Hello Guest, Welcome to Apnea Board !
As a guest, you are limited to certain areas of the board and there are some features you can't use.
To post a message, you must create a free account using a valid email address.

or Create an Account


New Posts   Today's Posts

[News] Expectant Father Dies in Crash; Family Blames Sleep Disorder
#11
Why was he behind the wheel? Because the general medical community is hopelessly ignorant of sleep apnea and its effects upon patients. They're slow to respond to people suffering from apnea, woefully ignorant of the creeping debilitation that comes upon its victims, and in general very apathetic to the suffering of the patient. Their ignorance is only bested by the general public (i.e. coworkers and bosses).

For months I was degenerating last winter and my new primary care doctor couldn't care less. He was irritated that I was so adamant about getting relief on a time-table less than 6+ weeks when I was already in the throes of exhaustion. It got to the point that I began to suffer from motor functioning unbenknownst to me. I thought my manual transmission was having problems. It was my exhaustion! I could not operate the clutch with enough delicate release so I was continually bucking the car into 1st gear!

I was sure the car had a tranny problem, but my wife could drive it fine. I was perplexed as the issue persisted. After fighting with pcp, insurer, and some go-between known as "care corps" I was able to get a new CPAP machine. Within a week of therapy my transmission magically stopped bucking.

I commuted two hours a day in and out of a major metropolitan area. I had already taken so many days off of work this year, I was at risk of losing my next year's contract. I had to go to keep going to work. All the while I had to spend every waking moment on the phone with doctors and insurers. I thank God for helping me get through it. Without Jesus, I would have cracked completely.
Post Reply Post Reply



Donate to Apnea Board  
#12
FireInCairo, I think *you* deserve the credit for being strong of spirit and persistant as hell.
That's what gets things done. God & Jesus don't do everything *for* us.
Otherwise we'd all be rich and famous without having to try.

Keep up the good work.

hmm...You might want to look into getting going with SleepyHead software so
you can check on any changes in your sleep patterns.
(Another thing some Dr's dont worry about)

Cheers!

Smile
"With ordinary talent and extraordinary perseverance, all things are attainable." - Thomas Foxwell Buxton

Cool
Post Reply Post Reply
#13
(05-02-2013, 07:22 PM)Shastzi Wrote: FireInCairo, I think *you* deserve the credit for being strong of spirit and persistant as hell.
That's what gets things done. God & Jesus don't do everything *for* us.
Otherwise we'd all be rich and famous without having to try.

I credit Jesus with all of it, because I know He worked a miracle through a demented, apathetic medical system that is only going to get worse.

So, for those who will be confronted in the future with the kind of nonsense I had to go through already, don't hesitate to call upon the name of the Lord Jesus!

But... back to my primary point: Apnea has debilitating effects if left untreated that will actually impair your motor function.

I remember before I was finally diagnosed with a sleep study I would slur my speech. I was afraid people would think I was drinking on the job! Unsure
Post Reply Post Reply
#14
The only sleep disorder I know of that deals with pills is narcolepsy. Could that be the case?
Post Reply Post Reply
#15
You know, they bang on about Sleep Apnea drivers over here, but the only sleep Apnea driver that is dangerous in the untreated one or the one that does not use the machine and ignores the symptoms. Insurance companies use it as an excuse to put up peoples premiums.
Nearly all crashes involving a driver with sleep apnea here is before they were getting treatment for it.
Some crashes where a driver was killed we will never know if they suffered form sleep apnea or not.
Over here doctors would turn round and say to a patient "Sleep Apnea never killed anyone" that is if they knew what Sleep Apnea was in the first place.
Most doctors are aware of it these day, but not just so long ago I heard a patient asking to see another doctor because they thought they had Sleep Apnea and was told to go away and loose weight by the doctor they had just seen.
Shocking! You need some energy before you can think of getting the motivation to loose weight.
Doctors over here still look at someone and if they are not over weight they dismiss it as not being Sleep Apnea, only to find after loads of other tests they have to put them for tests for Sleep Apnea in the end.

Post Reply Post Reply



Donate to Apnea Board  
#16
(03-29-2018, 05:51 AM)Sleep2Snore Wrote: Doctors over here still look at someone and if they are not over weight they dismiss it as not being Sleep Apnea, only to find after loads of other tests they have to put them for tests for Sleep Apnea in the end.

