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Night sweats, SpO2 drops, insomnia, low temp 96.7F
#1
Night sweats, SpO2 drops, insomnia, low temp 96.7F
I just was in the hospital for a few days for DVT and PE (blood clots in my lungs and leg). I got released yesterday. While there, I told them about my O2 drops I've always had, and one time they did catch it on their medical grade monitor. I had insomnia at the hospital as well and every time i tried to go to sleep, I'd wake up with my oxygen dropping.

Well I came home, tried to sleep last night, and can't! I tried taking melatonin just like they gave me in the hospital. Didnt work. 

I also took my temp and it is 96.7F and I woke up with major night sweats previously. But now i cant go back to sleep at all.

I'm not sure what is going on, I have a low thyroid condition but take medicine for it and tests show it always normal range.
I read about Wilson's Temperature Syndrome and this sounds like it could be something similar then what im experiencing . I dont know.
I also woke up with those night sweats causing anxiety and shakes as well.

Does this sound familiar to anyone?
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Pressure EPAP min 4, IPAP 8, IPAP Max 14, PS 4.

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#2
RE: Night sweats, SpO2 drops, insomnia, low temp 96.7F
I am sorry that you are not feeling well.  Are you sure about the 76.7 F temperature?  That temp is virtually impossible for a  living human.
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#3
RE: Night sweats, SpO2 drops, insomnia, low temp 96.7F
I meant 96.7 F.
ResMed AirCurve 10 vAuto
Pressure EPAP min 4, IPAP 8, IPAP Max 14, PS 4.

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#4
RE: Night sweats, SpO2 drops, insomnia, low temp 96.7F
Going into the hospital can be pretty traumatic. Maybe it's stress from concern over your health that's causing everything since you got home? I'd check with the Doctor if it continues and good wishes to you.
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#5
RE: Night sweats, SpO2 drops, insomnia, low temp 96.7F
My brother gets the problem you describe. Doc thinks it is related to immune system depression (in his case, a medication). He has a lot of medical problems however. My suggestion is to give your primary doc's office a call and report your symptoms. They may want to see you earlier than later.
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#6
RE: Night sweats, SpO2 drops, insomnia, low temp 96.7F
(05-21-2018, 11:03 AM)MyronH Wrote: I meant 96.7 F.

MyronH,
I edited your post to 96.7 Smile
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#7
RE: Night sweats, SpO2 drops, insomnia, low temp 96.7F
(05-21-2018, 11:29 AM)Mosquitobait Wrote: My brother gets the problem you describe.  Doc thinks it is related to immune system depression (in his case, a medication).  He has a lot of medical problems however.  My suggestion is to give your primary doc's office a call and report your symptoms.  They may want to see you earlier than later.

I went today to my Primary Care Doc, a Pulmonologist, and my Sleep Doc. I got nothing but blank stares from them, thinking I'm crazy. My Primary Care said he could refer me to a neurologist, but otherwise he couldn't do anything else for me. Pulmonologist said this was a sleep issue, to go to sleep doc, and that my lungs were okay, even with the DVT/PE clots, they expect them to clear up.

I just got back from my Sleep Doc, and all he did was pull the ResMed Summary for the last 30 days, showing I had very low OA and low CA. He said he wouldn't put me on a BIPAP with Backup Rate, because other days I'm just fine, and everyone has CA's.

He refused to ask his nurse for a detailed report of this one day, that showed all my CA's, and I told him my respiratory drive felt very depressed. He seemed not concerned and was trying to assure me all is okay. He thinks going to a Neurologist is a long stretch and probably won't get to any conclusion of my night sweats or depressed respiratory state. The Sleep Doc said he did believe me I may have had one day with a lot of CA's, but he was not concerned, since the summary showed low AHI numbers for OA and CA.

******I AM FRUSTRATED******* by all my doctors and how I'm not getting any answers. It SUCKS to have these days/nights were my respiratory drive feels depressed, and then I CAN'T sleep because of it. And I hate these NIGHT SWEATS! Something is causing them to happen, because when i wake up, I FEEL TERRIBLE in my chest, and my heart is racing/palpitations.

This is from 5/18 where I had a lot of CA's while in the hospital. The hospital O2 monitor also picked up my O2 dropping one time.
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#8
RE: Night sweats, SpO2 drops, insomnia, low temp 96.7F
(05-21-2018, 05:32 PM)MyronH Wrote:
(05-21-2018, 11:29 AM)Mosquitobait Wrote: My brother gets the problem you describe.  Doc thinks it is related to immune system depression (in his case, a medication).  He has a lot of medical problems however.  My suggestion is to give your primary doc's office a call and report your symptoms.  They may want to see you earlier than later.

I went today to my Primary Care Doc, a Pulmonologist, and my Sleep Doc. I got nothing but blank stares from them, thinking I'm crazy. ...

I just got back from my Sleep Doc, and all he did was pull the ResMed Summary for the last 30 days, showing I had very low OA and low CA. He said he wouldn't put me on a BIPAP with Backup Rate, because other days I'm just fine, and everyone has CA's.
...

******I AM FRUSTRATED******* by all my doctors and how I'm not getting any answers. It SUCKS to have these days/nights were my respiratory drive feels depressed, and then I CAN'T sleep because of it. And I hate these NIGHT SWEATS! Something is causing them to happen, because when i wake up, I FEEL TERRIBLE in my chest, and my heart is racing/palpitations.
...

It looks like your being crazy isn't interfering with their assessments so it's good you don't have to deal with that.  Unfortunately I don't have any wise counsel; after my two ER visits at Christmas and mid-January, I slept pretty well after returning home, and my numbers were about as good as yours.  Though the first was extremely stressful, I din't experience what you're going through.

I wish I could say something to relieve your anxiety and frustration; as others have mentioned and I'm sure you've read that this therapy takes time to be manifest in our feelings of well-being.  And I have recently had the experience of taking many weeks to arrive at that wonderful experience.  I hate spewing platitudes, but my sincere suggestion is to hang in there, give it time.  And try to find ways to ♪"Don' worry, be happy!"♫
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#9
RE: Night sweats, SpO2 drops, insomnia, low temp 96.7F
I have no suggestions that would counter the information and recommendations of your doctors. If you had access to ASV would you try it? There is really nothing that suggests you need it, and one outlier night in a hospital with an AHI less than 8 isn't going to persuade them. The way I figure it, if you have something in mind, you're pretty much on your own to get it and prove it works.
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#10
RE: Night sweats, SpO2 drops, insomnia, low temp 96.7F
Hi Myron,
Sorry about all the difficulties you're having. Before I started cpap, I would gasp awake drenched in sweat...had bad hypertension and morning headaches. This stopped after I got on xpap. Still have hypertension...but much easier to control.

I got frustrated by the MD/DME system and simply broke free of all that stuff. I buy my machines and supplies off Craigslist or online. Got advice on a forum like this to fine tune tx and my life is much easier. (saving money too)

Last point I wanted to make was the low temp. Most people who take melatonin take too much. It's actually a hormone and effective doses are fairly low. High dose melatonin (10 mg or more) can actually cause a bit of hypothermia. I take 3.5 mg (half a 7 mg tab) and it seems to be effective.
Hope you get things squared away,
JD
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