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Pillow Anxiety
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Geniale Offline

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Posts: 48
Joined: Jan 2016

Machine: PR System One Auto 60 Series
Mask Type: Nasal pillows
Mask Make & Model: AirFit P10 for Her
Humidifier: PR System One Heated Humidifier
CPAP Pressure: 7-7 cm H2O
CPAP Software: SleepyHead

Other Comments: UARS

Sex: Female
Location: Canada

Post: #1
Pillow Anxiety
So I've been trialing two new masks - the Airfit P10 for Her and the Pico.

The Pico is nice, but it blows cold air all over my arm and it's quite disruptive. The P10 is so comfortable and quiet, the headgear is minimal, and the air doesn't bother me. The issue is that it's causing me a slew of other symptoms.

When I'm wearing the nasal pillows, I feel like I'm suffocating. It takes me a while to calm and steady my breathing after putting it on and if I have to get up, move, interact with my husband, anything, I have to start the whole process over and I usually can't because it just makes the anxiety worse. I feel like I can't breathe, my chest hurts, I just want to open my mouth and breathe through it; which is what I do when I finally take the mask off. I think it's making me swallow air as well.

Now, I don't know if it's just because I'm getting over the flu and it's the congestion (I've tried moisture and nasal spray to help with that) that's causing these feelings or if it's something else... I managed to sleep 1 night with the mask, and felt good in the morning, but otherwise, it has been a nightmare. I've tried wearing sitting up in bed reading, and that was fine, it's when I lie down to go to sleep that the panic sets in.

Is this something that others have experienced with nasal pillows? Is there something I can do to get over it? I so want to love this mask...
(This post was last modified: 02-19-2016 08:45 PM by Geniale.)
02-19-2016 08:36 PM
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OpalRose Offline

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Posts: 3,166
Joined: Nov 2014

Machine: PR System One REMstar Auto 560 with A Flex
Mask Type: Nasal pillows
Mask Make & Model: AirFit P10 For Her
Humidifier: REMStar heated humidifier with heated hose
CPAP Pressure: Auto Cpap 10-13 AFLEX 1
CPAP Software: SleepyHead EncoreBasic

Other Comments: Started CPAP Therapy October 23, 2014

Sex: Female
Location: Northeast Ohio, USA

Post: #2
RE: Pillow Anxiety
Yes, I felt that anxiety when I first started, but I told myself that I had to do this and did whatever it took to adjust.
What size pillow do you use? You may want to try one size larger.

You can also use one of the AFlex settings to help you exhale against the pressure. Set it at 2, and see if that makes a difference.

If you are using ramp, turn it off. That alone can give a suffocating feeling.

Hope you can resolve this, because the P10, although not for everyone, is the most minimalistic mask out there.
Dreaming

OpalRose
02-19-2016 08:50 PM
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Geniale Offline

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Posts: 48
Joined: Jan 2016

Machine: PR System One Auto 60 Series
Mask Type: Nasal pillows
Mask Make & Model: AirFit P10 for Her
Humidifier: PR System One Heated Humidifier
CPAP Pressure: 7-7 cm H2O
CPAP Software: SleepyHead

Other Comments: UARS

Sex: Female
Location: Canada

Post: #3
RE: Pillow Anxiety
(02-19-2016 08:50 PM)OpalRose Wrote:  Yes, I felt that anxiety when I first started, but I told myself that I had to do this and did whatever it took to adjust.
What size pillow do you use? You may want to try one size larger.

You can also use one of the AFlex settings to help you exhale against the pressure. Set it at 2, and see if that makes a difference.

If you are using ramp, turn it off. That alone can give a suffocating feeling.

Hope you can resolve this, because the P10, although not for everyone, is the most minimalistic mask out there.
Dreaming

Thank you, I am using size small, but I really don't think I can go larger because it takes me forever to get them not to leak because they fold over on themselves since there's not enough room... the way I found to get the best fit was to use HPA lanolin cream prior to putting them on. Plus, the DME didn't give me any other size to try.

I also changed the flex setting from 1 to 2 and it also helped a little. I haven't been using the ramp. I tried it once and it was indeed worse.

