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Six weeks in and fatigue has set in. Again
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Gyddyup Offline

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Machine: Resmed Airsense 10
Mask Type: Full face mask
Mask Make & Model: F&P Simplus; Quattro Air
Humidifier: built-in
CPAP Pressure: 12.8 - 17.0
CPAP Software: SleepyHead

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Sex: Male
Location: Australia

Post: #1
Six weeks in and fatigue has set in. Again
Hi All,

My third week on CPAP was like a new lease of life. I was waking up refreshed and headache free for the first time in years...

In the weeks following i've gone back to square one and am totally exhausted again even though my AHI's are have been coming down - past week i've average 4.8, down from 7 & 8's in the previous weeks.

Anyway back to my GP today for a chat to see where to from here.

Just wondering if these setbacks are normal and to be expected from time to time?

Paul.
12-07-2015 07:24 PM
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Possum Offline

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Posts: 254
Joined: Oct 2015

Machine: Resmed Airsense Autoset A10
Mask Type: Nasal pillows
Mask Make & Model: Airfit P10
Humidifier: (included in CPAP model)
CPAP Pressure: 8-12
CPAP Software: ResScan SleepyHead

Other Comments: Innovo CMS-50F+ pulse oximeter

Sex: Male
Location: San Diego, California, USA

Post: #2
RE: Six weeks in and fatigue has set in. Again
(12-07-2015 07:24 PM)Gyddyup Wrote:  Hi All,

My third week on CPAP was like a new lease of life. I was waking up refreshed and headache free for the first time in years...

In the weeks following i've gone back to square one and am totally exhausted again even though my AHI's are have been coming down - past week i've average 4.8, down from 7 & 8's in the previous weeks.

Anyway back to my GP today for a chat to see where to from here.

Just wondering if these setbacks are normal and to be expected from time to time?

Paul.

Sorry to hear things aren't going well. Honestly, I had a similar experience - a "honeymoon" period that lasted a few weeks, then kind of a normalizing effect, where I can't say I'm waking up feeling like climbing a mountain everyday, but my AHI's are usually <1.

Personally I think this effect is as least partially psychological, because people can adapt to change quickly. So, for the first few weeks you noticed a drastic improvement compared to your previous quality of sleep. Now, you are more "used" to the therapy and maybe don't appreciate it as much, but I bet if you tried a night without therapy you would notice a huge difference the next day.

It is also possible that some aspect of your therapy is not optimized. Have you looked to see what's going on in your data yet? I see that you're using SleepyHead. If you post a screenshot of the data in this forum, there are many software savvy folks on here that can give you feedback. I think you should be able to achieve better than 4.8 with different settings and/or mask.
12-07-2015 07:44 PM
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trish6hundred Offline

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Posts: 6,430
Joined: May 2012

Machine: Resmed S9 AutoSet for Her
Mask Type: Full face mask
Mask Make & Model: Fisher & Paykel Simplus
Humidifier: H5i Heated Humidifier
CPAP Pressure: 10 - 7-20 Cm H2O
CPAP Software: Not using software

Other Comments: I started CPAP in 2008. Totally blind since birth.

Sex: Female
Location: Missouri, USA

Post: #3
RE: Six weeks in and fatigue has set in. Again
Hi Gyddyup,
WELCOME! to the forum.!
Sorry to hear things aren’t going well with your CPAP therapy right now, but just stick with it.
Hang in there for more responses to your post and much success to you with your CPAP therapy.

trish6hundred
12-07-2015 08:47 PM
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justMongo Offline

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Posts: 3,842
Joined: Sep 2013

Machine: ResMed VPAP Auto (S9)
Mask Type: Full face mask
Mask Make & Model: ResMed Mirage Quattro
Humidifier: ResMed H5i
CPAP Pressure: 18 IPAPmax - 11 EPAPmin, PS=5
CPAP Software: Other Software

Other Comments: μολὼν λαβέ

Sex: Male
Location: Калифорния

Post: #4
RE: Six weeks in and fatigue has set in. Again
Paul:
There may be more going on that just apnea.
Discuss with your doctor other factors in your total wellness.
Keeping in mind that I am not a doctor -- areas your doctor may look at are weight, diabetes, thyroid, et cetera.

Regards,

Mongo

INFORMATION ON APNEA BOARD FORUMS OR ON APNEABOARD.COM SHOULD NOT BE CONSIDERED AS MEDICAL ADVICE. ALWAYS SEEK THE ADVICE OF A PHYSICIAN BEFORE SEEKING TREATMENT FOR MEDICAL CONDITIONS, INCLUDING SLEEP APNEA. INFORMATION POSTED ON THE APNEA BOARD WEB SITE AND FORUMS ARE PERSONAL OPINION ONLY AND NOT NECESSARILY A STATEMENT OF FACT.
12-07-2015 08:54 PM
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PoolQ Offline

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Posts: 986
Joined: Jul 2015

Machine: AirCurve 10 VAUTO
Mask Type: Full face mask
Mask Make & Model: Amara View
Humidifier: Integrated
CPAP Pressure: 6.2, 15, PS4.0
CPAP Software: SleepyHead

