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Newbie with Sleep Apnea, RLS & Bruxism, Desperate for Advice
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Amelie Offline

New Members

Posts: 2
Joined: Jun 2014

Machine: ResMed S9 Elite
Mask Type: Nasal mask
Mask Make & Model: ResMed Nano
Humidifier: unsure
CPAP Pressure: 12.2
CPAP Software: Not using software

Other Comments:

Sex: Female
Location:

Post: #21
RE: Newbie with Sleep Apnea, RLS & Bruxism, Desperate for Advice
Hi Jenna. I'm new to the board, but was wondering how you were doing with the CPAP, now that your tests are over. Are you sleeping better? I have similar issues, and have found relief over time, learning along the way what works for me.

Of course everyone is different, but a few things were helpful to me. I use a plastic dental guard for bruxism, which keeps my teeth from wearing down more, and helps my jaw feel less sore. I hope your splint thing is helping you.

I've always had RLS, which runs in my family, but it was made MUCH worse by a B12 deficiency, and subsequent anemia. You may know from your Nutrition studies, that B12 deficiency is more common now, even in people who eat B12-rich diets. Generally, people lose the ability to absorb both B12 and iron as they age, but it can also be caused by an auto-immune disorder, or, surprisingly, by long-term antacid use. Also, anemia, and even just borderline low iron can make RLS worse. It could be worth having your Dr. check your levels. I take B12, Folate, and Iron supplements now, and it makes a huge difference. I also take Mirapex, which gives me TOTAL relief from the RLS. Smile Neurontin did not help my RLS, but I had no bad side effects from it, or from the withdrawal.

Are you adapting to the mask now? The right mask, with no leaks, and a little time to get used to it, can make life so much better! I hope things are improving for you.
06-18-2014 05:47 AM
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CynthiaMueller Offline

Members

Posts: 9
Joined: Nov 2013

Machine: BiPAP AutoSV Advanced System One 60 Respironics
Mask Type: Nasal pillows
Mask Make & Model: Resmed Swift FX
Humidifier: Respironics System One
CPAP Pressure: EPAP Min 5 Max 15 PS 2-20
CPAP Software: SleepyHead

Other Comments:

Sex: Female
Location: TX

Post: #22
RE: Newbie with Sleep Apnea, RLS & Bruxism, Desperate for Advice
Hi Jenna,

I had bad migraines when I started my CPAP therapy. (I have herniated discs, severe stenosis and foraminal narrowing in my cervical vertebrae. ) It was from the way I had the mask adjusted. My neck would twist just the wrong way and I'd get a headache. Once I fixed that and got a softer pillow those headaches decreased.

The PLM / RLS just happens. I think that severity depends upon how tired I am. I'd been on gabapentin, but never remembered to take it regularly, so I didn't notice an effect. You need to take it every 8 hours.

I grind my teeth and always use a mouth guard. You need this, or you will grind your teeth away. You can quickly massage the massiter muscle to release it to try to stop the grinding, but you will have to do this each night. I'm sure that you can find a video on YouTube. Try the TapFit mask -I can't wait to try it!

Good luck!

Cindy
06-29-2014 02:51 AM
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Amelie Offline

New Members

Posts: 2
Joined: Jun 2014

Machine: ResMed S9 Elite
Mask Type: Nasal mask
Mask Make & Model: ResMed Nano
Humidifier: unsure
CPAP Pressure: 12.2
CPAP Software: Not using software

Other Comments:

Sex: Female
Location:

Post: #23
RE: Newbie with Sleep Apnea, RLS & Bruxism, Desperate for Advice
Hi CynthiaMueller,

Can you tell me what the TapFit mask is, please?

Thanks!

Amelie
07-06-2014 03:16 AM
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