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Severe Apnea - Advice Needed
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rkl122 Offline

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Posts: 74
Joined: Apr 2016

Machine: Philips Respironics System One 560P (Auto, Aflex, 60 Series)
Mask Type: Nasal pillows
Mask Make & Model: PR Dreamware Frame Med, Pillow MW
Humidifier: Remstar System One - Hose Unheated
CPAP Pressure: low 8.5, high 12.5, expting
CPAP Software: SleepyHead EncoreBasic

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Sex: Male
Location: NJ

Post: #21
RE: Severe Apnea - Advice Needed
(08-26-2016 08:38 PM)Dreams of Green Wrote:  Is there ANY danger I am missing of letting him start treatment before diagnosis? .............

^^^ Anyone? ^^^
That's really a question for a medical professional, but a search on CPAP contraindications provides several relevant hits.

We are such stuff
As dreams are made on, and our little life
Is rounded with a sleep.
08-26-2016 10:13 PM
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Dreams of Green Offline

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Posts: 90
Joined: Nov 2015

Machine: Resmed AirSense 10 AutoSet
Mask Type: Nasal mask
Mask Make & Model: Respironics DreamWear
Humidifier: None
CPAP Pressure: 7 - 13
CPAP Software: SleepyHead

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Sex: Male
Location:

Post: #22
RE: Severe Apnea - Advice Needed
Thanks folks. As I've indicated we're doing everything possible to get the diagnosis done with a medical professional, and I am simply asking for the knowledge of other laymen here. He is going to be spending some nights at my house so we have every opportunity to have him try and nap with my CPAP before ordering one and see how it works. I can't help but joke it shouldn't be too hard - he falls asleep out of nowhere all the time.

Can anyone answer my question about mouth breathing? When watching him fall asleep it has not been easy to tell if he is mouth breathing. If he wears a nasal mask for a few hours and his AHI's are low and his oxygen remains high, I guess that's as good an indication as anything of whether a nasal will work until he gets a diagnosis?
(This post was last modified: 08-26-2016 10:28 PM by Dreams of Green.)
08-26-2016 10:27 PM
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chill Online

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Posts: 856
Joined: Mar 2016

Machine: DreamStation X500
Mask Type: Full face mask
Mask Make & Model: Walk-in Mask Closet
Humidifier: DreamStation
CPAP Pressure: 13-16
CPAP Software: SleepyHead

Other Comments: CPAP True Believer

Sex: Male
Location: Vancouver, Canada

Post: #23
RE: Severe Apnea - Advice Needed
If he is mouth breathing and you are in the room, you will likely hear the air coming out of his mouth. And he awakes, he will complain of an extremely dry mouth. As a part-time mouth breather, you will know. Smile
08-26-2016 10:39 PM
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justMongo Offline

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Posts: 3,851
Joined: Sep 2013

Machine: ResMed VPAP Auto (S9)
Mask Type: Full face mask
Mask Make & Model: ResMed Mirage Quattro
Humidifier: ResMed H5i
CPAP Pressure: 18 IPAPmax - 11 EPAPmin, PS=5
CPAP Software: Other Software

Other Comments: μολὼν λαβέ

Sex: Male
Location: Калифорния

Post: #24
RE: Severe Apnea - Advice Needed
You could look for large leak using sleepyhead. When caused by open mouth, the leak tends to be high; and "flat-tops" on the graph.

INFORMATION ON APNEA BOARD FORUMS OR ON APNEABOARD.COM SHOULD NOT BE CONSIDERED AS MEDICAL ADVICE. ALWAYS SEEK THE ADVICE OF A PHYSICIAN BEFORE SEEKING TREATMENT FOR MEDICAL CONDITIONS, INCLUDING SLEEP APNEA. INFORMATION POSTED ON THE APNEA BOARD WEB SITE AND FORUMS ARE PERSONAL OPINION ONLY AND NOT NECESSARILY A STATEMENT OF FACT.
08-26-2016 10:40 PM
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Dreams of Green Offline

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Posts: 90
Joined: Nov 2015

Machine: Resmed AirSense 10 AutoSet
Mask Type: Nasal mask
Mask Make & Model: Respironics DreamWear
Humidifier: None
CPAP Pressure: 7 - 13
CPAP Software: SleepyHead

Other Comments:

Sex: Male
Location:

Post: #25
RE: Severe Apnea - Advice Needed
Thanks a lot both of you.
08-27-2016 12:01 PM
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martinsr00 Offline

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Posts: 32
Joined: May 2013

Machine: Respironics DS760TS
Mask Type: Full face mask
Mask Make & Model: Mirage Quattro
Humidifier: Respironics
CPAP Pressure: 8/12
CPAP Software: SleepyHead

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Sex: Male
Location: Southern California

Post: #26
RE: Severe Apnea - Advice Needed
My case was similar. I was diagnosed with severe apnea with an AHI score of 59 and was desaturating into the 70's.

I first hired a pulmonologist. He told me: "Untreated, this is fatal -- but if you persevere with treatment, in six months you'll fell 10 years younger". (He was wrong, I felt 20 years younger).

My general practitioner when he saw the sleep study said: "The fact that you have apnea is incontrovertible. Desaturating into the 70's, your blood can clot. If the clot goes to your brain, you have a stroke. If it goes to your heart, you have a heart attack."

It's now 3 years later. Wow, what a difference. I love that machine. It's so nice to feel alive again. And the snoring goes away the first night. Tell your friend how much better life can be.

I had a minor heart ailment (Bigeminy). After two years of therapy, it went away.
08-31-2016 03:25 PM
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