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Newly diagnosed - problems with nasal pillows
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vette59jdwl Offline

New Members

Posts: 3
Joined: Dec 2014

Machine: res-med S9
Mask Type: Nasal mask
Mask Make & Model: unsure
Humidifier: res-men-3.5
CPAP Pressure: 13
CPAP Software: Not using software

Other Comments:

Sex: Male
Location:

Post: #1
Newly diagnosed - problems with nasal pillows
Well i do not know where to start first or i am 70 years young was a firfighter all my working life had a quaddrouply bypass 10 years ago even back than as i sit and recall I use to get these shocks like i was being electroquted not sure where that came from but they are back. I have an a pap a res-med c9 set at 13. rampted from 7 seems to work good last report was i had leakage of 31 % i tightned up the mask and got it down to 24 now i am changing masks again I have a whole bag of masks I love the nasal pillow but they do not like me 2 nights and my nose is feeling like it was raped and i even use baby lotion it seems to help.At this point i am not sure if it is my heart or my sleep apnea thats got me confused..wayner
12-02-2014 07:20 PM
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trish6hundred Offline

Advisory Members

Posts: 6,446
Joined: May 2012

Machine: Resmed S9 AutoSet for Her
Mask Type: Full face mask
Mask Make & Model: Fisher & Paykel Simplus
Humidifier: H5i Heated Humidifier
CPAP Pressure: 10 - 7-20 Cm H2O
CPAP Software: Not using software

Other Comments: I started CPAP in 2008. Totally blind since birth.

Sex: Female
Location: Missouri, USA

Post: #2
RE: Help! Just Diagnosed with Severe Sleep Apnea
(12-02-2014 07:20 PM)wayne laverdure Wrote:  Well i do not know where to start first or i am 70 years young was a firfighter all my working life had a quaddrouply bypass 10 years ago even back than as i sit and recall I use to get these shocks like i was being electroquted not sure where that came from but they are back. I have an a pap a res-med c9 set at 13. rampted from 7 seems to work good last report was i had leakage of 31 % i tightned up the mask and got it down to 24 now i am changing masks again I have a whole bag of masks I love the nasal pillow but they do not like me 2 nights and my nose is feeling like it was raped and i even use baby lotion it seems to help.At this point i am not sure if it is my heart or my sleep apnea thats got me confused..wayner
Hi wayne,
WELCOME! to the forum.!
You might want to see your doc about the tingling feeling if you haven't already done that.
As far as pillows making your nostriles soar, getcha some HPA Lanolin. It is very thick, so just dab a "little" bit into your nostriles with a q-tip and that should help with the soarness and, might give you a better seal, too. You can find the HPA Lanolin at most stores in the baby isle. Edit: The HPA Lanolin doesn't have any patrolium in it. The mask manufacturerers don't recommend using anything with patrolium, because it could break down the mask cushions. they don't last long enough as it is, no need to hasten their demise any sooner than you have to, (Ha-Ha,) end edit.
Hang in there for more suggestions and much success to you as you continue your CPAP therapy.

trish6hundred
(This post was last modified: 12-02-2014 11:32 PM by trish6hundred.)
12-02-2014 10:28 PM
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herbm Offline

Preferred Members-2

Posts: 852
Joined: Jan 2014

Machine: ResMed AutoSet S9
Mask Type: Oral
Mask Make & Model: ResMed Airfit P10 Nasal Pillow
Humidifier: ResMed H5i
CPAP Pressure: 11-16
CPAP Software: ResScan SleepyHead

Other Comments: Backup Mask: Innomed Hybrid FFM -- Oral+Nasal Pillows

Sex: Male
Location: Austin, TX

Post: #3
RE: [split] Newly diagnosed
Welcome.

Search the forum for posts from me (HerbM) and the word 'lanolin'

I have written many posts on making pillow masks work despite irritation of the nose and how to avoid that irritation -- lanolin is only ONE of the ways but the word is unique enough to help you find those posts when combined with my user name as the source.

Sweet Dreams,

HerbM
Sleep study AHI: 49 RDI: 60 -- APAP 10-11 w/AHI: 1.5 avg for 7-days (up due likely to hip replacement recovery)

"We can all breathe together or we will all suffocate alone."
12-03-2014 01:52 AM
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FredBearman Offline

New Members

Posts: 1
Joined: Nov 2014

Machine: ResMed S9 Autoset
Mask Type: Nasal mask
Mask Make & Model: F & P Eson
Humidifier: ResMed H5i
CPAP Pressure: 12
CPAP Software: Not using software

Other Comments: ResMed ClimateLine Tubing

Sex: Male
Location: Port Huron, Michigan

Post: #4
RE: [split] Newly diagnosed
(12-02-2014 07:20 PM)wayne laverdure Wrote:  had a quaddrouply bypass 10 years ago even back than as i sit and recall I use to get these shocks like i was being electroquted not sure where that came from but they are back.

