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Respironics Trilogy for complex apnea?
#11
RE: Respironics Trilogy for complex apnea?
Just before I go to my sleep doc and ask about a different machine to the Trilogy, I would like to make sure have my facts straight, so just so I am clear, no Respeionics machine is really suitable? It's important to know this as they have a contract with Respironics and getting a Resmed machine could get very complicated.

I found this:

https://www.medicalnewstoday.com/article...v-machines

and it looks there is one model each from ResMed and Respironics.

Why would the Dreamstation not be as good as the AirCurve?

If it is a viable option, is it OSCAR-compatible?

Sorry for all the questions, but it's a big decision, and telling doctors they are wrong is not easy...need to get my facts right!
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#12
RE: Respironics Trilogy for complex apnea?
Here's my two cents -- your results may vary.
I was given a Respironics ASV to use to start this "journey". After a year, I ended up with terrible sleep, and ended up having to take prescription sleeping pills to sleep. I thought I was supposed to be getting better, not worse. When my Respironics started to make popping sounds which it didn't previously, the DME sent my machine to get repaired -- 3 times. They loaned me a Dreamstation at one of the repair times, and they loaned me a Trilogy at another one of the repair times. The Dreamstation wasn't bad, but my sleep issues persisted. When they loaned me the Trilogy, I used it for about one week, and found it miserable to use, so I quit using it.
Tired of the repairs issues, I was able to get a Resmed Aircurve 10 ASV. My AHI numbers dropped, some nights I have an AHI of 0.00. It's been 7 months now, I still have sleep issues -- but I have more days where I feel like a functioning human. I've learned I've been using the wrong mask since first starting with the Respironics. So now I'm trying different masks and cushion sizes -- I'm also trying using 2 inch mouth tape to stop mouth leaks. I don't seem to be a mouth breather, but when the machine pushes air into me, sometimes it just flows right out my mouth. A Full Face Mask may be my next try. I do feel I'm making some progress -- but slowly. Tooooo darn slowly.
Since I'm still not sleeping all the way through the night (I'm typing this at 5 a.m. before I go back to bed), I recently switched back to the Respironics machine to try it. That lasted two nights and I went right back to the Resmed machine.
I have a sleep doctors appointment in about a week. She'll prescribe more sleeping pills -- and won't be any help at all in interpreting any data, or any help at getting a new mask. She'll tell me to talk to the DME, and they're a runaround too. It's amazing how something so important can be so futile in getting actual constructive help.
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#13
RE: Respironics Trilogy for complex apnea?
The article you linked is surprisingly inaccurate and uninformed for a medical publication. Both machines use proprietary algorithms to provide pressure support as needed to resolve central sleep apnea. We cover some of the differences here in our wiki; http://www.apneaboard.com/wiki/index.php...tion_(ASV)

This article from the Michigan Academy of Sleep Medicine takes a deeper dive into the differences and functionality and is a suitable resource to cite when discussing this with your doctors. http://www.masm.wildapricot.org/resource...Morgan.pdf

Respironics is very aggressive in obtaining exclusive marketing and distribution agreements with providers and DME suppliers. This practice reduces choices for patients and incentivizes monetary rationales for prescribing a machine, rather than professional medical judgement. I'll leave it at that, since you are experiencing the downside of this lack of choice.
Sleeprider
Apnea Board Moderator
www.ApneaBoard.com

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