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[Pressure] New & Pressures so High I am Embarassed
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carol1944 Offline

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Posts: 4
Joined: Aug 2012

Machine: resmed s9
Mask Type: Nasal mask
Mask Make & Model:
Humidifier: resmed
CPAP Pressure: 25
CPAP Software: Not using software

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Sex: Female
Location:

Post: #1
Question New & Pressures so High I am Embarassed
Hi all-
Another new user here with the usual confusion and need for advice.

I have been on Bipap, now Vpap for a little over a month after being diagnosed with extremely severe apnea. (Don't know how I functioned before- it didn't seem THAT bad).
My occasions per hour were over 100 - i cannot even bring myself to type what the actual number is. My prescription was for 27/22 and most machines only go up to 25.
I am taking this seriously and have been compliant, but it does not stop me from feeling like a freak because my numbers are so high.

When i switched from leaky versions full face masks and BIPAP to a nasal mask and a variable machine, I was able to sleep on my side and stomach and according to what I can read from the Resmed screen each morning, my pressures have been running about 14-17.
Can sleeping on my side make such a large difference?
Is anyone else out there on such high pressure levels as I was?

I have to give kudos to the person from the home health care company that fits, trains and delivers the equipment. She advocated on my behalf with my pulmonologist/sleep doctor to change me to the VPAP and allow me to gat a "normal" machine (one that did not go over 25). She is really working on my behalf and with my interests in mind.

This is a great site. I am glad I found you all!
08-31-2012 06:17 PM
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cbramsey Offline

Advisory Members

Posts: 900
Joined: Mar 2012

Machine: ResMed S9 Autoset
Mask Type: Nasal mask
Mask Make & Model: ResMed Mirage FX
Humidifier: ResMed H5i with ClimateLine
CPAP Pressure: 6 - 12
CPAP Software: ResScan

Other Comments: Supreme Overlord of Web Darkness

Sex: Male
Location: NC, USA

Post: #2
RE: New & Pressures so High I am Embarassed
Welcome to the forum!!! We are glad you joined us!!! Welcome

You are lucky to have a DME that advocates on your behalf.

As to your question about pressures, I was at about 16 when I was first diagnosed for OSA in 2002. I was a lot heavier then.

Since then, I have lost a little over 100 lbs. However, I am still on APAP therapy. The pressure is a lot less now though.

INFORMATION ON APNEA BOARD FORUMS OR ON APNEABOARD.COM SHOULD NOT BE CONSIDERED AS MEDICAL ADVICE. ALWAYS SEEK THE ADVICE OF A PHYSICIAN BEFORE SEEKING TREATMENT FOR MEDICAL CONDITIONS, INCLUDING SLEEP APNEA. INFORMATION POSTED ON THE APNEA BOARD WEB SITE AND FORUMS ARE PERSONAL OPINION ONLY AND NOT NECESSARILY A STATEMENT OF FACT.
08-31-2012 06:25 PM
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PaulaO2 Offline
Wiki Editor
Moderators

Posts: 8,057
Joined: Feb 2012

Machine: S9 Autoset
Mask Type: Full face mask
Mask Make & Model: F&P Simplus
Humidifier: H5i
CPAP Pressure: 14-20
CPAP Software: SleepyHead

Other Comments: Ehlers-Danlos Syndrome, Hypermobility Type; chronic sarcasm

Sex: Undisclosed
Location: western NC, USA

Post: #3
RE: New & Pressures so High I am Embarassed
When folks lay on their backs, gravity assists in closing the throat so more apneas happen. So a mask allowing you to get off your back would mean less apneas. The required pressure would also go down since it doesn't have to fight gravity in opening your throat.

And, there is absolutely no reason to be embarrassed about your numbers. None whatsoever. We don't do the "my apnea is worse than yours" dance here. We are more into the "how can we help you" dance style. So spout off all the numbers you want! We won't laugh or point fingers.

PaulaO2
Apnea Board Moderator
www.ApneaBoard.com


Breathe deeply and count to zen.

INFORMATION ON APNEA BOARD FORUMS OR ON APNEABOARD.COM SHOULD NOT BE CONSIDERED AS MEDICAL ADVICE. ALWAYS SEEK THE ADVICE OF A PHYSICIAN BEFORE SEEKING TREATMENT FOR MEDICAL CONDITIONS, INCLUDING SLEEP APNEA. INFORMATION POSTED ON THE APNEA BOARD WEB SITE AND FORUMS ARE PERSONAL OPINION ONLY AND NOT NECESSARILY A STATEMENT OF FACT.
08-31-2012 06:49 PM
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carol1944 Offline

Members

Posts: 4
Joined: Aug 2012

Machine: resmed s9
Mask Type: Nasal mask
Mask Make & Model:
Humidifier: resmed
CPAP Pressure: 25
CPAP Software: Not using software

Other Comments:

Sex: Female
Location:

Post: #4
RE: New & Pressures so High I am Embarassed
Thank you both for the kind words and support. I am already finding so much help and useful information on this site. It is great that everyone is sharing their experiences.
08-31-2012 06:57 PM
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jdireton Offline

Preferred Members-2

Posts: 149
Joined: Feb 2012

Machine: Resmed S9 Elite
Mask Type: Nasal mask
Mask Make & Model: Resmed Mirage FX
Humidifier: Resmed H5i
CPAP Pressure: 12
CPAP Software: ResScan

Other Comments: ClimateLine Hose

Sex: Male
Location: Florida

Post: #5
RE: New & Pressures so High I am Embarassed
Carol,

Welcome!

