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"Once you jump in, you can't jump out"
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vsheline Offline

Advisory Members

Posts: 1,907
Joined: Jul 2012

Machine: S9 VPAP Adapt (USA Model# 36007, not better 36037 or 36067)
Mask Type: Full face mask
Mask Make & Model: F10 or SimPlus w/ 2Liners. MirageQuatro & Gecko gel pad
Humidifier: H5i
CPAP Pressure: 15 EPAP, PS 5-10
CPAP Software: ResScan

Other Comments: Marfan Syndrome, chronic bradycardia, occasional Cheyne-Stokes Respiration

Sex: Male
Location: California, USA

Post: #11
RE: "Once you jump in, you can't jump out"
(01-03-2015 04:43 PM)TyroneShoes Wrote:  If I were thinking about "jumping out", the first thing I would do would be to lower my pressure to a straight 4 cm and see what sort of numbers I was getting.

I suggest that an important thing would be to use a recording pulse oximeter, to see how our pulse and O2 are doing all night. (Like surferdude2 uses.)

Membership in the Advisory Member group should not be understood as in any way implying medical expertise or qualification for advising Sleep Apnea patients concerning their treatment. The Advisory Member group provides advice and suggestions to Apnea Board administrators and staff on matters concerning Apnea Board operation and administrative policies - not on matters concerning treatment for Sleep Apnea. I think it is now too late to change the name of the group but I think Voting Member group would perhaps have been a more descriptive name for the group.
01-04-2015 12:07 AM
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Peter_C Offline

Advisory Members

Posts: 1,308
Joined: Sep 2013

Machine: System One DS960HS
Mask Type: Full face mask
Mask Make & Model: Mirage Quattro "MED"
Humidifier: Attached
CPAP Pressure: Auto mode-script is:15/3/3
CPAP Software: EncoreBasic Other Software

Other Comments: Severe obstructive sleep apnea 1999/Just got an ASV machine

Sex: Male
Location: Akron, Ohio USA

Post: #12
RE: "Once you jump in, you can't jump out"
(01-03-2015 03:30 PM)surferdude2 Wrote:  In fact, to be safe I try to keep my voice low and confine my remarks to yep, nope and maybe. That way I can sleep safely with both eyes closed. Big Grin

Quoted for truth.
01-04-2015 02:52 AM
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seelyrrem Offline

New Members

Posts: 1
Joined: May 2013

Machine: S9 ESCAPE
Mask Type: Nasal mask
Mask Make & Model: RESMED MIRAGE FX
Humidifier: NONE
CPAP Pressure: 11.2
CPAP Software: SleepyHead

Other Comments:

Sex: Male
Location:

Post: #13
RE: "Once you jump in, you can't jump out"
Hi all, just a line to state the obvious really - I believe every one is different and needs to manage their condition accordingly and whilst the majority of people who can tolerate CPAP/APAP most will be on a life long "voyage".

Myself, was told it would be for life, but after a years treatment on APAP and losing 28kg, I have successfully "jumped out". I regularly monitor my o2 with wrist oximeter and if ever I see problems I will not hesitate to "jump back in". After being diagnosed with severe OSA and being told I would be on it for life it was indeed a leap of faith for me to give up something of a safety net which had improved my life and health so very much in such a relatively short time but 6 months on I'm sleeping fine without my S9.
I keep popping back on the sleep forums from which I learnt so much and although I am one of those who had no issues with the treatment from the first nights trial I am fully aware of how lucky I am to have had my own situation "resolved by weight loss" (as my consultant phrased it) and once again it is possible to jump out under the correct criteria but not that common!
Happy New Year to you all and the best wishes for your personal XPAP voyage whether it be long or short!
01-04-2015 04:59 AM
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Galactus Offline

Advisory Members

Posts: 1,384
Joined: Jan 2014

Machine: Phillips Respironics System One PRS1 DS760P Auto BiPAP
Mask Type: Nasal pillows
Mask Make & Model: ResMed Airfit P10 Nasal Pillow
Humidifier: System One Heated Humidifier + Climate Line
CPAP Pressure: E/I 13/20 PS 4/7 BiFlex 3
CPAP Software: SleepyHead EncoreBasic

Other Comments: Sleep can be a good thing.

Sex: Male
Location: USA

Post: #14
RE: "Once you jump in, you can't jump out"
(01-04-2015 02:52 AM)Peter_C Wrote:  
(01-03-2015 03:30 PM)surferdude2 Wrote:  In fact, to be safe I try to keep my voice low and confine my remarks to yep, nope and maybe. That way I can sleep safely with both eyes closed. Big Grin

Quoted for truth.

Quoted because I don't think it could be said too many times.

Something else that can't be said enough times is; Just be sure to get treatment, that's the most important thing. People sometimes think, "oh no biggy I can't sleep" but it is a biggy, much bigger than you first consider. Don't learn too late that you could have done something and didn't.

The only think I am jumping out of is a perfectly good airplane, just as soon as my weight loss is there. I always wanted to do it and damn it I'm going to!

If everyone thinks alike, then someone isn't thinking.
Everyone knows something, together we could know everything.
01-04-2015 06:14 PM
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