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Numbers Good, Still Feeling Bad, What Would SleepyHead Tell Me?
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crezman Offline

Members

Posts: 15
Joined: Sep 2016

Machine: RESMED AirSense 10 Autoset
Mask Type: Nasal pillows
Mask Make & Model: RESMED
Humidifier: Unsure
CPAP Pressure: 10
CPAP Software: SleepyHead

Other Comments:

Sex: Male
Location: Pacific Northwest USA

Post: #1
Numbers Good, Still Feeling Bad, What Would SleepyHead Tell Me?
I've been on CPAP for about a year now on the RESMED AirSense 10, nasal pillows RESMED AirFit P10 mask. Pre CPAP I had about 20 events an hour but worse than that the doctor said was how very low my oxygen levels were every night.

After CPAP, my numbers have always looked good according to the doctors. I average 8 hours of sleep a night, very low to no leaks, less than 1-2 AHI per hour, and rarely take the mask off but I still feel terrible.

Many of my symptoms have come down or entirely gone away: the pressure feeling in my head; morning headaches, and acid reflux.

But I am still really tired, have massive brain fog, can't read past 1-2pm in the day and am almost entirely unfunctional at night. I used to go out some times at night. I basically don't any more.

The doctor has said that my best pressure is at 10. We tried going over 10 this week and that kept waking me up and now I feel worse.

The next step is she wants to put me on Nuvigil or Provigil. I'm not against this but I'd like to make 100% sure I've done all I can on the machine end. My doctor thinks we have. She thinks the machine is working as well as it's ever going to work and that the fatigue and brain fog issue is my hormones.

My question: what would SleepyHead tell me that the doctor's haven't?

Thanks,

Chris
(This post was last modified: 09-02-2016 11:00 PM by crezman.)
09-02-2016 10:55 PM
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chill Online

Advisory Members

Posts: 864
Joined: Mar 2016

Machine: DreamStation X500
Mask Type: Full face mask
Mask Make & Model: Walk-in Mask Closet
Humidifier: DreamStation
CPAP Pressure: 13-16
CPAP Software: SleepyHead

Other Comments: CPAP True Believer

Sex: Male
Location: Vancouver, Canada

Post: #2
RE: Numbers Good, Still Feeling Bad, What Would SleepyHead Tell Me?
You will never know until you look. I am in a similar situation, and my sleep doctor is sending me for another sleep study. There are a few other possibilities besides just OSA (limb movements, events that cause a partial awakening but don't score on AHI). Or it could be medications, or hormones or... I imagine the list is rather long.

Those medications sound pretty nasty. I'd be pushing my doctor to do tests and get a proper diagnosis. If it is your hormones, then treat that. Those medications look like a dodge, not a diagnosis.
09-03-2016 12:56 AM
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trish6hundred Offline

Advisory Members

Posts: 6,450
Joined: May 2012

Machine: Resmed S9 AutoSet for Her
Mask Type: Full face mask
Mask Make & Model: Fisher & Paykel Simplus
Humidifier: H5i Heated Humidifier
CPAP Pressure: 10 - 7-20 Cm H2O
CPAP Software: Not using software

Other Comments: I started CPAP in 2008. Totally blind since birth.

Sex: Female
Location: Missouri, USA

Post: #3
RE: Numbers Good, Still Feeling Bad, What Would SleepyHead Tell Me?
Hi crezman,
WELCOME! to the forum.!
I wish you good luck with your CPAp therapy.

trish6hundred
09-03-2016 04:29 PM
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eseedhouse Online

Advisory Members

Posts: 882
Joined: Dec 2014

Machine: ResMed Airsense 10 Autoset
Mask Type: Full face mask
Mask Make & Model: SimPlus
Humidifier: ResMed
CPAP Pressure: 7-10
CPAP Software: SleepyHead

Other Comments: Also on supplemental O2 at 3L/min. while sleeping.

Sex: Male
Location: Victoria, British Columbia

Post: #4
RE: Numbers Good, Still Feeling Bad, What Would SleepyHead Tell Me?
Get an overnight oxymetry study. I had great AHI numbers as soon as I started and fully compliant, but was feeling worse, not better. An overnight oxymetry study showed that even with the machine my oxygen levels were going way down so supplemental oxygen was added in and that turned things around.

Ed Seedhouse
VA7SDH

I am neither a Doctor, nor any other kind of medical professional.

