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Please, we need your advice!
#21
Oh... Sorry, this machine is a Elite EPR with a blue SD Card in the back...
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#22
Joshua, that machine produces data that might help us understand why her first attempt at CPAP was a failure. Download the free SleepyHead program, and install it on a computer. If you upload that SD card the program will be able to display the data from any sessions she had. I expect we can tell a lot from that information, if you're willing to make that effort.

SleepyHead.
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#23
Hi Joshua and wife,

It is good to see you earnestly considering the advice you have received here and being willing to try again. I'm sorry you were left alone and without any support. This is now no longer the case.

I want to share with you that I took quite some time to get used to CPAP, too. Not everybody puts this on and sleeps like they did before, in fact most struggle with it for some time. It's totally ok to keep it on for only two or three hours at a time at first. Encourage her not to get upset or impatient with it. It doesn't mean she has failed. This is the part where you can help. The trick is to not give up but to be persistent until she learns to sleep at least part of the night with the machine on, then a little longer every time. Or perhaps she'll wear it for a short time and again later the same night for another short time. There will be nights when she just can't stand it but should try again the next night. Even once she sleeps with the mask on, her sleep patterns may be changed for some time. All of this is normal.

The point is that it WILL be ok if she gives herself time and allows for this adjusting. It took me weeks to be able to keep the mask on all night and my sleep never returned to normal until about six months into treatment. There were times when I thought I couldn't do this but now it's fine. I just honestly feel that the trouble of adjusting to CPAP is far less than the pain of invasive surgery that may or may not solve the problem. If you read up on this forum you will find many little tricks that can make this adjustment easier.
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#24
One more thing about surgery. You owe it to yourself to do some research on UPPP (Uvulopalatopharyngoplasty). It improves sleep apnea, but rarely resolves it to the point CPAP is not needed in patients with moderate or severe apnea. It is painful, expensive and has long-term complications and you can't undo it. It may make adapting to CPAP look like a walk in the park.
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#25
A couple tips which may help reduce some of any obstructive apneas or hypopneas.
Sleeping on one's side may reduce obstructive evens by more than half for some folks.
Using a cervical collar or small pillow may prevent tucking the chin towards the chest and kinking the airway, helping prevent some events from kinking the airway.
                                                                                                                                                                                  
Please organize your SleeyHead screenshots like this.
I'm an epidemiologist, not a medical provider. 
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#26
Hi Sleeprider,

Thanks for the information of the software, I also found a link to download the ResScan application. Which is better?

As for UPPP surgery, we will talk about it with the otolaryngologist to see what he tells us.

Thanks.
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#27
(02-27-2017, 01:22 PM)Joshua Miller Wrote: .  .  .   I also found a link to download the ResScan application. Which is better?
SleepyHead provides an easier to read display of your data than ResScan does.  I have provided links to help in understanding SleepyHead and how to publish its data to the forum in the future.
______________________
Useful Links -or- When All Else Fails:
Posting SleepyHead Charts in 5 Easy Steps
Robysue's Beginner's Guide to Sleepyhead
Apnea Helpful Tips
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#28
Hi Russatrice,

Reading about your experience, I seem to be listening to my wife, she experienced the same things but in a shorter time. The truth is that I'm walking "at the speed she imposes" so as not to pressure her. We also believe that surgery should be the last option. Thank you very much for your words.
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#29
Hi Beej,

Interesting idea of the cervical neck. She uses a small pillow but she changes position several times at night. Are you talking about the same neck that I have seen that paramedics put on people who have suffered an accident when they are taken to an ambulance?

Thanks.
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#30
Sleepyhead is a better choice because it is much easier to install and use, and puts more information where you can use it and understand the relationships between apnea, pressure, leaks and other factors.

A soft cervical collar is nothing like trauma collars. It is made of soft materials and simply helps to encourage good neck and head alignment to keep the airway open. An airline roll pillow is comparable, except the soft collar can be purchased in different heights and shapes to fit comfortably. For example, 2-1/2 and 3" collars can cost as little as $5.79 at Walmart.
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