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Painful/Troublesome Nasal Pillow Mask
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copacetic Offline

New Members

Posts: 1
Joined: Jul 2013

Machine: Philips Respironics System One
Mask Type: Nasal pillows
Mask Make & Model: ResMed Swift™ FX for Her
Humidifier: Philips Respironics System One
CPAP Pressure: 14
CPAP Software: Not using software

Other Comments: Wife. Pet Parent of 3. Geek Princess. Certified Crazy Cat Lady. Animal Lover. Writer. Pianist.

Sex: Female
Location: Louisiana, USA

Post: #1
Painful/Troublesome Nasal Pillow Mask
Hey Guys! I've been a member of this board for a few months but I've finally decided to post.

I was diagnosed with severe sleep apnea in July of this year and I've been using a nasal pillow mask since then (Swift FX for Her, specifically).

I have had non-stop trouble with it since the beginning. It hurts the inside of my nose, particularly on the right nostril. About a week ago, I even had a sore on the inside of my nose from it rubbing against it. It also always leaks out of my left nostril, which is extremely annoying. Also, I have to use Lansinoh cream on my nose because it irritates my skin so bad that it chafes and itches constantly if I do not.

I have literally tried everything - tightening and loosening the mask, tightening one side more than the other, laying only on my back, etc. I've tried to be patient with it for months hoping that I will adjust or find that "sweet spot" where it'll fit perfectly and behave normally. It's gotten to the point where I wake up in the middle of the night repeatedly because of it. If I'm really tired, I usually sleep through all of the annoyances. The CPAP therapy works for sure, but the mask is driving me crazy.

Am I doing something wrong or is this normal? Should I give up and switch to something else? Help!?? Sad

A Couple of Additional Facts:
-I'm a side sleeper and slightly claustrophobic which is why I chose this mask initially.
-When I was being fit for my mask, the technician said I was an in-between size (medium and small) and when we were testing it, I was having some leakage with the medium so she recommended the small.
-I have a deviated septum, which I'm suspecting is the cause of the difficulty.
-My pressure is 14
(This post was last modified: 10-09-2013 01:04 PM by copacetic.)
10-09-2013 01:01 PM
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trish6hundred Offline

Advisory Members

Posts: 6,430
Joined: May 2012

Machine: Resmed S9 AutoSet for Her
Mask Type: Full face mask
Mask Make & Model: Fisher & Paykel Simplus
Humidifier: H5i Heated Humidifier
CPAP Pressure: 10 - 7-20 Cm H2O
CPAP Software: Not using software

Other Comments: I started CPAP in 2008. Totally blind since birth.

Sex: Female
Location: Missouri, USA

Post: #2
RE: Painful/Troublesome Nasal Pillow Mask
Hi copacetic,
WELCOME! to the forum.!
You could try either the Resmed Nano or the Respironics Wisp. Those two masks are a minimalist frame like the one you are using but they go around the nose instead of into the nostriles. Hopefully they won't make you too clostraphobic though.
Hang in there for more suggestions and good luck to you on this and keep us posted.

trish6hundred
10-09-2013 01:49 PM
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PaulaO2 Offline
Wiki Editor
Moderators

Posts: 8,065
Joined: Feb 2012

Machine: S9 Autoset
Mask Type: Full face mask
Mask Make & Model: F&P Simplus
Humidifier: H5i
CPAP Pressure: 14-20
CPAP Software: SleepyHead

Other Comments: Ehlers-Danlos Syndrome, Hypermobility Type; chronic sarcasm

Sex: Undisclosed
Location: western NC, USA

Post: #3
RE: Painful/Troublesome Nasal Pillow Mask
Look into a nasal pillow mask that has individual sized pillows vs one piece. The Breeze uses two. That way you could go up a size in one nose and down in the other. I use the same mask and have issues with it. My left nostril has a tender place but I only notice it when I first put the mask on. I can't seem to figure out what size I need. The one that seems to fit the best and not leak makes a lot of noise! It has a whistle to it that drives me nuts. I'm due for another mask and I'll see if it does it again. If it does, then I'll switch masks next time I'm due. Or buy it on my own online.

