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Possible UARS Sufferer?
#1
Sad 
Possible UARS Sufferer?
Hi all,

I'm wondering if I have UARS. I have a slightly deviated septum and a type 3 airway. My sleep study showed an 0.5AHI so I do not have OSA. I've had brain fog and fatigue for 3 years now and pretty much pass out as soon as I hit my pillow Sad . I purchased a Resmed Airsense 10 to give it a try and I noticed improvements in fatigue and hunger after 1 day. However, I've been on it for 4 weeks now and theres been no additional benefits. I probably am not optimizing the machine at all since I have it set to CPAP=6 and EPR=2. 

I was wondering if anyone could take a look at my OSCAR report from last night to see if anything glaring stands out(attached). All  I see is flat peaks on the Flow Rate. I've seen in this forum that indicates UARS? If this is the case I'll purchase a Aircurve ASV if thats a better machine to treat my condition.

Anyway, any input helps. Thanks
-Chris
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#2
RE: Possible UARS Sufferer?
Did you do an in-lab sleep study, and did the report include your RERA index? Can you post the study results, with suitable redactions?

Also, why are you on CPAP mode, rather than auto?

On the screenshots, make sure you read the directions. You need to remove the calendar and the pie chart, as they obscure important data.

Finally, on machines: the ASV is most complex and expensive option. The Aircurve VAuto is a more accessible middle ground.
Caveats: I'm just a patient, with no medical training. And my first experience with xPAP was fairly recent. So I'm somewhere along the path of a steep learning curve.
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#3
RE: Possible UARS Sufferer?
(02-18-2020, 12:18 PM)slowriter Wrote: Did you do an in-lab sleep study, and did the report include your RERA index? Can you post the study results, with suitable redactions?

Also, why are you on CPAP mode, rather than auto?

On the screenshots, make sure you read the directions. You need to remove the calendar and the pie chart, as they obscure important data.

Finally, on machines: the ASV is most complex and expensive option. The Aircurve VAuto is a more accessible middle ground.
Hi, responses are in RED

Did you do an in-lab sleep study, and did the report include your RERA index? Can you post the study results, with suitable redactions? 
I did an at-home sleep test. I don't get the full report until I see my doctor in 3 weeks. All I know is I have an AHI of 0.5.

Also, why are you on CPAP mode, rather than auto?
I also saw on reddit that CPAP may be better for UARS. Their reasoning is that when you gave UARS you are super aware of that if you have constant pressure fluctuations tit may cause arousals. I did start off for a couple weeks with automode, don't really notice a difference between the two. I'm just trying to work through things to see if anything works.

On the screenshots, make sure you read the directions. You need to remove the calendar and the pie chart, as they obscure important data.
Noted, updated screenshots. 

Finally, on machines: the ASV is most complex and expensive option. The Aircurve VAuto is a more accessible middle ground.
Sorry, I was mistaken. I did order the Air-curve VAuto.

The help is much appreciated!
-Chris
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#4
RE: Possible UARS Sufferer?
Hi cbailey1616,
You need to include the left sidebar with all the statistics, minus the pie chart and calendar.

Graphs: Events, Flow Rate, Pressure, Flow Limitations, Leak Rate
OpalRose
Apnea Board Administrator
www.ApneaBoard.com

OSCAR Chart Organization


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#5
RE: Possible UARS Sufferer?
If you do indeed have UARS, the VAuto is a great choice.

So that'll arrive in a few days?

I have UARS, and I gradually settled on an approach which uses the VAuto (or whatever auto) mode to gradually narrow down the pressure ranges so that pressures don't change much.

Particularly early on, though, when you're trying to diagnose and find the right pressure settings, I think it's much better to use auto mode.

In fact, there's one recent research study that argued you can use a cpap auto mode to diagnose UARS, with the idea that if you have a low AHI like you do, and the machine raises pressure (in their study, their subjects averaged about 7), that can reasonably confirm UARS. I can't find the link ATM though.
Caveats: I'm just a patient, with no medical training. And my first experience with xPAP was fairly recent. So I'm somewhere along the path of a steep learning curve.
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#6
RE: Possible UARS Sufferer?
(02-18-2020, 12:51 PM)OpalRose Wrote: Hi cbailey1616,
You need to include the left sidebar with all the statistics, minus the pie chart and calendar.

Graphs:  Events, Flow Rate, Pressure, Flow Limitations, Leak Rate

3rd times a charm  Oh-jeez


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#7
RE: Possible UARS Sufferer?
(02-18-2020, 01:17 PM)slowriter Wrote: If you do indeed have UARS, the VAuto is a great choice.

So that'll arrive in a few days?

I have UARS, and I gradually settled on an approach which uses the VAuto (or whatever auto) mode to gradually narrow down the pressure ranges so that pressures don't change much.

Particularly early on, though, when you're trying to diagnose and find the right pressure settings, I think it's much better to use auto mode.

In fact, there's one recent research study that argued you can use a cpap auto mode to diagnose UARS, with the idea that if you have a low AHI like you do, and the machine raises pressure (in their study, their subjects averaged about 7), that can reasonably confirm UARS. I can't find the link ATM though.

Interesting, here is my OSCAR report with machine on Auto. Looks like I average = 6.  Is my statement typically accurate that when you have flat humps in flow rate, that can indicate UARS?


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#8
RE: Possible UARS Sufferer?
There you go.

For next time, maybe change the y-axis values of the flat rate graph so we can better see the waveforms? Say to +-70?

I would change to auto mode tonight, with a max of maybe 15, just to see what it does.

Based on what you subsequently posted, maybe auto mode with a minimum of 8?
Caveats: I'm just a patient, with no medical training. And my first experience with xPAP was fairly recent. So I'm somewhere along the path of a steep learning curve.
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#9
RE: Possible UARS Sufferer?
(02-18-2020, 01:34 PM)cbailey1616 Wrote: Interesting, here is my OSCAR report with machine on Auto. Looks like I average = 6.  Is my statement typically accurate that when you have flat humps in flow rate, that can indicate UARS?

The average was six, but it went a fair bit higher, which tells me you need more minimum pressure. As, if you were insisting on CPAP mode, I'd do 9 instead of 6, for example.

On your question, it can. The non-rounded waveforms indicate flow limitation. Whether they cause arousals for you is another question, which is why I asked about the sleep study.
Caveats: I'm just a patient, with no medical training. And my first experience with xPAP was fairly recent. So I'm somewhere along the path of a steep learning curve.
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#10
RE: Possible UARS Sufferer?
(02-18-2020, 01:35 PM)slowriter Wrote: There you go.

For next time, maybe change the y-axis values of the flat rate graph so we can better see the waveforms? Say to +-70?

I would change to auto mode tonight, with a max of maybe 15, just to see what it does.

I have attached a graph where its on auto with a max of 16. This was my first night.


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