RE: ResScan CPAP Reporting Software (current version: 3.16) [copied from old forum]
[quote='SuperSleeper' pid='414' dateline='1329977988']
<< "...Really rigid mindset that rubbed my fur the wrong way and bolstered my resolve to get an autoset machine. I did so, paid for it out of my own pocket, and enjoy the freedom of being able to look at my own data. It is MY data, after all, isn't it?
Wife is an RN and says about 90% of patients are passive and defer totally to the authority of those in white coats, sometimes to their detriment. The other 10% often get labeled "non-compliant" or "difficult" when they don't automatically go with the flow. I'm not stupid, and I'm not a herd animal. I want to help paddle the boat and not be a passenger, and I resent like heck the "we know what's best for you" attitude that I see in so much of the health care industry (which is where I work, too)...."<<
And I would think much of this secrecy might be illegal or ought to be, since all the popular TV medical spokesman say to get involved in your healthcare, to be proactive, that it is some sort of right to do so.
When you do -- start asking questions, start learning -- the jerks clam-up, and start protecting your data from you.
Some doctors, often those without the time to do price searches, write out prescriptions for expensive name brand drugs when an equivalent generic or OTC is available. Some of these seem to dislike your knowledge of "pay for delay" agreements that name brand drug companies legally act out, but remain nice in a patronizing manner. Not all, but enough do this to warrant switching doctors or searching out equivalent generic or OTC drugs when possible.
The insurance company is just as bad. And medical equipment - OMG! - Welcome to RIP-OFF and upgrade RIP-OFF Super Stores! Even if you survive, may your wallet rest in peace.
Insurance companies seem to pretend to care, but too much policyholder experience in this industry when managing to stay alive reveals more than most in the industry prefer you to know. Seems you are actually expected to stay ignorant, shut-up, follow your doctors orders without question, and to please remember to pay your skyrocketing healthcare insurance premium.
Seems insurance companies could care less what you are charged for your care -- freely tinker with benefits and up the premiums to cover misuse the providers act out more than the policyholders act out. It's more like these sorts really are all in bed together with one goal ... Your Wallet! Not a conspiracy. Simply a nationwide Money Rush!
It seems obvious that too many in the healthcare industry (and some in government) could care less what the costs are, play 30/90 day prescription games, play hide and seek with the best prices to purchase drugs and home medical equipment, as though they are illegal drug dealers. And please explain what is the difference from both these sorts of manufactures when considering some of the dangerous drugs some of these legal companies produce using minimized or missing test data? And make, "pay for delay," agreements with the Gov. so they can continue to charge horrific prices? Illegal drug dealers seem can compete better with their illegal drugs, than some of the legal ones can with legal drugs.
I'm involved in my healthcare, and know this ... lots of scams or look-a-likes are happening on the Internet AND in the healthcare industry to the uniformed. Pay $10,000.00 priced for a discontinued BiPAP Auto ASV, or under $4,000.00 for a new technology same brand machine.
Complained until the old model was replaced with a new version and at the lower price. Went from so-called therapist consultant (Salesman) to one after another until finding a pro willing to work with me, an older woman with similar sleep apnea issues. Unfortunately, am stuck with my current insurance provider.
Seems odd that were it cancer I'd have to find a doctor with cancer to successfully relate to my issues, then outlive him or her to get the best treatment. Gave notice to the actual therapists to send all changes, relevant reports and other information to her. Any one else call from that equipment company, I refer them to her.
Are you willing to be called a trouble maker in this industry to save the insurance company some money, and hopefully expand that savings to other insurance company policy holders, and your own savings share of $6,000.00? Well, don't expect a thank you from the insurance company.
I even complained to the Attorney General, but seems not much luck there yet. Maybe that will change at some point, don't know, just hoping would suppose. I'll have to copy one of those complaints at some point in another thread. You can complain to the AJ by finding the link for your state in a search engine: *your state* Attorney General healthcare Complaints. Know of other complaint resources please make mention.
All sorts of somewhat self-serving warnings from medical experts on TV about trusting Internet sources to gather information and knowledge, which is true to a point. Yes, ask your doctor. And when treated like an imbecile or troublemaker?
When doctors, plenty of pharmacy manufactures, medical equipment suppliers, and insurance companies play games with your healthcare information and wallet, what other choice is there? Who in their right mind would want to work with people that act like bullies, label as 'difficult' or worse and gang up on the interested and learning, and are constantly looking for any excuse to grab some more money from your wallet?
The older you become and the more middle-class money you have the more interest in your healthcare. When you do not care what it costs, the sky is the limit for the wealthy and not so wealthy alike.
Seems obvious that Internet resources can eventually compete with better answers at times than those that you are paying a fortune. Some answers you can use to help improve your own healthcare, and without the politically correct, industry lobbyists, and special interest crap, and pressure on doctors from insurance companies to withhold some things (and even some treatments), and the secrecy from the healthcare industry that can distort their answers. I’ll say this. Do not wait until you get too old and senile. The money locusts may get to you before decency can intervene.
Yes, there can certainly come some odd, otherwise ignorant or even dangerous advise from the Net, but that can also be the case from those you are suppose to trust in the healthcare industry. If you live long and prosper, al least long enough engaging your healthcare needs from all available resources, some may figure out whom to trust and from what resources.
For that to happen the most decent, most ethical and most knowledgeable must lead us to the Healthcare Promised Land. And hopefully not take forty years to accomplish that task.
That's my effort anyway, to learn and apply what I learn, and this forum looks like a good start in that direction.
(This post was last modified: 09-14-2012 01:29 PM by jmkxlt.)