This may be a reach, but have you talked with your cardiologist about feeling these shocks? Did they start after your bypass? It brings the question to my mind as to whether they implanted a cardioverter defibrillator at the time of the surgery - your cardiologist should be able to answer that. May not be that at all - just a thought.
12-03-2014 08:32 PM
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vette59jdwl Offline

New Members

Posts: 3
Joined: Dec 2014

Machine: res-med S9
Mask Type: Nasal mask
Mask Make & Model: unsure
Humidifier: res-men-3.5
CPAP Pressure: 13
CPAP Software: Not using software

Other Comments:

Sex: Male
Location:

Post: #5
RE: [split] Newly diagnosed
(12-03-2014 08:32 PM)FredBearman Wrote:  
(12-02-2014 07:20 PM)wayne laverdure Wrote:  had a quaddrouply bypass 10 years ago even back than as i sit and recall I use to get these shocks like i was being electroquted not sure where that came from but they are back.

This may be a reach, but have you talked with your cardiologist about feeling these shocks? Did they start after your bypass? It brings the question to my mind as to whether they implanted a cardioverter defibrillator at the time of the surgery - your cardiologist should be able to answer that. May not be that at all - just a thought.

OK guys sorry for the delay I have been out of the country and my breathing has improved one hundred percent I have also gon to a resmed S-9 autose where i have it set at a min of 7 and a max of 13 most if not all of the shocking symptoms have left ,My buddy Garth says its fight or flight tells me i was starving for oxygen air nor that i am on auto set this is correcting the problem I have also goon from the nasal masks to a phillips AMARA full face mask in medium and am about to try the small.At first i used a large,and that was to large was going from the bottom of my chin to above the bridge in my nose,Now the medium is digging into the bridge of my nose and i have a scar to prove it.Not sure what else to try.PS i am looking for a program that i caqn download to my laptop so that i can read my sd card in my resmed S-9 autoset Take care and breath well Wayner
Laugh-a-lotDielaughing
04-08-2015 11:11 AM
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trailrider Offline

Preferred Members-2

Posts: 304
Joined: Feb 2015

Machine: A10 Autoset for Her
Mask Type: Nasal mask
Mask Make & Model: Eson or P10
Humidifier: autoset
CPAP Pressure: 6-12 DME, 7-13 me
CPAP Software: SleepyHead

Other Comments: engineer. EPR at 3, unheated hose, humidity at 2. Routine hose entanglement.

Sex: Female
Location: Ontario

Post: #6
RE: Newly diagnosed - problems with nasal pillows
Vette 58, Have you downloaded the Sleepyhead software yet to read your data?

With respect to the nasal pillows, myself I had to increase the size to avoid the irritation in the nose.
04-10-2015 08:57 PM
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vette59jdwl Offline

New Members

Posts: 3
Joined: Dec 2014

Machine: res-med S9
Mask Type: Nasal mask
Mask Make & Model: unsure
Humidifier: res-men-3.5
CPAP Pressure: 13
CPAP Software: Not using software

Other Comments:

Sex: Male
Location:

Post: #7
RE: Newly diagnosed - problems with nasal pillows
(04-10-2015 08:57 PM)trailrider Wrote:  Vette 58, Have you downloaded the Sleepyhead software yet to read your data?

With respect to the nasal pillows, myself I had to increase the size to avoid the irritation in the nose.

I gave up on the nasal pillows and went with the full face mask phillips AMARA and i find that i have less leakage with this outfit as far as downloads go I downloaded the one for the res-med but i haven't figured out how to open or use it as of yet,If you do know how to use it any information would be helpfull thank you very much vette59jdwl
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04-11-2015 08:00 AM
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trailrider Offline

Preferred Members-2

Posts: 304
Joined: Feb 2015

Machine: A10 Autoset for Her
Mask Type: Nasal mask
Mask Make & Model: Eson or P10
Humidifier: autoset
CPAP Pressure: 6-12 DME, 7-13 me
CPAP Software: SleepyHead

Other Comments: engineer. EPR at 3, unheated hose, humidity at 2. Routine hose entanglement.

Sex: Female
Location: Ontario

Post: #8
RE: Newly diagnosed - problems with nasal pillows
http://www.sleepfiles.com/SH2/
Try the Sleepyhead software hosted by this site. Most of us here use it to monitor our own sleep events.
04-11-2015 12:45 PM
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