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Pretty depressed
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Eddie702 Offline

Preferred Members

Posts: 20
Joined: Jul 2013

Machine: Res Med S9 Autoset
Mask Type: Full face mask
Mask Make & Model: Res Med Mirage Quatro Medium
Humidifier: F & P
CPAP Pressure: Auto C-pap 4-20
CPAP Software: ResScan

Other Comments:

Sex: Male
Location: Massachusetts

Post: #1
Angry Pretty depressed
I was diagnosed with sleep apnea 9 years ago, was told to run with a pressure of 5. never could get used to the mask so I gave up.

back in July I started being really tired, which isn't unusual for me as I am always tired when my allergies are acting up, but my allergies were not bothering me which led me back to the sleep apnea. back to my ENT who agreed. So I dug my machine out of the closet and started cpap while waiting for a new sleep study which was one month away. Aug 10th.

Since I started back on cpap it took 6 weeks for it to do any good, and by any good just getting mixed results. I feel like I am sleeping better, less tossing and turning, only getting up once per night instead of 3-4 times, feel like I am sleeping better but feel crappy when I get up. Some days I feel just "OK" but not much energy and some days I feel tired.

I feel like the mask fits fairly well, using a nasal mask and a chin strap.

So today I finally got my follow up appointment for the sleep study results. Nothing really changed from 9 years ago. moderate sleep apnea, told to run the pressure at 8-9. Their going to send me a copy of the sleep report. I also asked to replace my machine with a s9 autoset so they are working on that (will see).

I guess I am upset that after 2 months I thought I would feel better or I hoped the Dr would come up with a "miracle" LOL, LOL.

So I would like to get a new machine with the software so I could see the results.

I am just whining about my own situation and should be happy that i'm not worse as some others are.

Sorry for the rant. just needed to get this out.
09-10-2013 07:28 PM
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Tez62 Offline

Monitors

Posts: 837
Joined: Feb 2013

Machine: Resmed S9 Autoset
Mask Type: Full face mask
Mask Make & Model: Resmed Mirage Quattro
Humidifier: Resmed
CPAP Pressure: 5-15
CPAP Software: SleepyHead

Other Comments:

Sex: Male
Location: Melbourne, Australia

Post: #2
RE: Pretty depressed
Eddie702, there is no miracle unfortunately, it takes some people longer than others to feel the effects, I believe that is due to the length of time the person has been undiagnosed and the serverity. It took me about 6 months of constant use to really start to feel the effects and I think it will take years before I'm back to what others would consider normal. I know my body is healing and it will take time. I am slowly seeing results that a lot of people may not expect to see, apart from feeling better and not as tired, my hair is growing thicker on my head, hair is growing back on my legs where is fell off, my ear sight has improved, my skin is better. I think my body is re growing or re generating and that will take me time but I'm willing to wait. I have been on CPAP for a bit over two years and they have been the best two years of my life, keep at it and you can rant whenever you like.
09-10-2013 07:37 PM
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MAPnea Offline

Advisory Members

Posts: 182
Joined: May 2013

Machine: ResMed S9 AutoSet - currently "set" on CPAP mode
Mask Type: Other
Mask Make & Model: ResMed AirFit F10 and P10 - varies
Humidifier: ResMed H5i
CPAP Pressure: 8
CPAP Software: SleepyHead

Other Comments: New Sleep Doc + New DME = Trying new approach to PAP therapy.

Sex: Female
Location: near Great Basin National Park, Nevada

Post: #3
RE: Pretty depressed
Hi, Eddie702,
You may feel depressed right now, but I applaud you for "taking charge" of your health and your therapy by going for another sleep test and asking for a newer machine. I hope you can get the ResMed S9. Don't give up! You've taken some bold, brave steps toward better health through better sleep! Good luck to you!!
09-10-2013 08:37 PM
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Sleepster Offline
Wiki Editor
Moderators

Posts: 4,989
Joined: Feb 2012

Machine: ResMed AirCurve10 VAuto
Mask Type: Full face mask
Mask Make & Model: F&P Simplus
Humidifier: HumidAir and SlimLine Hose
CPAP Pressure: MaxI 13.6 | MinE 5.2 | PS 4.4
CPAP Software: ResScan SleepyHead

Other Comments: Diagnosed Nov 2011. Conquered aerophagia.

Sex: Male
Location: Houston, Texas

Post: #4
RE: Pretty depressed
(09-10-2013 07:28 PM)Eddie702 Wrote:  I guess I am upset that after 2 months I thought I would feel better or I hoped the Dr would come up with a "miracle" LOL, LOL.

If you're running your machine at a pressure of 5 cm, and your new sleep study is telling you it needs to be 8-9 cm, then perhaps just raising your pressure will be the miracle cure. And it also explains why you noticed little improvement in the last two months.

Do you know how to change the pressure on your machine?

Sleepster
Apnea Board Moderator
www.ApneaBoard.com


INFORMATION ON APNEA BOARD FORUMS OR ON APNEABOARD.COM SHOULD NOT BE CONSIDERED AS MEDICAL ADVICE. ALWAYS SEEK THE ADVICE OF A PHYSICIAN BEFORE SEEKING TREATMENT FOR MEDICAL CONDITIONS, INCLUDING SLEEP APNEA. INFORMATION POSTED ON THE APNEA BOARD WEB SITE AND FORUMS ARE PERSONAL OPINION ONLY AND NOT NECESSARILY A STATEMENT OF FACT.
09-10-2013 08:48 PM
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trish6hundred Offline

Advisory Members

Posts: 6,430
Joined: May 2012

Machine: Resmed S9 AutoSet for Her
Mask Type: Full face mask
Mask Make & Model: Fisher & Paykel Simplus
Humidifier: H5i Heated Humidifier
CPAP Pressure: 10 - 7-20 Cm H2O
CPAP Software: Not using software

Other Comments: I started CPAP in 2008. Totally blind since birth.

