(05-02-2012 02:38 PM)Not Sleeping Well Wrote: I have rambled on for a long time. I should probably boil my questions down so they are easier to see/understand.
1. I have a resmed S9 Elite with a pressure of 11. Over 229 days, my AHI is a 0.5, total AI is 0.2, and central Ai is 0.1. Are these results good?
2. How do you get your doctor to discuss things with you?
3. I want to be able to adjust my own pressures within the doctors guidelines. How do I get to do that?
4. I plan to loose more weight and have another sleep study. Is there any advice for finding places that feel impartial? Frankly I'm sick of them acting like they know I have a problem before I show up.
As a side note, all of this has caused me some anxiety concerning my CPAP machine and my sleep quality has declined
Hi NotSleepingWell. Welcome to the forum. Sorry for the problems you are having, but they are unfortunately not unique to many of the members here.
In response to your questions:
1. Your numbers are not good, they are excellent. Very many on this forum would like to have those - I know I would.
2. If you can't get your current doc to do so, you change doctors. Since I don't know where you live, it may be that doctors are in short supply. If so, you may have to go to a nearby larger town. It certainly sounds like you haven't found a good one so far. Any qualified and caring doctor will not only discuss your concerns, they will address them. You also might make an appt SOLELY to go over your questions, and let the doc's office know before hand that is the purpose. I would also write a complete list to take with me so I would be organized, and also so I didn't overlook anything. This method MAY get your doc to actually pay attention.
3. Not sure if your question is how to get your doc to agree to do so, or how to physically insure what your pressure settings will be. The latter is easy - get the clinician's manual, and it will show you exactly how to do that and much more. For the Elite and other manuals, go here
4. I have no advice on that other than ask around, if you know anybody else with OSA. Another step would be to insure you do NOT go where your physician has an interest, although the smaller or more rural the area, the more difficult that might be to accomplish. If time permits, you might visit the facility and simply talk to whomever is in charge. I am near a very, very good facility, and have an equally good and concerned board certified sleep doctor, so I have no experience in doing any of these things. Just throwing out ideas.
With the disclaimer that I am not an MD, I personally would leave my pressure @ 11, at least until a new study was done. I would also be rather firm with my doc that I did NOT want to change anything which was working, and that those numbers are really good. If you are going to find a better doc, I wouldn't even ask. You have the machine, you can get the info (see above) to keep your pressures where you want, and my thought would be to tell your doc sayonara. The idea of 0 AHI as a nightly experience for a person with OSA is foolish in the extreme, IMO.