How are you now? I have similar problems. I have Wolff-Parkinson-White syndrome with atrial fibrillation. Average rate was measured in the electrophysiological catheter laboratory at 190 and the minimum interval between the irregular pulses represented a rate of 250. This was 1990. Ablation was not then available at our nearest cardiac centre but it was by 1991/92. The doctor I saw was a pretty bright guy and he went to the USA in 1990 for ablation training I believe.
Anyway, it scared the you know what out of me. I had suffered from tachycardias for 4 years already and local general practitioners in those days knew nothing at all about these kinds of conditions so I remained undiagnosed for that 4 years (1986-1990) and strictly for 8 years because I had an isolated but slightly different heart episode at school in 1982.
I have been on an anti-arrhythmic drug for 25 years as of now (December 2015) and by and large it was worked wonderfully, though not perfectly. I have discussed ablation several time over the years with my cardiologist and he kind of leaned towards leaving it alone unless there was any breakthrough of symptoms again. Apparently the WPW syndrome pathway can probably easily be ablated but there might still remain a tendency to atrial fibrillation which from what I understand can have a much more involved ablation process.
Anyway, I have been waking up very breathless and disoriented early in the morning on occasions since 2011. I suspected that maybe I had arrhythmias again but sometimes there is definitely no arrhythmia and if the ambulance comes the ECG is always the same (sinus rhythm but with some abnormalities that would show up anyway). I suspect sleep apnea or some other problem.
I have previously woken with arrhythmias and a similar feeling of disorientation because it is a very weird and unpleasant thing to have as you know! My first AF episode was on waking in early 1986. I have a feeling that now I am suffering from something different that puts me under great stress and can sometimes start to trigger an arrhythmia but the heart medication is preventing it from happening usually. In the past, (1986-1990), just about anything or even nothing could trigger an arrhythmia - they were practically spontaneous and would last 30-90 minutes in general if they got going. I would also have loads of near misses, perhaps ectopic beats that disturbed the heart rhythm for a second or two. I still get those from time to time and it puts me right on edge.
I am pretty convinced that I have sleep disorder. I don't know if it stress related or breathing related so I joined the forum today. I found your post very interesting.
I have just ordered an oxygen saturation monitor because I had a bad episode at 6am today on waking up. Maybe that will show something. If I had realized they were so cheap I would have bought one ages ago! If I call the ambulance and it arrives even in a few minutes, the breathlessness episode is often nearly over and I am just sitting there with the paramedic giving me an ECG (EKG in the USA) and feeling like an idiot because most of the episode has usually passed. I want to catch it early if I can and see what is going on.
Have you ever been to a sleep laboratory? I have not but I suspect if I did I would be symptom free for the days when I am there and ill the first day I got home!
(02-23-2012 02:12 AM)SuperSleeper Wrote: [copied from our old forum]
jeffy1958 Wrote:Ever since joining this board I've been compelled to write - in detail - what I know about APNEA & HEART. It is extremely important for "ALL" of us to enter into the deep restfull (REM) sleep. ...
... I experienced several incedents of SVT's (Supraventricular tachycardia) and A-FIB's (Atrial fibrillation). To stop the SVT's they stop your heart for about 10 - 15 seconds. Or for those of us that are tech savy - they "re-boot" your heart. I'm here to tell you it is THEE worst God awfull feelling in the world. By the way - SVT's cause your heart to race. A-Fibs cause your heart to "flutter". I was told your heart rate should never exceed 160 bpm no mater what you are doing. My rate topped out at 240 bpm.
I was convinced by Dr. B that I needed a Catheter ablation. In a nut shell - there was a problem with the electrical impulses in my heart and the only way to cure is to "burn" the short. Cut a hole in your leg and neck, insert some probes, induce the problem and burn that part of the inside of your heart. Yeah... I'm an electrician and I've never fixed a short by burning the wires. But I trusted Dr. B. After TWO ablations, ONE stenting, and ONE balloning in a two month period I still had irregular heart beats. I tried for several weeks to explain this to Dr. B and he suggested I go in for a "sleep study"!!! What the hell has that got to do with my heart. Reluctanly I went and spent the night in the hospital.
Not happy with Dr. B I put my tail between my legs and went back to Dr. A to find out what is going on. By this time I have been on my "machine" for about a week. Dr A said he was happy to see I was on Cpap therapy and he would have did this first!!! Saaaay Whaaaat??? He then went in details and explained how important it is for you to sleep to allow your heart to rest, heal, and repair and it can't do that if you are constantly waking to breath. It is possible that I may not have gone through all those "proceedures".
The bottom line is this - Don't mess around. Don't play around with Sleep Apnea. Get the therapy / treatment you need and get into it all the way. ....