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Over one year on CPAP......
#1
Smile 
Well, I haven't posted a lot in the past few months... for many reasons but the main one being I still love using my CPAP!! I must be one of the lucky people as I loved it right from the word go. I had some mask seal issues and found it was when the weather got colder I needed to either heat my bedroom more or use a heated hose.

What I have noticed a drastic change in my life on are:

* No more afternoon naps
* no more reflux during the night
* not waking during the night / no need to go to the loo
* much more alert
* I was frequently waking with a swollen uvula - hasn't happened and I feel "safer" going to sleep now knowing I am not going to wake choking or gasping for air

Lastly I enjoy the sound of my machine - it keeps me from listening to other noises... it puts me to sleep quicker

The only thing that didn't change was that I still wake up feeling like I have been "hit by a truck" and I still need about 10 hours of sleep per night... turns out I have some kind of arthritis - just had extensive tests done and find out soon but they think it's the same hereditary condition both of my brothers have ankylosing spondilitis.

The bottom line is I am so happy my life long problems are being diagnosed and treated and I can start functioning more normally and enjoying living again!

I have appreciated the help I have got from this forumThanks
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#2
Great to hear of your success Ulrika! Hopefully a year down the track I will be making a similar post having just begun my journey Smile
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#3
I hope you do get settled into the new normal quickly! It is worth the early days of waking up adjusting the mask, feeling strange and wondering if you will be able to accept using this hose/ mask FOREVER. Keep it up.
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#4
Hi Ulrika,
CONGRATULATIonS ! on being on CPAP for over a year.
It's good to hear that you are having such GREAT success with the therapy and also that you are getting other things taken care of.
CONTINUED SUCCESS!
trish6hundred
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#5
Very motivating to hear of your success, thanks for sharing!
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#6
(08-10-2013, 04:12 AM)Ulrika Wrote: The only thing that didn't change was that I still wake up feeling like I have been "hit by a truck" and I still need about 10 hours of sleep per night...

Hi Ulrika,

Thanks for the update!

Is there anything you can share about your sleep data, like if you are having central events?

Are you using EPR? Sometimes EPR can improve sleep quality. But sometimes it can reduce it, so best to look at your sleep data.

Take care,
--- Vaughn
Membership in the Advisory Member group should not be understood as in any way implying medical expertise or qualification for advising Sleep Apnea patients concerning their treatment. The Advisory Member group provides advice and suggestions to Apnea Board administrators and staff on matters concerning Apnea Board operation and administrative policies - not on matters concerning treatment for Sleep Apnea. I think it is now too late to change the name of the group but I think Voting Member group would perhaps have been a more descriptive name for the group.
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#7
Checking my diagnostics - the past 90 days:

Average daily usage: 8.39hrs
AHI 0.6
Apnea Index 0.5
Obstructive 0.2
Central 0.2
Hypopnea Index 0.1


At diagnosis on the 19th January 2012

Obstructive Apnea (total) 110 52.1%
Central Apnea (total) 1 0.5%
Longest Hypopnoea 58.9 sec
Longest Apnoea 91.1 sec

NREM AHI 29/ hr
*Supine NREM AHI 72/ hr
REM AHI 26/ hr
Total AHI (N> 5/hr) 28/ hr

Conclusion: Moderate obstructive sleep apnoea, associated with minimal snoring and moderate oxygen desaturation. Minimal supine positioning may have underestimated degree of sleep disordered breathing.
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