I had the superficial profiling technique applied to me by the technicians at my sleep study. I'm 6'2" and 210 lbs (1.88m, 95kg) and the sleep tech wanted to know why I was having a study as she said that my body type didn't match the typical apnea patient. Ignorance doesn't have a profile either.
Jesse

Apnea Board Wiki
Download Sleepyhead
Organize Your Sleepyhead Chart
Attaching Images and Files on Apnea Board


PRS1 Auto/BiPAP Pro, Dreamstation Auto/BiPAP Pro, M Series Remstar Pro/BiPAP Auto, HDM Z1, Resmed Airsense 10 Autoset For Her/Aircurve 10 ASV
Post Reply Post Reply
#17
So true.  So many factors determine whether a person has sleep apnea or not.  Take weight for instance.  I am sure it is a factor, but I lost over 70 pounds.  My pressure increased over 2 points.  Now, that is counter to what doctors and sleep techs will tell you.

The bottom line is do the research and monitor your sleep with tools available to YOU.  And if you feel tired and are dozing off, pull off the road and take a quick nap, or call for somebody to come help.
Post Reply Post Reply
#18
(03-29-2018, 05:51 AM)Sleep2Snore Wrote: You know, they bang on about Sleep Apnea drivers over here, but the only sleep Apnea driver that is dangerous in the untreated one or the one that does not use the machine and ignores the symptoms.  Insurance companies use it as an excuse to put up peoples premiums.
Nearly all crashes involving a driver with sleep apnea here is before they were getting treatment for it.
Some crashes where a driver was killed we will never know if they suffered form sleep apnea or not.
Over here doctors would turn round and say to a patient "Sleep Apnea never killed anyone" that is if they knew what Sleep Apnea was in the first place.
Most doctors are aware of it these day, but not just so long ago I heard a patient asking to see another doctor because they thought they had Sleep Apnea and was told to go away and loose weight by the doctor they had just seen.
Shocking!  You need some energy before you can think of getting the motivation to loose weight.
Doctors over here still look at someone and if they are not over weight they dismiss it as not being Sleep Apnea, only to find after loads of other tests they have to put them for tests for Sleep Apnea in the end.



Some of the symptoms described during the case in Glasgow where the dumper truck driver ran down and killed some pedestrians sounded very much like those from contributors on this site.

Of course telling people to lose weight is a good cop out for the doctors/NHS as it puts off the inevitable when they actually have to get their backsides into gear and really do something for you.
Post Reply Post Reply
#19
(03-29-2018, 07:46 AM)Jamizer Wrote: So true.  So many factors determine whether a person has sleep apnea or not.  Take weight for instance.  I am sure it is a factor, but I lost over 70 pounds.  My pressure increased over 2 points.  Now, that is counter to what doctors and sleep techs will tell you.

The bottom line is do the research and monitor your sleep with tools available to YOU.  And if you feel tired and are dozing off, pull off the road and take a quick nap, or call for somebody to come help.

I was around 250lb, and now down to 217lb. Didn't make a difference to me, and in fact, my mask fits worse now, and sometime I have even worse nights. Switching to BIPAP helped only a little and I'm still working to get rid of my LOW O2!

The doctors here in Texas I've seen so far, could care less. Don't even think about going to an Emergency Room, because I tried twice, when I was having low O2 issues, and they couldn't do anything. They said well..your O2 is fine now in the ER. Well OF COURSE it is fine when I'm awake, you idiot doctor! It's when I'm asleep it drops to 70-80%! They refer back to sleep doctor, who just tells me "everything is okay and AHI is within limits".
ResMed AirCurve 10 vAuto. (DME loaner to try for 1 month)
Pressure EPAP min 5, IPAP Max 16, PS 3.
...........

ResMed AirSense 10 Auto. (currently not using)
Pressure 7-14 EPR1.
Post Reply Post Reply



Donate to Apnea Board  
#20
It's my thought that loosing weight just makes your airway looser and collapse more. At least for awhile. But I'm no doc.
Post Reply Post Reply


Possibly Related Threads...
Thread Author Replies Views Last Post
Question How to get my father new CPAP? dk2011 8 261 03-31-2018, 07:12 PM
Last Post: Hydrangea
  Catathrenia: a different kind of sleep disorder treated with xPAP HalfAsleep 2 220 01-31-2018, 12:58 AM
Last Post: kiwii
  Sleep Disorder Text books or Literature doickle 2 348 02-10-2017, 04:15 PM
Last Post: kwhenrykerr
  Amara View - Straps Aggravate TMJ Disorder oldbushie 4 609 12-17-2016, 09:19 AM
Last Post: oldbushie
  Just learned I have sleep apnea, waiting to hear full results of sleep study SleeplessInOklahoma 18 2,069 09-06-2016, 04:41 PM
Last Post: livingwithapnea
  What is "Clear Airway" it's not in the sleep disorder glossery Tiercel 8 1,175 06-22-2016, 08:29 PM
Last Post: richb
Information Family support ezdrifler 15 1,478 01-23-2016, 09:47 PM
Last Post: pupcamper

Forum Jump:

New Posts   Today's Posts




About Apnea Board

Apnea Board is an educational web site designed to empower Sleep Apnea patients.