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Over one year on CPAP......
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Ulrika Offline

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Posts: 63
Joined: Apr 2012

Machine: resmed Elite
Mask Type: Full face mask
Mask Make & Model: Resmed Quattro FX and Mirage
Humidifier: Resmed H5i
CPAP Pressure: 14 fixed pressure
CPAP Software: ResScan

Other Comments:

Sex: Female
Location: Tasmania

Post: #1
Smile Over one year on CPAP......
Well, I haven't posted a lot in the past few months... for many reasons but the main one being I still love using my CPAP!! I must be one of the lucky people as I loved it right from the word go. I had some mask seal issues and found it was when the weather got colder I needed to either heat my bedroom more or use a heated hose.

What I have noticed a drastic change in my life on are:

* No more afternoon naps
* no more reflux during the night
* not waking during the night / no need to go to the loo
* much more alert
* I was frequently waking with a swollen uvula - hasn't happened and I feel "safer" going to sleep now knowing I am not going to wake choking or gasping for air

Lastly I enjoy the sound of my machine - it keeps me from listening to other noises... it puts me to sleep quicker

The only thing that didn't change was that I still wake up feeling like I have been "hit by a truck" and I still need about 10 hours of sleep per night... turns out I have some kind of arthritis - just had extensive tests done and find out soon but they think it's the same hereditary condition both of my brothers have ankylosing spondilitis.

The bottom line is I am so happy my life long problems are being diagnosed and treated and I can start functioning more normally and enjoying living again!

I have appreciated the help I have got from this forumThanks
08-10-2013 04:12 AM
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mousetrap Offline

Members

Posts: 17
Joined: Jul 2013

Machine: Philips System One 60 Series Auto
Mask Type: Nasal mask
Mask Make & Model: Philips Wisp
Humidifier: Philips System One
CPAP Pressure: 8-16 APAP
CPAP Software: SleepyHead

Other Comments: And my nightshift manager use to say "Sleep is for the weak..."

Sex: Male
Location: Sydney, Australia

Post: #2
RE: Over one year on CPAP......
Great to hear of your success Ulrika! Hopefully a year down the track I will be making a similar post having just begun my journey Smile
08-10-2013 04:32 AM
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Ulrika Offline

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Posts: 63
Joined: Apr 2012

Machine: resmed Elite
Mask Type: Full face mask
Mask Make & Model: Resmed Quattro FX and Mirage
Humidifier: Resmed H5i
CPAP Pressure: 14 fixed pressure
CPAP Software: ResScan

Other Comments:

Sex: Female
Location: Tasmania

Post: #3
RE: Over one year on CPAP......
I hope you do get settled into the new normal quickly! It is worth the early days of waking up adjusting the mask, feeling strange and wondering if you will be able to accept using this hose/ mask FOREVER. Keep it up.
08-10-2013 04:35 AM
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trish6hundred Offline

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Posts: 6,436
Joined: May 2012

Machine: Resmed S9 AutoSet for Her
Mask Type: Full face mask
Mask Make & Model: Fisher & Paykel Simplus
Humidifier: H5i Heated Humidifier
CPAP Pressure: 10 - 7-20 Cm H2O
CPAP Software: Not using software

Other Comments: I started CPAP in 2008. Totally blind since birth.

Sex: Female
Location: Missouri, USA

Post: #4
RE: Over one year on CPAP......
Hi Ulrika,
CONGRATULATIonS ! on being on CPAP for over a year.
It's good to hear that you are having such GREAT success with the therapy and also that you are getting other things taken care of.
CONTINUED SUCCESS!

trish6hundred
(This post was last modified: 08-10-2013 06:16 PM by trish6hundred.)
08-10-2013 09:11 AM
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Paptillian Offline

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Posts: 474
Joined: Jun 2013

Machine: S9 AutoSet
Mask Type: Nasal pillows
Mask Make & Model: Swift FX
Humidifier: H5i
CPAP Pressure: 4 - 10, EPR x2
CPAP Software: ResScan SleepyHead

Other Comments:

Sex: Male
Location: Pennsylvania, USA

Post: #5
RE: Over one year on CPAP......
Very motivating to hear of your success, thanks for sharing!
08-10-2013 05:19 PM
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vsheline Online

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Posts: 1,907
Joined: Jul 2012

Machine: S9 VPAP Adapt (USA Model# 36007, not better 36037 or 36067)
Mask Type: Full face mask
Mask Make & Model: F10 or SimPlus w/ 2Liners. MirageQuatro & Gecko gel pad
Humidifier: H5i
CPAP Pressure: 15 EPAP, PS 5-10
CPAP Software: ResScan

Other Comments: Marfan Syndrome, chronic bradycardia, occasional Cheyne-Stokes Respiration

Sex: Male
Location: California, USA

Post: #6
RE: Over one year on CPAP......
(08-10-2013 04:12 AM)Ulrika Wrote:  The only thing that didn't change was that I still wake up feeling like I have been "hit by a truck" and I still need about 10 hours of sleep per night...

Hi Ulrika,

Thanks for the update!

Is there anything you can share about your sleep data, like if you are having central events?

Are you using EPR? Sometimes EPR can improve sleep quality. But sometimes it can reduce it, so best to look at your sleep data.

Take care,
--- Vaughn

Membership in the Advisory Member group should not be understood as in any way implying medical expertise or qualification for advising Sleep Apnea patients concerning their treatment. The Advisory Member group provides advice and suggestions to Apnea Board administrators and staff on matters concerning Apnea Board operation and administrative policies - not on matters concerning treatment for Sleep Apnea. I think it is now too late to change the name of the group but I think Voting Member group would perhaps have been a more descriptive name for the group.
08-10-2013 05:38 PM
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Ulrika Offline

Preferred Members

Posts: 63
Joined: Apr 2012

Machine: resmed Elite
Mask Type: Full face mask
Mask Make & Model: Resmed Quattro FX and Mirage
Humidifier: Resmed H5i
CPAP Pressure: 14 fixed pressure
CPAP Software: ResScan

Other Comments:

Sex: Female
Location: Tasmania

Post: #7
RE: Over one year on CPAP......
Checking my diagnostics - the past 90 days:

Average daily usage: 8.39hrs
AHI 0.6
Apnea Index 0.5
Obstructive 0.2
Central 0.2
Hypopnea Index 0.1


At diagnosis on the 19th January 2012

Obstructive Apnea (total) 110 52.1%
Central Apnea (total) 1 0.5%
Longest Hypopnoea 58.9 sec
Longest Apnoea 91.1 sec

NREM AHI 29/ hr
*Supine NREM AHI 72/ hr
REM AHI 26/ hr
Total AHI (N> 5/hr) 28/ hr

Conclusion: Moderate obstructive sleep apnoea, associated with minimal snoring and moderate oxygen desaturation. Minimal supine positioning may have underestimated degree of sleep disordered breathing.
(This post was last modified: 08-11-2013 03:14 AM by Ulrika.)
08-11-2013 02:56 AM
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