(05-20-2014 09:58 AM)Marnid2014 Wrote: I just wanted to give you a virtual hug, I am not one with a lot of knowledge, but wanted to tell you what a GREAT forum this is, everyone will help you and support you. I hope this all turns around for you soon. So many here are extremely helpful and know Cpap inside and out. Good luck.
Thank you, Marnid! It does seem like a wonderful forum with lots of knowledgeable and helpful people.
(05-20-2014 12:29 PM)PaulaO2 Wrote: During sleep, it is considered Periodic Limb Movement Disorder (PLMD). It is an involuntary movement and only happens at night. Of course, a person can have both.
RLS is an "itchy, crawly, skin creepy gotta move them or else" kind of thing. PLMD ranges from simple twitch to an outright violent jerk.
I am one of those people who has both RLS and PLMD. However, my PLMD was directly related to my sleep apnea. The lower my AHI, the less it happens. I once kicked my 85lb Rottweiler up and over the footboard of the bed. My partner tells me I kick out violently sometimes but we've never been able to figure out why (good AHI, good sleep, etc). My RLS was at its worse when I was doing a medication change and it was discovered I had a potassium deficiency. When I began taking potassium until the medication changes settled down, my RLS settled down nicely. Since then, whenever it acts up, I eat foods high in potassium for a few days and it sometimes will slowly go away again. Sometimes no, sometimes yes. A nutritionist I am seeing said to stop drinking all tea. I've not tried it yet since mine seems to come in cycles.
I have taken Neurontin for nerve pain. One side effect of it is sometimes the body builds up a resistance and you need to take more. The dose has to be slowly increased over time until it is no longer working. Another side effect is it can cause twitching. Lucky me, I experienced both. The higher the dose, the worse the twitching. Since then, I cannot take any other medication in the same family or the twitching starts even at a low dosage.
Thank you for this info, Paula!
The doctor did not tell me the differences between RLS and PLMD but that makes sense. I looked up info and it said that 80-90% of people with RLS also have PLMD anyway. I know I do it in my sleep and during the day I am constantly bouncing my legs. I have just read too that antidepressants can make it worse, and I am on them currently.
It seems like you have your RLS/PLMD under control, hopefully one day I can say that, too!
I am studying nutritional medicine, so I try and stay on top of getting the proper nutrition. I eat a very balanced and healthy diet and I supplement vitamin D, zinc, potassium, magnesium, curcumin, fish oil, l-glutamine & pro-biotics. The only thing I am wondering about is iron as I heard that can affect RLS but I eat red meat at least 3-4 times a week, so I doubt I would be low in iron.
Thank you for the info on Neurontin. Was it hard to withdrawal from? I had a doc put me on the max dose of Tramadol for my FM pain and coming off of that was sheer hell. The worst experience I've ever had. I just don't want to get into a position where I need to withdrawal from a medicine that's going to cause me that kind of pain again.
(05-20-2014 12:52 PM)trish6hundred Wrote: Hi Jenna,
WELCOME! to the forum.!
I'm sorry you are having such a rough time right now, since you are so stressed, you might want to wait 'til you get your exams out of the way but then, REALLY get SERIOUS about treating your sleep apnea.
I know CPAP therapy can take some getting used to, but if you just keep trying after your exams, it does get better.
Feel free to ask any questions to help you understand this therapy as you need to and best of luck on your exams.
Try to take care of yourself.
Thank you so much, Trish! I am definitely going to wait until my exams are done, otherwise I think it's just going to be like pushing ahem… STUFF uphill. Thank you for your well wishes and welcome.
(05-20-2014 07:34 PM)Lukie Wrote: I have all the conditions you mentioned. My lower teeth are ground down to stubs practically from years of untreated sleep apnea and bruxism. I also have RLS. Give yourself time. CPAP is your friend.
You may find that even if you mouth breathe that a nasal mask is far more comfortable. You can wear a chinstrap to keep your mouth shut. A mouth guard will help your bruxism and it is not that hard to deal with.
With Restless Legs syndrome there are a host of medications that can help with it.
I take ten milligrams of Doxipin which helps me relax and also helps with sleep maintenance but there are other that are very effective. You can as your sleep specialist. If you stick with it and keep trying new masks and remedies for problems and ask people here for help you will find that in a few months you will be feeling much better. Welcome to hosehead land!
Thank you for your reply.
I know I can't use a chin strap and nasal mask because the splint I am getting is on my bottom teeth and will be built up with lumps in the back on the molars to keep my jaw in a relaxed position and to take the force out of my grinding. My mouth will most likely always be open, so unfortunately it's going to have to be one way for me.
I will definitely stick with it, I think my hubby would have a heart attack if I didn't get it a proper try after spending $1600 on the unit and mask!!! lol
Seriously though, I WANT to feel better and if it means going through a month or even a few of bad sleep to get used to it, I will! As I've said in other posts, I am desperate for sleep!!
Thank you again to everyone for their information, kind words and welcomes. I can't tell you how much I appreciate it during this tough time!!