Actually you know, it is what it isn't.
09-03-2016 08:42 PM
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zonk Offline

Advisory Members

Posts: 7,908
Joined: Feb 2012

Machine: A10 AutoSet
Mask Type: Nasal mask
Mask Make & Model: Activa LT
Humidifier: Integrated /ClimateLineAir
CPAP Pressure: 9/13
CPAP Software: ResScan

Other Comments: CPAP since Nov 2010

Sex: Male
Location: Australia

Post: #5
RE: Numbers Good, Still Feeling Bad, What Would SleepyHead Tell Me?
(09-02-2016 10:55 PM)crezman Wrote:  My question: what would SleepyHead tell me that the doctor's haven't?

Thanks,

Chris
[Image: ResMed-AirSense-10.png]
[should say "AutoSet, AutoSet for Her, Elite or CPAP"]
If does say "CPAP", if I'm not mistaken, SleepyHead is not going tell you anything
ResScan (windows only) will tell you some information but no detailed data graphs

As for pressure 10 and low AHI, in scheme of things, events like snoring and flow limitation do not form part of AHI but nevertheless, can be troublesome, affect our sleep quality and prevent us from getting into deeper restorative sleep
In my opinion ...
APAP, like AirSense 10 AutoSet with the right pressure range can deal with all apnea, snoring and flow limitation and achieve a better outcome

Welcome
09-03-2016 09:22 PM
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Sleepster Offline
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Moderators

Posts: 4,995
Joined: Feb 2012

Machine: ResMed AirCurve10 VAuto
Mask Type: Full face mask
Mask Make & Model: F&P Simplus
Humidifier: HumidAir and SlimLine Hose
CPAP Pressure: MaxI 13.6 | MinE 5.2 | PS 4.4
CPAP Software: ResScan SleepyHead

Other Comments: Diagnosed Nov 2011. Conquered aerophagia.

Sex: Male
Location: Houston, Texas

Post: #6
RE: Numbers Good, Still Feeling Bad, What Would SleepyHead Tell Me?
(09-02-2016 10:55 PM)crezman Wrote:  My question: what would SleepyHead tell me that the doctor's haven't?

Doctors usually check only summaries. SleepyHead will give you the details used to prepare those summaries. For example, even though every statistic indicated my therapy was effective, and I had my data checked annually by a doctor who specializes in CPAP therapy, I could tell by looking at my leak graph that something was wrong. Eventually I hit upon a full face mask as the solution that finally got me sleeping much much better.

Sleepster
Apnea Board Moderator
www.ApneaBoard.com


INFORMATION ON APNEA BOARD FORUMS OR ON APNEABOARD.COM SHOULD NOT BE CONSIDERED AS MEDICAL ADVICE. ALWAYS SEEK THE ADVICE OF A PHYSICIAN BEFORE SEEKING TREATMENT FOR MEDICAL CONDITIONS, INCLUDING SLEEP APNEA. INFORMATION POSTED ON THE APNEA BOARD WEB SITE AND FORUMS ARE PERSONAL OPINION ONLY AND NOT NECESSARILY A STATEMENT OF FACT.
09-04-2016 07:00 PM
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crezman Offline

Members

Posts: 15
Joined: Sep 2016

Machine: RESMED AirSense 10 Autoset
Mask Type: Nasal pillows
Mask Make & Model: RESMED
Humidifier: Unsure
CPAP Pressure: 10
CPAP Software: SleepyHead

Other Comments:

Sex: Male
Location: Pacific Northwest USA

Post: #7
RE: Numbers Good, Still Feeling Bad, What Would SleepyHead Tell Me?
(09-03-2016 08:42 PM)eseedhouse Wrote:  Get an overnight oxymetry study.

Thanks, I think she did this because she knew my oxygen levels but I'll ask about the oxygen again.
09-04-2016 10:41 PM
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cate1898 Offline

Advisory Members

Posts: 784
Joined: Aug 2015

Machine: PR System One 560BT Auto
Mask Type: Nasal pillows
Mask Make & Model: P10's/backup-DreamWear
Humidifier: PR attached
CPAP Pressure: 8.5 - 13. A-Flex 3
CPAP Software: SleepyHead

Other Comments: Began CPAP Therapy Sept. 11, 2015. Hx Hypertension, Post Graves Disease, chronic migraines.

Sex: Female
Location: Southern Ontario//SW Florida

Post: #8
RE: Numbers Good, Still Feeling Bad, What Would SleepyHead Tell Me?
Hi crezman and welcome to the forum!

Sounds like you are using a fixed pressure as opposed to auto mode. So have you looked at your machine as zonk suggested to see what kind it is? Sleepyhead shows a lot more details if you are using either the Elite, or one of the auto machines.

APNEABOARD - A great place to be if you're a hosehead!! Rolleyes

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EVERY ACCOMPLISHMENT BEGINS WITH THE DECISION TO TRY!
09-05-2016 06:16 AM
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