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Noo B or not Noo B - is that the question?
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rkl122 Offline

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Posts: 74
Joined: Apr 2016

Machine: Philips Respironics System One 560P (Auto, Aflex, 60 Series)
Mask Type: Nasal pillows
Mask Make & Model: PR Dreamware Frame Med, Pillow MW
Humidifier: Remstar System One - Hose Unheated
CPAP Pressure: low 8.5, high 12.5, expting
CPAP Software: SleepyHead EncoreBasic

Other Comments:

Sex: Male
Location: NJ

Post: #1
Noo B or not Noo B - is that the question?
Hello all. New poster. I'd been on CPAP three years ago for ~16 months before a (new) sleep study Rx'd by a new doc found that I didn't have OSA at all. But around 2 mos. ago, a third study showed AHI of 24 and the doc said back to therapy. Then I discovered this great group (friendly and informative) and SleepyHead (a gem!), so the masked man rides again. Been at it two months, and AHI is flirting with the 5 threshold. It would break 5 more often if it weren't for event clusters in half hour chunks - largely CA and HA. (I'm aware that newbies get these clusters, but still have questions about them. Will start a separate thread on that.)

When I saw the doc after this last sleep study, I said "this is bogus." He says "why?" I say, well look, I never went deeper than level 2 sleep - no REM - and didn't have a single OA, yet they diagnose Obstructive Sleep Apnea. (I've since learned that's a generic name.) I don't snore and my BMI is just a tad above normal range. But most of all, the first night back on the machine, the AHI was 9.7, nowhere near 24. And he says... That's because you were on therapy, dummy! DOH! Well, he didn't actually say "dummy," but it never occurred to me that one night of therapy could more than halve the AHI. Doh again.

Bottom line: I'm now pretty well convinced I'm in the club, and feel I'm on the path to effective treatment. I feel fortunate I was given an APAP machine 3 years ago, when I didn't know diddly about feature distinctions. I've learned a ton from lurking here, and hope to post on aspects about which I'm still confused. Thanks for being here.

-Ron

PS. Important advice: If you use a boil and bite toothguard prone to falling out and getting lost in the bed in the middle of the night, don't test it while your wife is on her heating pad. My toothguard now resembles a gum wad recovered from under a 19th century park bench.

We are such stuff
As dreams are made on, and our little life
Is rounded with a sleep.
(This post was last modified: 06-02-2016 05:30 PM by rkl122.)
06-02-2016 05:25 PM
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pupcamper Online

Advisory Members

Posts: 399
Joined: Nov 2015

Machine: PR DreamStation CPAP Pro
Mask Type: Nasal pillows
Mask Make & Model: AirFit P10 Pillows; Quatro Air FFM
Humidifier: DreamStation Heated Humidifier
CPAP Pressure: 10.5 cmH2O; no ramp; no C-Flex
CPAP Software: SleepyHead EncorePro

Other Comments: Lung cancer survivor since 11/2004; CPAP since 11/2015

Sex: Male
Location: Van Buren, Arkansas, USA.

Post: #2
RE: Noo B or not Noo B - is that the question?
Welcome to the forum, rkl122. That sounds like quite a journey. Welcome to the forum and good luck on your treatment.

"....respiration,—a troublesome practice, but one which custom has rendered necessary to our easy existence...." Oliver Twist, Charles Dickens- 1837

I use FlashPAP to load data from a FlashAir III wifi sd card in my machine to my computer and display it with SleepyHead .
robysue's Beginner's Guide to SleepyHead
06-02-2016 05:35 PM
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justMongo Offline

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Posts: 3,840
Joined: Sep 2013

Machine: ResMed VPAP Auto (S9)
Mask Type: Full face mask
Mask Make & Model: ResMed Mirage Quattro
Humidifier: ResMed H5i
CPAP Pressure: 18 IPAPmax - 11 EPAPmin, PS=5
CPAP Software: Other Software

Other Comments: μολὼν λαβέ

Sex: Male
Location: Калифорния

Post: #3
RE: Noo B or not Noo B - is that the question?
Welcome

Welcome to ApneaBoard.

INFORMATION ON APNEA BOARD FORUMS OR ON APNEABOARD.COM SHOULD NOT BE CONSIDERED AS MEDICAL ADVICE. ALWAYS SEEK THE ADVICE OF A PHYSICIAN BEFORE SEEKING TREATMENT FOR MEDICAL CONDITIONS, INCLUDING SLEEP APNEA. INFORMATION POSTED ON THE APNEA BOARD WEB SITE AND FORUMS ARE PERSONAL OPINION ONLY AND NOT NECESSARILY A STATEMENT OF FACT.
06-02-2016 06:26 PM
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OpalRose Offline

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Posts: 3,166
Joined: Nov 2014

Machine: PR System One REMstar Auto 560 with A Flex
Mask Type: Nasal pillows
Mask Make & Model: AirFit P10 For Her
Humidifier: REMStar heated humidifier with heated hose
CPAP Pressure: Auto Cpap 10-13 AFLEX 1
CPAP Software: SleepyHead EncoreBasic

Other Comments: Started CPAP Therapy October 23, 2014

Sex: Female
Location: Northeast Ohio, USA

Post: #4
RE: Noo B or not Noo B - is that the question?
Welcome to the forum rkl122,
Glad your here! Feel free to ask questions, someone is always here to help.
Sleep-well

OpalRose
06-02-2016 06:56 PM
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trish6hundred Offline

Advisory Members

Posts: 6,430
Joined: May 2012

Machine: Resmed S9 AutoSet for Her
Mask Type: Full face mask
Mask Make & Model: Fisher & Paykel Simplus
Humidifier: H5i Heated Humidifier
CPAP Pressure: 10 - 7-20 Cm H2O
CPAP Software: Not using software

Other Comments: I started CPAP in 2008. Totally blind since birth.

