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Ridiculous Cpap machine and industry
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jxyzobrien Online

Preferred Members

Posts: 56
Joined: Mar 2016

Machine: resmed s9 series
Mask Type: Full face mask
Mask Make & Model: full mask
Humidifier: unsure
CPAP Pressure: 15
CPAP Software: SleepyHead

Other Comments: heart checked out ok, lung capacity weaker

Sex: Male
Location: clearwater florida

Post: #1
Ridiculous Cpap machine and industry
First it took me 9 months to finally a get a machine. Then ROTECH
gives me the tech manual that deliberately holds back info on how
to use the machine.
SO i wake up with a water boarding incident. It takes 3 months to see
my doctor to get the prescription to change it.
It takes ROTECH 7 weeks to change the pressure.
So i then realize i am a mouth breather so i get a .50c strap from ROTECH to fix the problem.

SO now i am waiting to get full mask to fix the leak problem. If that does not work that is probably it for me. I will go to the doctor and see what else i can do.

Honestly i wonder what the failure rate of CPAP machines is.
It has to be extremely high. I have put tremendous effort into weight loss
and getting this mickey mouse machine to work.
No one can tell me the effort was not there. Shaq comes on TV and says
just turn it on and put on the mask.

So when this new full mask fails and i am being realistic not negative.
Is surgery an alternative.

Suggestions

TECH info here
resmed autoset h5i s9 series
positive airway pressure device
with humidifier
Elite model
nasal mask
pressure set at 13.8
sometimes air pushes mouth open so i have worthless chin strap
overweight 237 (was 262 dieting) age 63.5
scored 40 ahi test in hospital so severe apnea
sleep 4 hours and wake up then can not get back to sleep
leak rate 28 or higher
08-30-2016 02:26 AM
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OpalRose Offline

Monitors

Posts: 3,159
Joined: Nov 2014

Machine: PR System One REMstar Auto 560 with A Flex
Mask Type: Nasal pillows
Mask Make & Model: AirFit P10 For Her
Humidifier: REMStar heated humidifier with heated hose
CPAP Pressure: Auto Cpap 10-13 AFLEX 1
CPAP Software: SleepyHead EncoreBasic

Other Comments: Started CPAP Therapy October 23, 2014

Sex: Female
Location: Northeast Ohio, USA

Post: #2
RE: Ridiculous Cpap machine and industry
You can upload SleepyHead screenshots of a typical night here and someone can help advise you.
http://sleepyhead.jedimark.net/

OpalRose
08-30-2016 06:35 AM
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jxyzobrien Online

Preferred Members

Posts: 56
Joined: Mar 2016

Machine: resmed s9 series
Mask Type: Full face mask
Mask Make & Model: full mask
Humidifier: unsure
CPAP Pressure: 15
CPAP Software: SleepyHead

Other Comments: heart checked out ok, lung capacity weaker

Sex: Male
Location: clearwater florida

Post: #3
RE: Ridiculous Cpap machine and industry
Thanks
its no point downloading data till i have full mask and i have SD card adapter
but i will. It may point out something different

The circles around my eyes look like i have been waterboarded
by Dick Cheney. Hope u are doin well
08-30-2016 08:17 AM
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Sleeprider Online
Wiki Editor
Advisory Members

Posts: 3,307
Joined: Dec 2014

Machine: Resmed Aircurve 10 Vauto
Mask Type: Nasal pillows
Mask Make & Model: Resmed Airfit P10
Humidifier: Resmed Climateline
CPAP Pressure: Auto Bilevel 18/9, PS 3
CPAP Software: ResScan SleepyHead EncoreBasic

Other Comments:

Sex: Male
Location: Where they make Respironics

Post: #4
RE: Ridiculous Cpap machine and industry
The biggest challenge in adapting to CPAP is to get comfortable. The easiest nasal mask to use is nasal pillows as they tend to leak less from the seal. Since your leaks are from the mouth, a full face may be a good answer. As far as water condensing, using a heated hose or hose cover works wonders for improving rain-out. Try to get a heated hose if possible, and if you can't score that, get a CPAP hose cover. Fleece covers are very inexpensive, and a lot nicer looking and feeling.