I'm glad you found us and I hope you've gotten over your embarassment. Would you be embarassed if you had diabetes, heart fibrilations, high blood pressure, etc. No, you have a medical condition. There is no fault or shame in any way.

Please talk to us. We can hopefully help. At the least we can listen. Everyone here is on the hose. We understand and want to help!
08-31-2012 07:08 PM
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zonk Offline

Advisory Members

Posts: 7,908
Joined: Feb 2012

Machine: A10 AutoSet
Mask Type: Nasal mask
Mask Make & Model: Activa LT
Humidifier: Integrated /ClimateLineAir
CPAP Pressure: 9/13
CPAP Software: ResScan

Other Comments: CPAP since Nov 2010

Sex: Male
Location: Australia

Post: #6
RE: New & Pressures so High I am Embarassed
PAP is nothing to be embarrassed about.
By using your PAP regularly...you,re being pro-active in your own health and well-being.
Welcome to the forum
08-31-2012 07:26 PM
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lonnieb Offline

Preferred Members-2

Posts: 113
Joined: Jul 2012

Machine: ResMed S9
Mask Type: Nasal mask
Mask Make & Model: Phillips ComfortGel Blue
Humidifier: ResMed H5i
CPAP Pressure: 7 - 13
CPAP Software: ResScan SleepyHead

Other Comments: I intend to live forever. So far, so good:Steven Wright

Sex: Male
Location: Tennessee

Post: #7
RE: New & Pressures so High I am Embarassed
Hi Carol:Welcome to the forum
I am glad you found us don't be embarrassed ,there is nothing to be embarrassed about ,all of us learn as we go and you will to ,I know when i came to this forum it was good to talk to other people that understood what i was going through. you will find a lot of very knowledgeable people here that don't mind helping you.
Sleep-well



I'd rather attempt to do something great and fail than to attempt to do nothing and succeed.
Robert H. Schuller
08-31-2012 08:14 PM
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trish6hundred Offline

Advisory Members

Posts: 6,424
Joined: May 2012

Machine: Resmed S9 AutoSet for Her
Mask Type: Full face mask
Mask Make & Model: Fisher & Paykel Simplus
Humidifier: H5i Heated Humidifier
CPAP Pressure: 10 - 7-20 Cm H2O
CPAP Software: Not using software

Other Comments: I started CPAP in 2008. Totally blind since birth.

Sex: Female
Location: Missouri, USA

Post: #8
RE: New & Pressures so High I am Embarassed
Hi carol1944, First, WELCOME! to the forum! and we are HAPPY you found us. PLEASE, don't worry 'bout sharing your numbers, no one will laugh at you, we just want to help. You are very fortunate that your DME spoke up for you, (Clapping my hands.)
Anyway, Best of luck to you on your CPAP therapy journey.

trish6hundred
08-31-2012 08:59 PM
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sharkcity Offline

Members

Posts: 14
Joined: Mar 2012

Machine: PR System One auto BiPap
Mask Type: Full face mask
Mask Make & Model:
Humidifier: systemone
CPAP Pressure: up to 20cm auto
CPAP Software: Not using software

Other Comments:

Sex: Male
Location: Joshua Tree CA

Post: #9
RE: New & Pressures so High I am Embarassed
the auto should adjust to pressure needed so I'll guess most of your time is spent well below 27. I can't even exhale at 20cm. Be happy you have huge numbers like 100 an hour. It means you're breathing is starting back 100 times an hour. I have my apneas down to 1.3 but when my breathing stops it doesn't start back up until I wake up feeling like tortured death.
09-01-2012 03:33 PM
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PollCat Offline
Apnea Board Polling Administrator
Monitors

Posts: 1,575
Joined: Feb 2012

Machine: ResMed S9 Autoset
Mask Type: Nasal pillows
Mask Make & Model: ResMed AirFit P10
Humidifier: H5i Cleanable with ClimateLine
CPAP Pressure: 10 - 18
CPAP Software: SleepyHead

Other Comments: CPAP-ing since 1995; Type 2 Diabetes; Chronic Asthma; Gout

Sex: Male
Location: Westfield, IN

Post: #10
RE: New & Pressures so High I am Embarassed
(09-01-2012 03:33 PM)sharkcity Wrote:  I have my apneas down to 1.3 but when my breathing stops it doesn't start back up until I wake up feeling like tortured death.


Shark,

Can we assume that the above statement refers to pre-PAP therapy?

If it refers to present conditions, you need to get back with the DME/sleep doc and find out why the machine is not working!!


INFORMATION ON APNEA BOARD FORUMS OR ON APNEABOARD.COM SHOULD NOT BE CONSIDERED AS MEDICAL ADVICE. ALWAYS SEEK THE ADVICE OF A PHYSICIAN BEFORE SEEKING TREATMENT FOR MEDICAL CONDITIONS, INCLUDING SLEEP APNEA.
INFORMATION POSTED ON THE APNEA BOARD WEB SITE AND FORUMS ARE PERSONAL OPINION ONLY AND NOT NECESSARILY A STATEMENT OF FACT.
09-01-2012 08:27 PM
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