Sex: Female
Location: Missouri, USA

Post: #5
RE: Noo B or not Noo B - is that the question?
Hi rkl122,
WELCOME! to the forum.!
Much success to you as you continue your CPAP therapy, hang in there for more responses to your post.

trish6hundred
06-02-2016 10:22 PM
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chill Online

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Posts: 850
Joined: Mar 2016

Machine: DreamStation X500
Mask Type: Full face mask
Mask Make & Model: Walk-in Mask Closet
Humidifier: DreamStation
CPAP Pressure: 13-16
CPAP Software: SleepyHead

Other Comments: CPAP True Believer

Sex: Male
Location: Vancouver, Canada

Post: #6
RE: Noo B or not Noo B - is that the question?
Hi Ho Silver! Welcome to the club. All the cool kids hang out here.
06-02-2016 11:44 PM
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richb Online

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Posts: 525
Joined: Jun 2015

Machine: Resmed AirCurve 10 ASV
Mask Type: Nasal mask
Mask Make & Model: ResMed Mirage FX
Humidifier: Built in
CPAP Pressure: Epap 6 Ipap 8 Auto ASV
CPAP Software: ResScan SleepyHead

Other Comments: Idiopathic Central Apnea

Sex: Male
Location: Vermont

Post: #7
RE: Noo B or not Noo B - is that the question?
Hi rkl122,

You might want to post some screenshots from Sleepyhead. You could get some suggestions as to how others have controlled their CA and H numbers. You will also get feedback as to wether your current machine is appropriate for your particular condition.

Rich

Apnea Board Member RobySue has posted a Beginners Guide to Sleepyhead Software here: http://www.apneaboard.com/wiki/index.php...SleepyHead
06-03-2016 07:58 AM
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BadGoodDeb Offline

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Posts: 210
Joined: Apr 2015

Machine: ResMed Airsense 10 autoset
Mask Type: Nasal pillows
Mask Make & Model: AirFit P10 for Her
Humidifier: no
CPAP Pressure: 8 (testing 7.8-10)
CPAP Software: SleepyHead

Other Comments: New to AirSense 10 and AirFit P10, but 4 years on prev unit

Sex: Female
Location: Chicago outskirts (Aurora, IL)

Post: #8
RE: Noo B or not Noo B - is that the question?
snortle chuckle chortle about the bite guard problem!! Sorry you had to discover that for us -- but it's a useful rule to know about. Big Grin Wink
06-03-2016 01:00 PM
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rkl122 Offline

Preferred Members

Posts: 74
Joined: Apr 2016

Machine: Philips Respironics System One 560P (Auto, Aflex, 60 Series)
Mask Type: Nasal pillows
Mask Make & Model: PR Dreamware Frame Med, Pillow MW
Humidifier: Remstar System One - Hose Unheated
CPAP Pressure: low 8.5, high 12.5, expting
CPAP Software: SleepyHead EncoreBasic

Other Comments:

Sex: Male
Location: NJ

Post: #9
RE: Noo B or not Noo B - is that the question?
Thanks fellow aspiring respirants for the warm welcome.


(06-03-2016 01:00 PM)BadGoodDeb Wrote:  snortle chuckle chortle about the bite guard problem!! Sorry you had to discover that for us -- but it's a useful rule to know about. Big Grin Wink
Heh, yeah, I'm on my 'guard' so to speak. BTW, by the time I thought to change "wife" to "spouse," the edit button was gone.Oh-jeez

richb Wrote:You might want to post some screenshots from Sleepyhead. You could get some suggestions as to how others have controlled their CA and H numbers. You will also get feedback as to wether your current machine is appropriate for your particular condition.
Yes, thanks Rich, I plan to do that. Problem is I'm not clear which is the best night to post. As others have noted, there's no typical pattern. Some nights there's a tight cluster of events - maybe a half hour window, other nights, 1-2 hour clusters, other nights, events are pretty evenly spread out. As a scientist in a former life, I'm dataphilic, but am going nuts looking for correlations between graphs. Most nights, I do have noticeable, brief windows of enhanced respiration rate - a rise of 30-40% once or twice a night, and they may be correlated with flow or leak changes. Can't say for sure. (I think some of them, not all, correlate with waking periods.)

Browsing the SH data, though, is fun. I try not to remind myself I'm looking at the nuts and bolts of a mortality risk factor.

I switched to the MW pillow on the Dreamware mask a couple days ago. I think it's my size. After a bit more experience, I'll post some data.

-Ron

We are such stuff
As dreams are made on, and our little life
Is rounded with a sleep.
06-03-2016 02:49 PM
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chill Online

Advisory Members

Posts: 850
Joined: Mar 2016

Machine: DreamStation X500
Mask Type: Full face mask
Mask Make & Model: Walk-in Mask Closet
Humidifier: DreamStation
CPAP Pressure: 13-16
CPAP Software: SleepyHead

Other Comments: CPAP True Believer

Sex: Male
Location: Vancouver, Canada

Post: #10
RE: Noo B or not Noo B - is that the question?
The rise in respiration rate might also indicate REM sleep. The clustered events are probably more interesting to look at than the spread out ones. I know what you mean about the graphs, it is kind of like trying to read chicken entrails.
06-03-2016 10:30 PM
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