Sex: Female
Location: Missouri, USA

Post: #5
RE: Pretty depressed
Hi Eddie702,
Sometimes it takes quite a while before you start to notice a lot of improvement. It sounds like from what you say though, you notice a slight bit.
Don't worry about ranting, sometimes we just need to vent, no sweat.
You might want to raise the pressure on the machine you have to the new setting, 'til hopefully, you get your S9AutoSet.
Best of luck, don't give up and keep us posted.

trish6hundred
09-10-2013 09:47 PM
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alby_c Offline

Preferred Members

Posts: 81
Joined: Aug 2013

Machine: resmed s9 autoset
Mask Type: Nasal pillows
Mask Make & Model: Resmed Airfit P10
Humidifier: Resmed
CPAP Pressure: 6 - 12
CPAP Software: ResScan SleepyHead

Other Comments:

Sex: Male
Location: Brisbane, Australia

Post: #6
RE: Pretty depressed
Well done getting it going again.
Dig in your heals for a new machine - after this amount of time the health fund can stand you another one, and make sure it is data capable.
Being able to just review leak information alone to tune mask fit is worth it.
But its also good to be able to see the pressure you run at and correlate that to how you feel and other effects.

And I agree - if you need a 8-9 pressure - 5 would only be stopping a few, and so you would not really feel much better.
09-11-2013 04:30 AM
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Sevensox Offline

Preferred Members

Posts: 55
Joined: Apr 2013

Machine: REMstar Auto A-Flex
Mask Type: Full face mask
Mask Make & Model: ResMed Ultra Mirage Full Face Mask LG STD 60604
Humidifier: System One Heated Humidifier
CPAP Pressure: 16.7
CPAP Software: SleepyHead

Other Comments:

Sex: Male
Location: Missouri

Post: #7
RE: Pretty depressed
Hi and welcome
As you can tell there are a lot of us right there with you. Keep trying.
Lee
09-11-2013 11:20 AM
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archangle Offline
Wiki Editor
Advisory Members

Posts: 3,159
Joined: Feb 2012

Machine: ResMed S9 AutoSet
Mask Type: Nasal pillows
Mask Make & Model: ResMed Swift FX
Humidifier: ResMed S9 H5i
CPAP Pressure: 16-20
CPAP Software: ResScan SleepyHead EncoreBasic

Other Comments: Happy PAPper

Sex: Undisclosed
Location: USA

Post: #8
RE: Pretty depressed
You REALLY need a data capable CPAP machine. It's crazy to treat apnea without one.

Check the links in my signature line to figure out how to get a good CPAP machine.

S9 AutoSet is great. S9 Escape or Escape Auto are not fully data capable.

Get the free SleepyHead software here.
Useful links.
Click here for information on the main alternative to CPAP.
If it's midnight and a DME tells you it's dark outside, go and check it yourself.
09-12-2013 05:54 PM
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Eddie702 Offline

Preferred Members

Posts: 20
Joined: Jul 2013

Machine: Res Med S9 Autoset
Mask Type: Full face mask
Mask Make & Model: Res Med Mirage Quatro Medium
Humidifier: F & P
CPAP Pressure: Auto C-pap 4-20
CPAP Software: ResScan

Other Comments:

Sex: Male
Location: Massachusetts

Post: #9
RE: Pretty depressed
My bad have to update my info, I have my machine set @ 8 and know how to change the pressure. The good news is the DR's office called me and said yes, I can get a new machine because my old one is over 5 years old. They told me the DME will be in touch and If I don't here from the DME to call the DR's office back. The DME provider is supposed to contact me, they haven't yet but it's only been 2 days. Hopefully I can get the s9 autoset I had asked the DR about. She was good with it.

Thank you for all your responses, greatly appreciated.
09-12-2013 06:13 PM
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Sleepster Offline
Wiki Editor
Moderators

Posts: 4,989
Joined: Feb 2012

Machine: ResMed AirCurve10 VAuto
Mask Type: Full face mask
Mask Make & Model: F&P Simplus
Humidifier: HumidAir and SlimLine Hose
CPAP Pressure: MaxI 13.6 | MinE 5.2 | PS 4.4
CPAP Software: ResScan SleepyHead

Other Comments: Diagnosed Nov 2011. Conquered aerophagia.

Sex: Male
Location: Houston, Texas

Post: #10
RE: Pretty depressed
Call the doctor back and get the name and number of the DME. Check your insurance and look at the list of approved DME's. Make some calls and make sure they're willing to give you an excellent machine. Tell your doctor you want a prescription for a fully data-capable machine. Your pressure is low enough that you don't really need an APAP, but you might as well get one anyway since your insurance is paying for it.

Sleepster
Apnea Board Moderator
www.ApneaBoard.com


INFORMATION ON APNEA BOARD FORUMS OR ON APNEABOARD.COM SHOULD NOT BE CONSIDERED AS MEDICAL ADVICE. ALWAYS SEEK THE ADVICE OF A PHYSICIAN BEFORE SEEKING TREATMENT FOR MEDICAL CONDITIONS, INCLUDING SLEEP APNEA. INFORMATION POSTED ON THE APNEA BOARD WEB SITE AND FORUMS ARE PERSONAL OPINION ONLY AND NOT NECESSARILY A STATEMENT OF FACT.
09-12-2013 08:07 PM
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