I do love the feel of the mask (plus the headgear doesn't give me headaches)! Now, do I really need to be able to breathe to use it... Thinking-about
02-19-2016 09:06 PM
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surferdude2 Online

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Posts: 1,077
Joined: Jul 2014

Machine: ResMed S9 AutoSet
Mask Type: Full face mask
Mask Make & Model: Mirage Quattro & Optilife
Humidifier: ResMed H5i @ #3 if nose breathing & #5 if mouth breathing
CPAP Pressure: 12 ~ 20 & 11 ~12 if nasal mask
CPAP Software: ResScan SleepyHead

Other Comments: Late stage 2 emphysema

Sex: Male
Location: Mousetown, Southern Illinois

Post: #4
RE: Pillow Anxiety
Using it during the day while watching TV or reading works for many people to help overcome any anxiety. It also allows you to check different setting for effect such as pressure and leakage or trying without the ramp, etc.

Dude
(This post was last modified: 02-19-2016 09:18 PM by surferdude2.)
02-19-2016 09:15 PM
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justMongo Offline

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Posts: 3,840
Joined: Sep 2013

Machine: ResMed VPAP Auto (S9)
Mask Type: Full face mask
Mask Make & Model: ResMed Mirage Quattro
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CPAP Pressure: 18 IPAPmax - 11 EPAPmin, PS=5
CPAP Software: Other Software

Other Comments: μολὼν λαβέ

Sex: Male
Location: Калифорния

Post: #5
RE: Pillow Anxiety
(02-19-2016 09:06 PM)Geniale Wrote:  Plus, the DME didn't give me any other size to try.

A complete P10 mask should come with 3 sizes of pillows; but, the DMEs remove the two other sizes and sell them. There's only one place for those people -- a very long prison term!

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02-19-2016 09:16 PM
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Geniale Offline

Preferred Members

Posts: 48
Joined: Jan 2016

Machine: PR System One Auto 60 Series
Mask Type: Nasal pillows
Mask Make & Model: AirFit P10 for Her
Humidifier: PR System One Heated Humidifier
CPAP Pressure: 7-7 cm H2O
CPAP Software: SleepyHead

Other Comments: UARS

Sex: Female
Location: Canada

Post: #6
RE: Pillow Anxiety
(02-19-2016 09:16 PM)justMongo Wrote:  A complete P10 mask should come with 3 sizes of pillows; but, the DMEs remove the two other sizes and sell them. There's only one place for those people -- a very long prison term!

No, they didn't do that, this is just a loaner mask since my first one (Eson) didn't work out. They're lending me the masks for a week to see if they work out and which one I like best before a purchase. So, they only send me along with the pillows I was fitted with. If I do buy the mask, I'm pretty sure all sizes will be included.
(02-19-2016 09:15 PM)surferdude2 Wrote:  Using it during the day while watching TV or reading works for many people to help overcome any anxiety. It also allows you to check different setting for effect such as pressure and leakage or trying without the ramp, etc.

Dude

Thanks! I tried doing that a few times. The anxiety wasn't a problem then, only when bedtime comes and I'm lying down. I thought maybe it was the lying down part, so last night I tried propping up my pillows to see if it was better - it wasn't.
(This post was last modified: 02-19-2016 09:31 PM by Geniale.)
02-19-2016 09:28 PM
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pupcamper Online

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Posts: 399
Joined: Nov 2015

Machine: PR DreamStation CPAP Pro
Mask Type: Nasal pillows
Mask Make & Model: AirFit P10 Pillows; Quatro Air FFM
Humidifier: DreamStation Heated Humidifier
CPAP Pressure: 10.5 cmH2O; no ramp; no C-Flex
CPAP Software: SleepyHead EncorePro

Other Comments: Lung cancer survivor since 11/2004; CPAP since 11/2015

Sex: Male
Location: Van Buren, Arkansas, USA.

Post: #7
RE: Pillow Anxiety
I tried a P10 for a few nights recently. I was experiencing the same issues you are. I finally figured out that condensation was blocking the exhaust screen. I sent it back and started using a Nuance Pro, which is working great for me.