PaulaO2
Apnea Board Moderator
www.ApneaBoard.com


Breathe deeply and count to zen.

INFORMATION ON APNEA BOARD FORUMS OR ON APNEABOARD.COM SHOULD NOT BE CONSIDERED AS MEDICAL ADVICE. ALWAYS SEEK THE ADVICE OF A PHYSICIAN BEFORE SEEKING TREATMENT FOR MEDICAL CONDITIONS, INCLUDING SLEEP APNEA. INFORMATION POSTED ON THE APNEA BOARD WEB SITE AND FORUMS ARE PERSONAL OPINION ONLY AND NOT NECESSARILY A STATEMENT OF FACT.
10-09-2013 04:44 PM
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Peter_C Offline

Advisory Members

Posts: 1,308
Joined: Sep 2013

Machine: System One DS960HS
Mask Type: Full face mask
Mask Make & Model: Mirage Quattro "MED"
Humidifier: Attached
CPAP Pressure: Auto mode-script is:15/3/3
CPAP Software: EncoreBasic Other Software

Other Comments: Severe obstructive sleep apnea 1999/Just got an ASV machine

Sex: Male
Location: Akron, Ohio USA

Post: #4
RE: Painful/Troublesome Nasal Pillow Mask
There are many, many different types of masks because what works for one, may or may not work for another.

I am one of the people that simply can't get any kind of nasal-pillow type mask to work for me. From pain to leaks, to more pain and so on.

For the most part, I've found that for me, personally a smaller over-the-nose mask seems to work best, and I also have a full-face mask as a back-up for when my nose isn't working so well. While the nose mask is smaller, and easier to take on and off, I am actually less 'twitchy' with the FFM (Full face mask) on. It comes down to comfort, and what you can get used to. Many people need to try multiple masks before finding one that works well it seems.

FYI? Personally, I'd give up on a mask after 2-3 weeks if I can't get comfortable and leak-free with it. Yes, more than one night or try is needed, but by now, if it's not working for you, most likely it's time to try something else.

*I* am not a DOCTOR or any type of Health Care Professional. My thoughts/suggestions/ideas are strictly only my opinions.

"Only two defining forces have ever offered to die for you. Jesus Christ and the American Soldier. One died for your Soul, the other for your Freedom."
10-09-2013 08:44 PM
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PaulaO2 Offline
Wiki Editor
Moderators

Posts: 8,065
Joined: Feb 2012

Machine: S9 Autoset
Mask Type: Full face mask
Mask Make & Model: F&P Simplus
Humidifier: H5i
CPAP Pressure: 14-20
CPAP Software: SleepyHead

Other Comments: Ehlers-Danlos Syndrome, Hypermobility Type; chronic sarcasm

Sex: Undisclosed
Location: western NC, USA

Post: #5
RE: Painful/Troublesome Nasal Pillow Mask
Yep. Just because this nasal pillow isn't working out doesn't mean you can't try any other. They are all just a little different.

PaulaO2
Apnea Board Moderator
www.ApneaBoard.com


Breathe deeply and count to zen.

INFORMATION ON APNEA BOARD FORUMS OR ON APNEABOARD.COM SHOULD NOT BE CONSIDERED AS MEDICAL ADVICE. ALWAYS SEEK THE ADVICE OF A PHYSICIAN BEFORE SEEKING TREATMENT FOR MEDICAL CONDITIONS, INCLUDING SLEEP APNEA. INFORMATION POSTED ON THE APNEA BOARD WEB SITE AND FORUMS ARE PERSONAL OPINION ONLY AND NOT NECESSARILY A STATEMENT OF FACT.
10-09-2013 09:21 PM
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