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Newly "diagnosed" but doubting diagnosis?
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Mosquitobait Offline

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Posts: 818
Joined: Apr 2015

Machine: Resmed AirSense 10 For Her
Mask Type: Nasal pillows
Mask Make & Model: Respironics Dreamwear
Humidifier: integrated, Climate line tube
CPAP Pressure: 9-12.6
CPAP Software: SleepyHead

Other Comments: RLS and Bradycardia

Sex: Female
Location: Minneapolis

Post: #11
RE: Newly "diagnosed" but doubting diagnosis?
(12-27-2015 02:35 PM)KingTitus Wrote:  My apologies to all that have replied, I have been crazy busy over the holidays. Here is the update since I wrote the original post. I am going to perform another sleep study. The original center is refusing to give me or anyone else the results, reports or data from the device including my ENT. I have had to resort to filing a complaint with the AASM and the medical board. This one will be at a facility instead of a take home. This has been an absolute nightmarish event to say the least.

Thank you to all that have replied. I will update with the new results soon.

Have a great new year!

Refuse to pay for the study. That will get you your data. If it is your insurance company, contact them and explain that you do not want this place to be paid unless they release actual medical data.
(This post was last modified: 12-27-2015 08:09 PM by Mosquitobait.)
12-27-2015 08:06 PM
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kaiasgram Offline

Advisory Members

Posts: 244
Joined: Aug 2013

Machine: S9 VPAP Auto
Mask Type: Nasal pillows
Mask Make & Model: Aloha
Humidifier: H5i
CPAP Pressure: 8-10
CPAP Software: SleepyHead

Other Comments:

Sex: Female
Location: Northern California

Post: #12
RE: Newly "diagnosed" but doubting diagnosis?
(12-27-2015 02:35 PM)KingTitus Wrote:  The original center is refusing to give me or anyone else the results, reports or data from the device including my ENT. I have had to resort to filing a complaint with the AASM and the medical board.

A complaint filed with the Department of Health and Human Services would also be appropriate because the refusal to release medical records is a HIPAA violation and those get reported to the DHHS:

http://www.hhs.gov/hipaa/filing-a-compla...index.html

Good luck with the next sleep study, and Happy New Year to you!
(This post was last modified: 12-27-2015 08:34 PM by kaiasgram.)
12-27-2015 08:18 PM
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vsheline Offline

Advisory Members

Posts: 1,935
Joined: Jul 2012

Machine: S9 VPAP Adapt (USA Model# 36007, not better 36037 or 36067)
Mask Type: Full face mask
Mask Make & Model: F10 or SimPlus w/ 2Liners. MirageQuatro & Gecko gel pad
Humidifier: H5i
CPAP Pressure: 15 EPAP, PS 5-10
CPAP Software: ResScan

Other Comments: Marfan Syndrome, chronic bradycardia, occasional Cheyne-Stokes Respiration

Sex: Male
Location: California, USA

Post: #13
RE: Newly "diagnosed" but doubting diagnosis?
(12-27-2015 08:06 PM)Mosquitobait Wrote:  Refuse to pay for the study. That will get you your data. If it is your insurance company, contact them and explain that you do not want this place to be paid unless they release actual medical data.

The fine print somewhere will usually say the patient is ultimately responsible if insurance pays less than expected.

So maybe best to just inform the insurance company that the sleep center refuses to release records, and that complaints with professional and civil authorities have been filed, and that the insurance company may want to re-evaluate whether to keep that provider in their network.

Membership in the Advisory Member group should not be understood as in any way implying medical expertise or qualification for advising Sleep Apnea patients concerning their treatment. The Advisory Member group provides advice and suggestions to Apnea Board administrators and staff on matters concerning Apnea Board operation and administrative policies - not on matters concerning treatment for Sleep Apnea. I think it is now too late to change the name of the group but I think Voting Member group would perhaps have been a more descriptive name for the group.
12-27-2015 09:31 PM
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