Imagine having diabetes. Every day, before meals, you give yourself an injection or you take a pill. Doesn't matter what you eat or how much you eat, you do it. You test your blood but you don't see the results. It only notes that you tested it because you are required to do so X times a day. Once a year you go see a specialist who does nothing more than ask how you are feeling, confirms on your meter than you did indeed test enough times per day, and then he sends you home. No changes are made unless you are feeling bad too often or whatever.
Sounds ridiculous, right? But that is how the "sleep specialists" treats those of us with sleep apnea. And that is how the vast majority of people with sleep apnea believe is perfectly fine to be treated.
It is not acceptable. And it should not be.
It is not like we are the only patients with a self-treatable disorder. People with diabetes self-treat themselves all over the world. And that is a disease where screwing it up can be deadly. So why are we considered criminals? We are guilty until proven innocent. The ONLY thing they care about in the beginning is compliance. How many hours on average did we use the machine. Nothing else. Why can't we be educated and taught how to treat ourselves just like people with diabetes are? Sleep apnea can be just as deadly, affects just as many systems, etc. Left untreated because the patient was not educated, it can even be the cause of diabetes! Now the patient is educated. The barn door is closed after the cows got out. It is like bailing out the boat without finding out where the water is coming from. Or knowing where it is but not bother to patch it.
Even within our own community we are criminalizing each other. Other forums attack members for even mentioning getting into the clinician menu.
Apnea Board Moderator
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INFORMATION ON APNEA BOARD FORUMS OR ON APNEABOARD.COM SHOULD NOT BE CONSIDERED AS MEDICAL ADVICE. ALWAYS SEEK THE ADVICE OF A PHYSICIAN BEFORE SEEKING TREATMENT FOR MEDICAL CONDITIONS, INCLUDING SLEEP APNEA. INFORMATION POSTED ON THE APNEA BOARD WEB SITE AND FORUMS ARE PERSONAL OPINION ONLY AND NOT NECESSARILY A STATEMENT OF FACT.
I never saw a sleep specialist.
(06-16-2015, 12:39 PM)OpalRose Wrote: Yes, there are other forums, one in particular, where the members attack new folk and old. I believe these are adults who should know better; but yet they act like they are in a high school clique. Glad I found this forum.
Would someone be so kind as to PM me the name of this forum so I make sure to steer clear of it?
Reformed CPAP Outlaw
It kinda depends. My GP isn't a specialist, but she and I are tight when it comes to managing my therapy and my RT (now that I have a good DME) is the same. I voted "less than a year" because I see both of those two regularly. If it were just the sleep doc, it would have been "2-3 years ago" as I only dealt with them for the diagnosis.