!
Evpraxia in the Pacific Northwest USA

Hi Evpraxia,
I see from your profile that you just recently joined here. Having just been diagnosed, this is a CRITICAL period for you. Generally in this country, insurance will provide a machine once every 5 years. So whatever machine you get now, you will live with for the next 5 years.

In my view, the most important capability is that it reports full data, so that you can see what is working with your therapy, and what is not. The second most important capability is auto-adjust. Even if you turn out to be a person who does not tolerate the pressure changes of an APAP that well, all APAPs can be configured to run as fixed pressure machines. The advantage of an APAP is that you can repeat an in-home titration test as often as you wish. It isn't unusual that titration in a sleep lab is of dubious value - different environment, all those wires and sensors, etc. Often a patient won't sleep much, sleep may not resemble their normal sleep pattern, sleep often interrupted by the sleep tech, etc.

If you have not seen it, here is a link to a good article about choosing a machine and machines to avoid:
http://www.apneaboard.com/wiki/index.php...ne_Choices

Recommendations:
Be assertive: decide what you want, and DON'T let the Dr. or the DME stampede you into getting something less. Remember, many DMEs will lie thru their teeth if they think it is in their interest.

The machine prescription. It is often wise to have the Dr. write the prescription to include the specific machine, Mask as "patient choice", and some words like "Dispense as written". If you decide you want an APAP machine, it will be necessary for the prescription to be written with a pressure range, not just a single pressure. Also, get a hard copy of your PAP prescription, for several reasons.

Don't accept physical delivery of a machine you don't want, unless it is clearly a loaner, a rental, a trial machine, etc. Once you have accepted a machine from your prescription, it is often VERY difficult to change it.

Get the full copy of your sleep study. Many times patients are told "You wouldn't understand it", or are fobbed off with some excuse or another. In this country under HIPPA rules, this is YOUR data and you are entitled to it. Don't settle for less. It may become important later, and it will be easier to obtain right now.

Good luck on your journey.

A.Becker
PAPing in NE Ohio, with a pack of Cairn terriers
(This post was last modified: 09-01-2014 02:49 PM by becker44a.)
09-01-2014 02:40 PM
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Evpraxia Offline

Advisory Members

Posts: 313
Joined: Aug 2014

Machine: ResMed S9 AutoSet
Mask Type: Nasal pillows
Mask Make & Model: ResMed Swift LT for Her - Nasal Pillows System
Humidifier: ResMed H5i
CPAP Pressure: 7-17
CPAP Software: ResScan SleepyHead

Other Comments: Cat Staff, bibliophile, love Classical & Byzantine music

Sex: Female
Location: Pacific Northwest USA

Post: #9
RE: Newbie to my own sleep apnea (hubby using CPAP since 2003)
Greetings,

Thanks for ALL the info! My hubby has the Philips Respironics REMstar Auto A-Flex System One and Really likes it. He switched to the nasal pillows, so I am currently using his worn-one-week nose mask. I know I will be looking for a different style of head gear and requesting the nasal pillows.

I will look at the Choices page later today.

My hubby found some info on a sleep sensor that affixes under the bed sheets; but at $149 it will be waiting for a few months. It looks like it would be a good alternative to another sleep study before the insurance would approve/pay for it. PM me if you want to know the name.

Evpraxia in the Pacific Northwest USA
Diagnosed: 44 AHI when supine, O2 down to 82%
Treated since 20 Sept 2014:: 0.7 AHI, Settings 7-15, EPR on Full Time at Level 3
Better living through CPAP/APAP machines!
09-01-2014 04:55 PM
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