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Sex: Male
Location: Sillicon Valley

Post: #5
RE: Six weeks in and fatigue has set in. Again
same thing happened to me. I tweaked something and my body said YES! Then the next most important started getting my attention. I went through quite a few of these and some came back for a second look. Humidity, temperature, EPR, ramp, auto start, then BiLevel and finally COPD on top of everything else. Now I have bee fine for weeks and love'n life again.
12-07-2015 10:47 PM
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Gyddyup Offline

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Posts: 33
Joined: Oct 2015

Machine: Resmed Airsense 10
Mask Type: Full face mask
Mask Make & Model: F&P Simplus; Quattro Air
Humidifier: built-in
CPAP Pressure: 12.8 - 17.0
CPAP Software: SleepyHead

Other Comments:

Sex: Male
Location: Australia

Post: #6
RE: Six weeks in and fatigue has set in. Again
thanks for the advice and encouragement.

had a thorough range of blood tests earlier in the year - just needed some vitamin D supplementation. BMI is good at 23.5

yes am thinking i'll need to start tweaking a few settings and reign in the pressure range.

Unless my mask is on super tight it starts leaking when the pressure hits around 12. i tried some resmed liners and thought they were great, until i checked sleepyhead and realised every night i used them corresponded to large leaks.

thanks again
Paul
12-08-2015 06:45 PM
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Sleepster Offline
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Machine: ResMed AirCurve10 VAuto
Mask Type: Full face mask
Mask Make & Model: F&P Simplus
Humidifier: HumidAir and SlimLine Hose
CPAP Pressure: MaxI 13.6 | MinE 5.2 | PS 4.4
CPAP Software: ResScan SleepyHead

Other Comments: Diagnosed Nov 2011. Conquered aerophagia.

Sex: Male
Location: Houston, Texas

Post: #7
RE: Six weeks in and fatigue has set in. Again
(12-08-2015 06:45 PM)Gyddyup Wrote:  Unless my mask is on super tight it starts leaking when the pressure hits around 12. i tried some resmed liners and thought they were great, until i checked sleepyhead and realised every night i used them corresponded to large leaks.

That can ruin your sleep quality. I suggest getting in touch with your equipment provider. Make an appointment for a new mask fitting.

Maybe try the Simplus or the Amaraview. I like them both, but the Simplus is my favorite.

Sleepster
Apnea Board Moderator
www.ApneaBoard.com


INFORMATION ON APNEA BOARD FORUMS OR ON APNEABOARD.COM SHOULD NOT BE CONSIDERED AS MEDICAL ADVICE. ALWAYS SEEK THE ADVICE OF A PHYSICIAN BEFORE SEEKING TREATMENT FOR MEDICAL CONDITIONS, INCLUDING SLEEP APNEA. INFORMATION POSTED ON THE APNEA BOARD WEB SITE AND FORUMS ARE PERSONAL OPINION ONLY AND NOT NECESSARILY A STATEMENT OF FACT.
12-09-2015 11:06 PM
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Dagmar Offline

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Posts: 97
Joined: Jul 2015

Machine: Resmed Airsense 10 Autoset
Mask Type: Nasal mask
Mask Make & Model: Wisp by Respironics
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CPAP Pressure: 10
CPAP Software: ResScan

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Sex: Male
Location: Michigan

Post: #8
RE: Six weeks in and fatigue has set in. Again
My CPAP is a straight 10cm H20 and my Wisp nasal mask is just tight enough to stay in place, which means it's actually not tight at all - the straps are not even snug, just enough to hold the mask where it belongs. I'm not really sure how it seals given how loose it is but it does. So, I agree with the suggestion to keep trying masks until you find one that works well.
12-13-2015 09:00 PM
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Gyddyup Offline

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Posts: 33
Joined: Oct 2015

Machine: Resmed Airsense 10
Mask Type: Full face mask
Mask Make & Model: F&P Simplus; Quattro Air
Humidifier: built-in
CPAP Pressure: 12.8 - 17.0
CPAP Software: SleepyHead

Other Comments:

Sex: Male
Location: Australia

Post: #9
RE: Six weeks in and fatigue has set in. Again
all booked in for mask fitting tomorrow, hopefully can come away with something more suitable for me. and keep the quattro air as my backup.
12-13-2015 10:25 PM
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holden4th Offline

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Machine: PR System One REMStar 60 Series Auto with Bluetooth
Mask Type: Nasal mask
Mask Make & Model: Respironics Dreamwear
Humidifier: Remstar Heated Humidifier
CPAP Pressure: 11- 15 APAP
CPAP Software: SleepyHead

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Sex: Male
Location: Gold Coast Australia

Post: #10
RE: Six weeks in and fatigue has set in. Again
From a different perspective.

I'm just starting CPAP and my biggest issue is getting to sleep. Once I do it's all OK. However, even with limited sleep the CPAP makes a difference. The one thing I have noticed is that while I wake up feeling so much better I hit the wall late in the afternoon. I figure that this is my body saying to me that I'm now sleeping properly and I now need to catch up on some of the sleep I've missed. Maybe this is part of what's happening to you.
12-14-2015 05:23 AM
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