Hello Guest, Welcome to Apnea Board !
As a guest, you are limited to certain areas of the board and there are some features you can't use.
To post a message, you must create a free account using a valid email address.

or Create an Account


New Posts   Today's Posts

Oldie but Newbie
#1
Hi Everyone..... I've been lurking in the shadows for the past few months and felt it was time to join. What a great forum this is, filled with useful tips, knowledge and insight.
It took years upon years to finally get the docs to understand what I was going through since my late teens. All the symptoms were there and it wasn't until 5 years ago that my wife of 30 years (who thank God has put up with and stood by me)urged and convinced me to ask my doctor to make a referral to have a sleep study done. Well I have to admit that she was right..... I was diagnosed with Complex sleep apnea, AHI's in the fifties.
Like so many before me I took the sleep study, had a consultation and given another sleep study to determine which type of machine would be best for me. Well I was given a Respironics Bipap ST with the settings of 15/10 and told " here ya go. Well after another year, things weren't yet right. I went back to the doc and told them how I was feeling and low behold wouldn't you know it, I was given another sleep study and told at the consultation that everything would stay the same.
Somewhere along lines of communication I fell in between the cracks and didn't hear back from the Doc. Well early December 2014 I decided enough was enough and I was tired of being tired, it was then I decided to seek out another study with a different Doc. Well the study was just 2 weeks ago, what an enlightening and eye opening experience. At the end of the study when they came in and woke me up, I can honestly say that I have never been or felt that alert, awake, aware, calm in my entire life. As it turns out I had actually only slept about 3 hours and the next 17 hours were awesome. OMG I WANT MORE OF THAT !!!!
Well, it turns out that I'll be going back in 3 weeks for another study because the therapueatic intervention utilizing BIPAP ST at 20 IPAP / 16 EPAP was ineffective in controlling the apneas. So this study will be a titration with an ASV.

But anyway I apologize for the rant ....... I'm SORRY and I wish everyone success in their treatment.

P.S. I want more of that..... Ya that... SLEEP !!!!
Post Reply Post Reply
#2
Hi apneaguy,
WELCOME! to the forum.!
You are fortunate that your wife encouraged you to get your apnea treated and it's good to hear that you went to another doc to get a better idea on where to go next.
Hang in there for more responses to your post and much success to you as you continue your CPAP therapy.
trish6hundred
Post Reply Post Reply
#3
Hi apneaguy!

As you no doubt know, there have been hundreds of stories on here that are similar to yours. There is a great deal of ignorance and apathy in the medical community (especially the DME suppliers) concerning sleep apnea and the proper way to get the equipment set up for the patient. In your case, it seems you received an incorrect machine and even when faced with evidence that it was insufficient, they didn't react appropriately. Shame on them. When you get this resolved, I would hope you would tell the original crew of how you finally got on track so that they may be able to help themselves to be better shepherds of their customers.

Best regards,
Dude
Post Reply Post Reply


#4
Yea, I agree with SD2. I have no clue WHY you were given any machine other than an ASV. Glad you are on the right track now. Let us know how it goes.
Post Reply Post Reply
#5
Apparently the ST machines work for some instances of CAs and the insurance companies want to see a treatment failure with an ST machine before they will pay for an ASV machine. From what I understand the difference in cost is significant.
Post Reply Post Reply


Possibly Related Threads...
Thread Author Replies Views Last Post
  I'm a newbie!! trickyneedsleep 16 399 05-22-2017, 09:21 AM
Last Post: trickyneedsleep
Sad [CPAP] Newbie Sleep1ngb3auty16 2 137 05-15-2017, 08:49 PM
Last Post: trish6hundred
  Greetings From a Newbie rooy1960 12 473 04-18-2017, 06:57 AM
Last Post: rooy1960
  Another newbie F Mac 14 512 04-06-2017, 08:52 AM
Last Post: bonjour
  Greetings from a newbie age237 9 350 03-19-2017, 08:19 PM
Last Post: Beej
  newbie brother 78 4 260 02-04-2017, 04:17 PM
Last Post: trish6hundred
  newbie yossarian 14 1,084 09-01-2016, 02:01 PM
Last Post: Maskup Sleepwell

Forum Jump:

New Posts   Today's Posts




About Apnea Board

Apnea Board is an educational web site designed to empower Sleep Apnea patients.

For any more information, please use our contact form.