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Patient feedback for the Doctor
Patient feedback for the Doctor
First it was my GP now a specialist visit. My hematocrit levels were high awhile back. I know I've got moderate apnea after an operation to alleviate severe apnea long ago. I purchased my own machine online a few months ago, did a baseline test.. sort of a mini sleep study using the machine, and then with the help of this forum I began treating myself. Apnea AHI down from about 19 to 2 or less. Hematocrit levels in the normal range again.

With both doctors I told them what I had done. Both were flummoxed and asked numerous questions. Where'd you get it? Did you buy it yourself? How did you know how to set it up and with what settings... etc. etc.

Both took notes. One asked specific questions regarding one setting oneself up without a sleep study. Both wanted the address for this forum.
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RE: Patient feedback for the Doctor
Good on you Dan.  Taking back a bit of control.  GPs are pretty useless IMHO.  While I don't advocate for most to go it alone, I do believe the time will come when GPs have far less power & their own medical education will be seen as 'wanting'.
Your previous experience has helped & saved you a lot of money.
In Oz with a GP referral I took myself off to a sleep place, they wired me up & I slept at home in my own bed.  Next day the paraphernalia was returned to them.  They analysed it & gave me a copy of the results.  I then went off to the sleep technician selling the gear & she helped me over a period of 2-3 months to find what suited me & according to the prescription.
The next visit to the GP he was astounded I had done all this myself & was set up, without him even telling me what the prescription revealed.
Others I know have had repeated visits to a sleep centre for them to check & recheck & recheck again!  All 4 hour (there n back) drives away!  Ridiculous & just to get more out of Medicare.  But being in your own bed I believe, is pretty important.  There's no way I could sleep at all in anything other than my soft bed.
People are better educated & some are more on the front foot these days & while medicine is a mystery, the ordinary person does know more now.
Young doctors are sometimes too full of themselves to understand this & often do not respect the older patient. 
Amethyst in Oz.
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