Finally, take control of your therapy. Good instructions for setting your machine are here: http://www.apneaboard.com/resmed-s9-cpap-setup
You can request a provider manual for your S9 Elite machine by sending an email to: apneaboard@gmail.com and put "Setup Manual" (without the quotes) in the subject line, and Resmed S9 Elite in the body of your email. Do it now!
Finally, teh free sleepyhead software linked at the top of this forum will let you see exactly what is working and where problems may lie. You can post images of your therapy in the forum, and we will help you understand what the data mean. This tutorial discusses how to organize data https://sleep.tnet.com/resources/sleepyhead/shorganize and this one shows how to post your data. https://sleep.tnet.com/resources/sleepyhead/shscreenshot

______________________________________________
Organize your SleepyHead Data
Post your SleepyHead Data from Imgur
Robysue's Beginner's Guide to Sleepyhead
08-30-2016 08:27 AM
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trish6hundred Offline

Advisory Members

Posts: 6,424
Joined: May 2012

Machine: Resmed S9 AutoSet for Her
Mask Type: Full face mask
Mask Make & Model: Fisher & Paykel Simplus
Humidifier: H5i Heated Humidifier
CPAP Pressure: 10 - 7-20 Cm H2O
CPAP Software: Not using software

Other Comments: I started CPAP in 2008. Totally blind since birth.

Sex: Female
Location: Missouri, USA

Post: #5
RE: Ridiculous Cpap machine and industry
Hi jxyzobrien,
I know this is very frustrating, but just keep on trying, don't give up.
Good luck to you.

trish6hundred
08-30-2016 09:21 AM
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Ghost1958 Offline

Advisory Members

Posts: 957
Joined: Aug 2014

Machine: PRS1 Series Sixty Auto Aflex
Mask Type: Nasal mask
Mask Make & Model: F&P Eson
Humidifier: PRS1 with Heated Hose
CPAP Pressure: 10.5 min 16 max
CPAP Software: SleepyHead EncoreBasic

Other Comments: Moderate to Severe SA Obstructive. Rapid O2 desat off the machine.

Sex: Male
Location: KY

Post: #6
RE: Ridiculous Cpap machine and industry
One. Stop depending on a doc or tech to change your pressures. Or much else honestly.

Two. Put the machine lower than you by a foot or so. Any water from the machine will trap in the hose. A wet mask and dry hose is your breathe condensing on a cold mask.
Three. If you do have to go to FFM id suggest getting a Simplus. Simple comfortable and will handle high pressures.
Download software so you can see what is going on yourself.

Surgery rarely as in almost never cures SA.

MAKE the machine work friend. Heart atracks, strokes, brain damage lie ahead, for sure if you dont.
08-30-2016 04:12 PM
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Sleep2Snore Offline

Preferred Members

Posts: 33
Joined: Aug 2014

Machine: REMstar
Mask Type: Nasal pillows
Mask Make & Model: Adam
Humidifier: REMstar or F&P HC150
CPAP Pressure: 18
CPAP Software: Not using software

Other Comments:

Sex: Male
Location: Scotland

Post: #7
RE: Ridiculous Cpap machine and industry
CPAP takes a bit of getting used to and you might have a few masks before you get one that works for you.
It took me just about every mask I could get before I was given Nasal Pillows (for nose breathers, though i am 50/50) but then there was not that many masks around when I first started. What is worse is that I can no longer get the Nasal Pillows I can use.
So I have patched them up again and again.
Stay away from surgery! Very painful and only makes a surgeon rich and it only lasts a short time. Rolleyes
08-30-2016 04:35 PM
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gmapes Offline

New Members

Posts: 3
Joined: Aug 2016

Machine: Philips Resperonics RemStar PR System One (09-11)
Mask Type: Nasal mask
Mask Make & Model: unsure
Humidifier: Philips Resperonics RemStar PR System One
CPAP Pressure: 14
CPAP Software: Not using software

Other Comments:

Sex: Male
Location: Southeast Ohio, U.S.A.

Post: #8
RE: Ridiculous Cpap machine and industry
I realize that several have said this already but hang in there. There are good machines and masks that will work for you. It took a little while for me to get my fixed air pressure correct and a mask that worked well for me. I went through a lot of masks. One recommendation I have is that sometimes the medical supply stores will have different masks that people have tried on at one point or another. They cannot then sell them for full price as new. They are sterilized and I have found that they are very cheap (the place i use $10). This will allow you to try different setups during the night without spending a small fortune. Hope this helps. Good luck
08-31-2016 10:01 AM
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