(10-01-2015 08:31 PM)kaiasgram Wrote:
(10-01-2015 08:12 PM)eseedhouse Wrote: Well I totally disagree, along with, I suppose, many users of this board. And my Dr. and my Respiratory therapist agree with me.
As to your arguments, I might have gotten around to reading them if you'd thrown in the odd paragraph break. But my eyes and mind are no longer up to reading a thousand or so words all smushed together in one long line.
Lol, well then you missed the part where about halfway through the rant he revealed that he works for a DME.
This happens periodically on all the sleep apnea forums. An RT or DME rep feels slighted or threatened by the idea of a competent person learning how and when to make adjustments to keep their therapy on track. They come onto the forum with a longwinded rant trying to whip up hysteria with the claims of illegality, lethal pressure changes, etc. What's laughable is that many of them hand out bricks to patients so in reality they have nothing more to base pressure changes on than do the patients themselves.
No one advocates for blind dial-spinning. But any reasonably intelligent and motivated person can learn how to responsibly manage their own CPAP therapy.
I apologize if my writing skills were not up to par for you, and yes it would've been much easier for you and others to read, had I broken it up into paragraphs. The fact that I work for a DME company has nothing at all to do with my reasons for posting what I did. Most of my income is obtained from working in a hospital, and I receive no pay or compensation on this job from CPAP or Sleep Study driven revenue.
I realize that DME companies and sleep labs make a lot of money by diagnostic studies and equipment used to treat OSA, and I often get discouraged when money making decisions get in the way of providing patient care. Most medical professionals, including myself, are in the business because we care about people and their health, and luckily, we are able to make a living doing something that we enjoy. Many of us really care and will often buck corporate leaders, in an effort to keep the actual patient care first, before the almighty dollar. But we don't make or enforce the rules, and like most, we have to perform our jobs as we are told or we would lose them.
Not everyone who posts against forums like this are doing it to protect their jobs as much as they are trying to make people aware of the very real potential dangers and risks that can be involved with manipulating pressures on pap machines. Even in a hospital setting, patients are not put on PAP machines unless they are monitored during initial and changing pressure settings.
I am not saying that the people using the machines, without a medical background, are stupid or incapable of participating in their own care. I am all for the pro active patient. I am one myself, with my own health issues.
Not everyone who reads these forums have educated themselves enough to really know what they are doing and do not have a full understanding of other problems they could be creating within their bodies when they start adjusting pressures without cardiac, EEG and pulse oximetry monitoring. I have been witness to some pretty serious issues, even deaths, that were due to improper pap adjustments.
On this forum, even though medical advice is often recommended, I have also read several incorrect statements being given as "educated advice" on adjusting or setting pressures. I read one, in particular, where someone asks how to set a BIPAP to their CPAP prescription and the advice given to them was completely incorrect, and not just in a minor sorta way.
If that person followed that advice, they would be receiving a much lower exp pressures (which is the CPAP portion of a BIPAP) than what had been prescribed by the doctor and then receiving a much too high inspiratory pressure, that wasn't even prescribed at all for the person. I feel sure the advice was probably followed, and if so, their obstructions were probably not treated effectively due to too low of an exp pressure and the potential for pressure induced central apneas would have been fairly high. The machine being discussed, was also not current enough to provide the data needed to see if these problems were actually occurring or if treatment was even effective enough. It was obvious from their responses, that the person asking for the advice, had placed a lot of trust and faith in the very incorrect advice they were given in setting this machine according to their needs prescribed by their medical doctor.
While many have been very proactive in learning about their sleep disorders, what AHI's are, how to monitor their sleep reports along with the changes and who will also stay in communication with their Dr, not everyone who reads the posts or advice given on this site will know the first thing about any of it and can really hurt themselves with getting machines and trying to set them on their own.
Medical professionals are concerned about safety and the very "real" dangers, that, those who have never seen occur, do not believe exists, but they definitely do. So treat yourself if you wish, but be careful and don't bash those who warn against the dangers of it, and use caution when educating the entire public that it is ok to do this on their own, because it is not for everyone to be doing.
Just because you have never witnessed a person having a heart attack, CO2 induced coma, cardiac arrhythmias and other issues caused by incorrect pressures, including death, doesn't mean it's not real and doesn't happen. These issues happen more frequently than you know, especially if you are not around the CPAP life and hundreds of different users on a regular basis. Any of those who have warned against doing this, are probably doing so because they have seen it happen 1st hand, not because they are ranting or worried about losing money over it.....a very critical judgment.