"....respiration,—a troublesome practice, but one which custom has rendered necessary to our easy existence...." Oliver Twist, Charles Dickens- 1837

I use FlashPAP to load data from a FlashAir III wifi sd card in my machine to my computer and display it with SleepyHead .
robysue's Beginner's Guide to SleepyHead
02-19-2016 09:40 PM
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Geniale Offline

Preferred Members

Posts: 48
Joined: Jan 2016

Machine: PR System One Auto 60 Series
Mask Type: Nasal pillows
Mask Make & Model: AirFit P10 for Her
Humidifier: PR System One Heated Humidifier
CPAP Pressure: 7-7 cm H2O
CPAP Software: SleepyHead

Other Comments: UARS

Sex: Female
Location: Canada

Post: #8
RE: Pillow Anxiety
So I went with the P10, is was still better than the Pico. Last night I tried the XS cushion instead, I switched A-Flex to 3 and System One Resistance to x2 and everything was perfect, I didn't have any problem whatsoever! I haven't checked my data on SleepyHead yet, but will do so right away.

The only annoying this was that my machine was whistling all night... mostly during exhale. It seemed to come from the machine itself, not the mask. But I tried readjusting the mask, unplugging and re-plugging the hoses, removing the humidifier, checking the water level and putting it back in, turning the machine off and on, along with checking the filters and nothing helped. Any ideas on what could be causing the flute symphony and how to fix it?
(02-19-2016 09:16 PM)justMongo Wrote:  A complete P10 mask should come with 3 sizes of pillows; but, the DMEs remove the two other sizes and sell them. There's only one place for those people -- a very long prison term!

So they ended up removing the M and only giving me the S and XS. Oh-jeez
(This post was last modified: 02-23-2016 10:17 AM by Geniale.)
02-23-2016 10:14 AM
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AllenRx Offline

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Posts: 3
Joined: Feb 2016

Machine: Respironics DreamStation Auto CPAP
Mask Type: Nasal pillows
Mask Make & Model: ResMed AirFit P10
Humidifier: Respironics Dreamstation
CPAP Pressure: 6-10
CPAP Software: EncorePro

Other Comments:

Sex: Male
Location: Arkansas

Post: #9
RE: Pillow Anxiety
I'm a newly diagnosed patient with severe OSA (AHI=45) and I experienced some of the same anxious feelings when first starting therapy. What helps me the most is to take 3 or 4 long, slow, deep breaths after I first put on the mask. After that, try (easier said than done) not to fight against the pressure. Try to breathe as normal as possible.

My A-Flex is set to 3. I tried the ramp the first few days, but like most others, I don't use it now.
02-23-2016 10:54 AM
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surferdude2 Online

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Posts: 1,077
Joined: Jul 2014

Machine: ResMed S9 AutoSet
Mask Type: Full face mask
Mask Make & Model: Mirage Quattro & Optilife
Humidifier: ResMed H5i @ #3 if nose breathing & #5 if mouth breathing
CPAP Pressure: 12 ~ 20 & 11 ~12 if nasal mask
CPAP Software: ResScan SleepyHead

Other Comments: Late stage 2 emphysema

Sex: Male
Location: Mousetown, Southern Illinois

Post: #10
RE: Pillow Anxiety
(02-19-2016 09:28 PM)Geniale Wrote:  
(02-19-2016 09:15 PM)surferdude2 Wrote:  Using it during the day while watching TV or reading works for many people to help overcome any anxiety. It also allows you to check different setting for effect such as pressure and leakage or trying without the ramp, etc.

Dude

Thanks! I tried doing that a few times. The anxiety wasn't a problem then, only when bedtime comes and I'm lying down. I thought maybe it was the lying down part, so last night I tried propping up my pillows to see if it was better - it wasn't.

For some of us, it takes more than pillows and we have to actually sleep in a recliner chair. I suppose a hospital type bed would work but I haven't been able to simulate one and remain wondering.

There is no denying that the pulmonary capacity of the human body is lessened a great deal when lying down, especially so when flat on the back (supine). Side sleeping helps lessen that somewhat.

Dude
02-23-2016 11:27 AM
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